Good news! The doc backed up the radiologist. My syrinx has indeed shrunk. He has no idea why, because he has no idea what caused it in the first place, but it has shrunk. Hurray!. I do wonder if correcting that B12 deficiency has contributed to the shrinkage. I know some people believe that there is a link between idiopathic Syringomyelia and B12 deficiency, and I know I definitely had a deficiency. -I just don't know for how long. Of course, I know me reflexes are still out-of whack below the level of the syrinx, but I guess we will just have to monitor that to see if it is residual damage or some kind of progression which is showing up clinically, but not on MRI
We talked about the epilepsy/no epilepsy thing and I mentioned the thyroid connection. He said that he believed there was some indirect connection between epilepsy and thyroid hormone, but I would need an epileptologist to figure it out.
He also mentioned again that the tolerances in my neck are very tight. That make sense to me. I know I only have to pop a disk in my neck a teeny bit and I will have pain from there down to my finger- and toe-tips. Neither of us think surgery is warranted at this point. I can usually get a popped disc back in place within a day or two. I guess practice makes perfect!
Now I just have to get him talking to my neurologist (#25). This may prove difficult. I have been trying to get in touch with #25 myself since yesterday and we missed each other. I need to talk to him about a lot of issues I have been having with tachycardia recently. For example, I am just sitting here typing and my heartrate is 112. This is not normal for me. I think the problem is the Nortriptyline. I mentioned this to #25 previously and he blew it off, but it seems to have gotten worse in the past week (I only started monitoring it a few days ago). Well, I nixed the Nortriplyline and so far, no improvement -although I believe this particular drug has a long half-life.
I guess the other possibility is blood volume. This crazy diet of mine is a natural diuretic and I know I had blood volume problems to begin with. I have been taking lots of salt and drinking lots of water to try and keep my volume up. So far it is not helping (which is why I suspect the nortriptyline even more).
I feel a lot more sympathy for people who have POTS now! Man! Tachycardia is exhausting! I am low-energy to begin with, but now if I even wash the dishes, my heartrate goes to the 130s and I feel short of breath. It really is a bummer. I know some people with POTs can have a resting heartbeat of 150 and I don't know how they get through the day. I suppose one adjusts over time. People can adjust to astonishing conditions, but I still feel for them.