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July 28, 2008

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Hi, I have EDS and having a horrible time with my hands (among others). I'm currently working with a hand therapist and doing very minor exercises... I have wrist splints, and my HT just made me some splints for my fingers similar to ring splints (for free, whoot). I'm loosing a lot of function in my hands... I completely understand. Knitting is actually very good for the hands. A tip- the wooden circular needles are much easier on the hands. I got a set of interchangeables frim knitpicks.com. I love them. Because my hands are so hypermobile, knitting has become very painful for me, as well as crocheting. I've been doing both since I was little... I've recently started sewing (machine) it tends to be a bit easier on my hands, while giving me something to do. I hope you start to get some relief.

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ANDERTOONS.COM MEDICAL CARTOONS

iVillage Message Board on PDD-NOS/Aspergers

Some of my condtions

  • Syringomyelia
    This is a fluid-filled gap in the spinal cord (yes the cord) which can cause pain and paralysis. Mine is said to be "small" and "asymptomatic" ...Said by other people, that is.
  • Hypoglycemia
    Reactive hypoglycemia is like the opposite of diabetes. I produce too much insulin, so I have to keep to a strict diet. This is not my favorite site, but a good start.
  • Ehlers-Danlos Syndrome
    This is a genetic connective tissue disorder. It causes most of my pain problems
  • Raynauds Syndrome
    This doesn't bother me much at all. I just try to keep warm. However I am putting it in there for awareness reasons.
  • Glaucoma
    There is a strong history in my family. I am officially "at risk" (i.e. some minimal nerve damage -no vision loss yet) but they reckon it is only a matter of time.
  • Hemochromatosis
    I don't have this, but like many of European descent, I am a carrier. Hemochromatosis can be a ticking genetic timebomb. Educate yourself.
  • Scurvy
    Yes Really. Who knew it could develop in the 21st century? Get your vitamin levels tested...