NOTE: If you came across his post while searching for a means to actually hurt yourself;
Please. Get. Help. ...NOW.
Now back to our regularly scheduled programming:
How To Hurt Yourself
...when you have Ehlers-Danlos Syndrome:
This is probably not news to most EDS-ers. It may be news to some carers, friends and other people near and dear to us.
The fastest and easiest way to hurt yourself when you have EDS is to forget you have it.
Take me, for example: Every now-and-again, I feel "normal". It is not a common thing, and very welcome when it happens. On these days, I am not exhausted and seizurey. I am not hurting or recovering from an injury. I am able to do stuff and act like a normal person for a day or so.
I had such a day last Thursday. I tidied up some, did a couple loads of laundry, ran tons of errands, put up the Christmas tree, finished decorating it (the kids did most of the initial decorating); made a real dinner from scratch, took the kids swimming and even got in the pool and played with them ( usually sit and knit while they play). All in all, it was huge amount of activity for me in one day.
The next day I was felled with a migraine all day. That should have been my warning not to overdo things. That was my body telling me: "OSM, if you go crazy doing 'stuff' one day, you will suffer the next"
Did I listen? Hell no!
Saturday: I felt normal again. Hurray! I did a bunch of cleaning, vacuuming, more Christmas decorating, laundry and shopping... etc etc. In other words I acted like a normal person, and I went to bed tired.
On Sunday I woke early with a sore neck. I had clearly knocked something out of whack in my exertions the day before. It is now Monday night, and my neck is still not back in place and is very painful. It is totally my own fault for overdoing things on Saturday. Especially as my body tried to warn me the day before.
It's not that I don't know how to listen to my body: I do. The problem I have is that my body forgets to tell me when it has had enough. I don't know I have "overdone things" until they are well overdone. By then it is too late and I am going to suffer, regardless of what I do thereafter. I have written this before, but there is no gauge, no red line, no way to know if I am at or near my limit. Therefore, when I have a good day, I usually make the most of it because ...well, I may as well take the opportunity while I have it, and I have no clue when the next good day will come around.
And because of this, one good day usually means several bad days.
But I got to swim with my kids! That memory will outlast the pain.