I haven't blogged about my own health issues in a long time because there was no real movement on that front. I felt I had exhausted all the avenues I could. The neurologists all said it wasn't neurological. The everyone-elses said to see a neurologist.
And so I was stuck.
I pretty much ran out of steam, too. I had been fueled by anger for many years. That was the thing that kept me fighting for answers. That anger ran out and was replaced by hopelessness and depression. I was stuck! There was nothing to do except resign myself to a kind of half-existence of seizures and feeling awful; trying to fit some parenting and other stuff in the gaps; although I knew I wasn't actually stuck. My health was very gradually getting worse and worse. I was slipping, not stuck.
I'll fill in the details in the coming days as I pick up this blog again, but following a rather bizarre sequence of events, I have been turned in a new direction for diagnosis and treatment. I don't want to say anything publicly until it is all confirmed and this new treatment plan is part of the confirmation; -either it will work or it won't.
But for the first time in a long time, I am hopeful.