One Sick Mother

And Waiting...

Remember that old Diana Ross song, "I'm still waiting"?  Well, that has been going through my head recently, despite the fact that I hate it.  Now don't get me wrong, it is a lovely song and all. You know the story, right?  A little girl has a crush on an older neighborhood kid and he tells her not to bother. And then he moves away and tells her

"Little girl
Please don't wait for me
Wait patiently for love.
Someday will surely come.."

And of course she doesn't listen.  She waits for him. And as far as I know, she is waiting still.

Because - and I realized this years later, -after I grew a clue. He's GAY!  She can wait until Hell freezes over, gets hot again and then freezes AGAIN, and he's STILL not going to be interested.

...and that's why I hate that song. 

So I heard back from #30 about the whole brain scan thingy. It is a study, won't cost me a bean for the scans (which is good because Insurance won't cover), and maybe some of the other stuff is covered (even better).  However, they are waiting for Board approval or somesuch red tape so I need to hang out some more until that comes through. #30 was very apologetic about the waiting, which was nice of him. However, I don't like hanging around when I could be getting answers.  So we had a conversation which went something like this:

Me: "You know, I'm still confused as to why -if this is CFS- do I feel so much better when I eat hardly anything at all? Yesterday I only ate a few crackers every few hours and I felt great. No episodes at all.  Is that normal for CFS? (subtext: unless you rule everything else out, I won't fit the criteria for your study).

#30:  "That's Interesting. I'll tell you what: While we are waiting for the approval to come through, why dont' we go ahead and schedule a Glucose Tolerance Test to get your glucose and Insulin levels.  Because you know; -just recently I had a woman with that very thing..." (Subtext: Good point. I don't want you buggering up my CFS study if you have a metabolic problem.  Let's rule that out before we get started...)

Ahhhh. The old give-and-take of the negotiating table. How I missed it! 

My GTT is scheduled for tomorrow.

I'm Still Waiting

I went to see doctor #30 in September and I didn't hear back in over a month. I was seriously starting to wonder what was going on with this guy. It turns out the doctor got sick, needed surgery and was out for a few weeks. He assured me he is All Better Now.  I'm happy for him. However in the meantime, I am nowhere near better and thoroughly sick of feeling horrible all the time.  I suppose there isn't much you can do if your very highly specialized doctor is sick, except wait until he is better and hope he doesn't die.

So in case you haven't guessed, we finally spoke last week. None of my labs were surprising, according to #30. My Epstein Barr titers are still very high, as are markers for Parvovirus.  He didn't test me for the new CFS virus that everyone has been talking about recently. Nor did he test me for porphyria, which he had specifically said he would do.  I had that abnormal result months ago and no-one is willing to follow up on it.

*sigh*

So #30 seems convinced I have CFS. He said he is getting together with a expert on MR Spectroscopy  on Monday -today actually, to talk about new imaging techniques for the brains of people like me.  I am to call him tomorrow and talk about ...something.  I'm not sure what. I go the impression that they were thinking of putting together a study, but I'm not sure. I'm in two minds about a study.  The last one in which I participated ended up with me getting unnecessary and experimental surgery and being charged for it.

But it also looks like this imaging; -although definitely interesting-  is considered experimental (but non-invasive) and therefore not covered by insurance.

And I'm poor.

AND there is still the whole having-to-trek-into-the-city-three-times-per-week thing which has not been resolved.

Maybe we'll get it all sorted out tomorrow. 

But I'm not holding my breath.

Stay tuned.

Gardasil, The First Frankenvaccine

A friend, a young lady of college age,  recently posted a link to this video on her Facebook page.  It is the story of Gabrielle Swank, who has become very ill after receiving her third Gardasil vaccination.  Aside from the obvious impact such a story would have on anyone; two particular aspects of it struck me very hard:

1. Many Of Gabrielle's symptoms are very similar to mine; although hers are  more severe and sudden in onset.  I checked out some other stories and a similar list of symptoms emerges.  Hmmmm.
2. My daughter, Grace is nine years old. Very soon, I will face the Gardasil decision on her behalf. (Ugh)

 

So I decided to investigate Gardasil. Like you do. And to share my findings with you.  Because there is a lot here and it is interesting, while at the same time; kind of scary:

The first thing I found out is this: Gardasil is the very first of a new breed of vaccine, which is manufactured by a completely different process than traditional vaccines have been.  There are two new vaccines in a similar vein racing through the FDA as we speak: Cervarix, by GSK, another HPV vaccine and a direct competitor of Gardasil, and a new H1N1 "swine flu" vaccine by Novavax.

