I used to build and repair computers for a living. And software. And networks, ...peripherals... etc etc . This was way back in the days before plug & play, when there was a lot of figuring and configuring to do in order to get a system running smoothly (or at all). I think this work experience has prepared me well for being sick, as many of the principals learned with machines work well on humans, too -although humans are infinitely more complex and persnickety.
And I learned in the computer world, that if you fix one thing, very often something else breaks or gets worse. This is generally because the original problem was masking a deeper issue, and by fixing it, you uncover the hidden nastiness -which was there all along- but you just didn't 'see' it.
So I have been feeling deja-vu-esque for my old job recently, because I think the exact same thing is happening with me now. Except I can't change a few interrupt channels or swap out a memory card. I have to try and refurbish the components in situ. With the power on and the system operating -if only in a limited capacity.
This is waaaaay more complicated than a PC...
I started thyroid medication a little over a week ago. Although my numbers were not technically out of range, #26 thought they were headed in the wrong direction and so he started me on medication. (and researching this, I suspect that he suspects MS. They all do in the beginning...) I have to say that the thyroid meds helped my fatigue hugely. They also helped the constant feeling of cold that I have had, which I have written about here before.
So yes it 'fixed' (well, it definitely helped) two problems that I had had. The downside: my neuro symptoms got MUCH worse. The fits came back with a vengeance -OK they had never left, but they got way worse. I felt much better in-between fits, -and I was sleeping better. But the frequency, intensity and duration of the fits got dramatically worse. Also I started having new symptoms or serious progression of "old" ones. I lost about 80% of the feeling in my right foot for a few days. That was fun. I almost fell down the stairs because I didn't "feel" that I was on the edge. There was definitely a worsening of what I call "the food factor": i.e. my problem of having fits after I eat a meal. And I gained weight! Who the fuck takes thyroid hormone and gains weight? What is UP with that?
I called #25 about the the neuro stuff, because that was worrying. Also I was thinking that this new information would help him to figure out what is going on. This is a serious detective work, so I figure "thyroid make it worse" is a pretty effin big clue. No? Anyway, #25 threw a blue fit about the thyroid meds. "What were my numbers? Who is this doctor?... What hospital..?" Told me to get off the meds immediately... blah blah blah.
I didn't. I'm sorry, but I have been feeling so much more like *me* (between fits and numb feet) that I can't bring myself to do it.
I saw #26 in the meantime for the Glucose tolerance Test and he said much the same thing, although I intend to talk to him about it again when I am *not* having a fit, because those guys really interfere with my train of thought and my ability to argue cohesively (that I can argue at all, is a matter of amazement for all concerned -except possibly my mother were she still alive)
So I have kind of figured out an existence which kinda-sorta works for now. I was fine between meals and if I ate very little, so I am still taking the thyroid meds. I am just not eating much during the day, and this helps me to remain (mostly) functional. If I a small meal in the evening, I am usually OK. So I graze on crackers and vitamins until dinner time and then I eat a meal. Very Slimfast. Or something. But it seems to help until the doctors can figure something better out.
I know some people are reading this, shaking their heads and saying "why don't you just stop taking the thyroid meds?" Here's why: I feel that whatever neuro-symptoms I have been experiencing was masked by low thyroid, which was a problem in itself and causing a LOT of my problems. Now that I have fixed the thyroid issue, the answer is NOT to break it again in order to shore up the neuro issues. The answer is to find and fix the neuro issues for that they are, you know?
Like with PCs: Back in the day; I would never have "fixed" a slow hard drive by hobbling the memory to keep pace with it. I would have fixed or replaced the hard drive. I am simply asking for the same level of support from my 'technical team" that I would have provided for my customers.
Am I wrong here?
I don't think I am. (but I never do!)