A serious diagnosis like Motor Neuron Disease (spelled Motor Neurone DIsease in Europe) is usually a shock and the person diagnosed and their friends and families will often go into overdrive to try and "beat" the disease. This zeal makes MND sufferers (and their families) prime targets for predatory scammers who look for people with medical problems to exploit for gain.
There are two types of scam site to look out for:
- The straight scam product
- The comparison scam site
Let's start with straight product scams. like the ones listed below. These sites are all for a single product, each of which claims "guaranteed treatment" or "results within days" and list all sorts of herbs, -some of which may be dangerous- as ingredients.
The scam sites have a lot in common: there is no real contact information listed anywhere: No names of people, no phone numbers, no e-mail addresses. The contact information is a mail forwarding service, and/or an online form which you fill out, which gives you no e-mail address and no way to follow up. Every single scam site I have found (over 900!) uses CCNow to process their payments. Make of that what you will. I am just stating the fact.
Here is the list of scam products I have found for Motor Neuron Disease, The product name is linked back to their site. If you click on the company name, you will be linked back to my article on the particular company selling that product and why it is bad. Please be aware that most of these companies advertise directly on WebMD and other legitimate medical sites. This does not make their products legitimate. Contrary to what WebMD would like you to believe, they do not verify all of their advertisers, due to a loophole in their advertising policy.Mototab by Oslo Health Solutions (OHS) -more on OHS, detailing the kind of garbage they put in some of their preparations here and a little more info on them and the psychology of scamming here.
Ronitin by Berlin Homeo Products
Troneton by Gordon's Herbal Research Center
Please don't buy any of the above products. They are all scams. None of them are based in the country they claim to be based. All of the addresses are mail forwarding services. If you receive any pills, they will arrive from Pakistan. I have received tons of feedback from readers who tell me this is so.
The other type of scam site is more sneaky. These are the so-called "philanthropic" sites, the ones which want to "help" you find the "correct" cure for your "problem". These sites will list between two or four herbal treatments (all of which you will find listed above) in varying order, and will make an "independent recommendation" of which one they think is best. Of course, the catch is that the "independent" evaluator actually owns all of the bogus cures in the first place, so they don't care which one you choose, as long as you choose one. They get the money regardless. There are multiple versions of all of these sites, identical except for the disease and product names.
(And they think we are the ones who are sick?)
Here is a list of the scam evaluators, along with the link to my background info on them.
Motorneuron-options.com run by The Society for the Promotion of Alternative Health (SPAH)
mndproducts.com run by Herbal Product Reviews
mndhelp.org run by Towards Natural Health. A little more on them here.
I have tried everything I can think to try and get these scams shut down; -and I am still trying, however, they are still operating. In the meantime, I am trying to get the word out as much as possible so that people won't buy these products and be ripped off (I still get e-mails every day from people who have been. Look at the comments on my articles).
Please spread the word that these products are scams. If you belong to a support group or messageboard, please let the other members know about these scam products, so that they are not conned into wasting their time and money.


Angela,
I sincerely hope the comments here have contributed to the products decline. Lord knows I have tried hard enough.
But if you spell the product name correctly you might have better results. It is linked from my article on Gordons
Failing that, you could purchase the Gordons product for Depression, Erectile dysfunction, smoking addiction, Indigestion, vision weakness, or menstruation problems; because they all contain exactly the same ingredients in exactly the same amounts. Thanks for helping me find new Gordons scams to expose. I didnt know about most of these.
I wouldnt actually recommend you put anything from this um company (which is not registered in New Zealand; the authorities have not heard of them AND have issued warnings against them) in your body or in the body of a sick person, but apparently there was some placebo effect or maybe the pills coincided with a slight remission. This happens sometimes.
I wish you the best
OSM
Posted by: One Sick Mother | June 08, 2010 at 08:36 AM
Hi,
I was diagnosed with iritis/uveitis over 2 years ago. After the docs told me there was nothing they could do apart from treat the symptoms with corteson... I looked all over the net for some alternatives... I stumbled upon this site, which looked pretty professional and it advertised a product said to be able to help with my condition. I ordered the product. I ordered 2 containers to be exact, each containing 90 capsules. Needless to say they didnt help. And i stopped after going through 90 x 1 capsule a day.... Now after finding the second container again, I had a closer look at the ingredients, one of which is mercuric sulphide.... Reading this my alarms went off! Can anyone tell me if the actuall listed ingredients are actually in this product??? As I know mercuric sulphide to be highly toxic !! :S
Posted by: benni | October 23, 2010 at 04:33 AM
Hi Benni,
I dont know if the product actually contains the listed products or something completely different. There has never been an analysis done that I am aware. Either way, I would never advise anyone to take it. If it does contain the listed ingredients it is -as you say- highly toxic. If it DOESNT contain the listed ingredients, It could well contain other poisons.
You may want to get to a doctor and have your mercury levels checked, if possible.
OSM
Posted by: One Sick Mother | October 23, 2010 at 09:31 AM