In the past week or so my seizures have gotten much worse. I don't know if it is because of the diet change or the new medication. I suspect the medication, because this pattern of events feels scarily like the last time medication made my seizures worse. That last time was the time the Verizon guy had to call an ambulance for me. I bet he'll never forget that housecall.
So anyone who suffers with a convulsive disorder knows when you feel a fit coming on, you should lie on the floor. One can't fall off the floor, no matter how violent the convulsions become.
I have spent quite a lot of time lying on my floors this week. Carpet is better than hardwood or tile, BTW -just in case you ever find yourself feeling a fit with some seconds to spare. Sorry to state the obvious (and my ex boyfriend would be proud). I made a mental note to self to go to a carpeted area next time I feel a fit encroach.
So yes. I have been lying on the floor a lot -in varying states of mobility, immobility and spasm. Your mind kind of wanders a bit when you have a seizure -at least mine does, so I can find myself thinking about fluffy bunny rabbits one minute and then surprised to discover Joe's long-lost blue sneakers under the couch the next. Then I might think about the woman who worked in the corner grocery store when I was 5. Then remind myself to vacuum that bit along the edges of the entertainment unit where the upright cleaner doesn't quite reach. Then be surprised to find Joe's long-lost blue sneakers... ad nauseum. I am not at my witty best in these moments. I admit.
And all the time I ask myself "what next?" because I am running out of ideas and specialists. I came very close to asking for am ambulance last night because it just went on so frickin long. But why go to the ER? They never ever help me there. They just treat me like some kind of freak. So I chose to suffer in the comfort of me own home. There may be more dust bunnies here, but they don't judge me and at least I know where they have been.