Hello, Big Red flag!

Traditional vaccines are made using a live virus, which you then put into the embryo of a developing hen's egg. You leave it for three days for the embryo to develop  some more, replicating furiously and making new virus as it goes. Then you crack the egg,  extract the virus, kill or disable it so it won't cause the actual disease, clean off the bits of dead chick, and voila!  One single vaccine dose!  So you can't make a vaccine without breaking some eggs. (idle thought: Do vegans get vaccinated?  Hmmmm.)

Here is a video explaining the process.

There are several problems with this method: It is slow, labor intensive, expensive and is very dependent on the supply of chickens/eggs.  Apparently they prefer to use young hens in their first laying season, then they "sacrifice" them before the next virus season, presumably rearing a batch of their offspring as a replacement. ('nother idle thought: You know, reading all this, I wondered how they would make an avian flu vaccine? What if the flock got infected with the bird flu virus? ...Or would that be a good thing, and save the trouble of introducing the virus to the eggs artificially?).

The Gardisil vaccine is made using a brand new process -long overdue-  using something called VLPs, which stands for virus-like particles.   I know, right:  WTF is a virus-like particle?  Well it is a fancy,  state-of-the art piece of genetic engineering.

Best as I can understand; it works like this (this is my over-simplified and somewhat over-dramatized version, but it is not entirely inaccurate):

You take a virus, remove it's brains, and then put it in a little bath of yeast and nutrients. The virus will reconstitute itself into something mute that looks and walks and like a virus, but isn't technically a virus anymore. Therefore the name "Virus-Like particle".  

 

I prefer to think of it as a Frankenvirus.  

With the brains removed, the Frankenvirus  cannot cause that specific illness, but it can still reproduce  (similar to  many man I know, no brains, but ready to reproduce with anybody not fast enough to get away)!  And so it does just that, merrily making more Frankenviruses without the lab needing to use any hen's eggs at all (and I bet all the vegans reading this are heaving a HUGE sigh of relief and queuing up to get Fraknenvirus injections...).

Because VLPs -or Frankenviruses as I now prefer to call them (it is less cold) LOOK very similar on the outside, the human body reacts to them as it would to a regular virus, generating antibodies and therefore immunity to the original virus. Apparently the process can be further tweaked, adding bells and whistles in the form of protein coatings that may trigger different immune responses in the "host" -which is the drug company's preferred term for "person" in this scenario (it is more cold).

Frankenvaccines are believed to be safer than traditional live or killed vaccines because there is no way they can inadvertently cause the illness for which they were designed. This all sounds very well and good.

But what about causing NEW illnesses?  Did anyone think to check that one out? -Before Gardasil went into mass production on our next generation of mothers, I mean?

Yes, there were clinical trials, but this is brand new technology. There have been NO long-term trials -intended to be run "post-marketing" (i.e. we'll inject it into all of your little girls and let's see what happens!).  I wonder how many parents were informed that the Gardisil vaccine that was being injected into their daughters was the very first product in a brand new generation of vaccine technology? Because that is information I would want to know, and I think I have a right to know it before I am guilted into making a snap decision in the pediatrician's office

As a former software person, I know that  "version 1" of any product is usually loaded with bugs (pun intended). Every person in my business knows that you have to get to at least version 3 before they get most of the glitches out of the software. So generally, we install our new code on our colleague's computers befire our own (Really. it's mean, but we make an excuse and we do it).

The big thing about new software code (and presumably new vaccines and Frankenviruses), is that they may work just fine in the lab, but you never know what kind of conditions they may encounter out in the real world. When you release them into the world, there can be all sorts of actions, reactions and interactions with other entities and other ...stuff that you could not possibly have predicted under lab conditions.

...not to mention the long-term effects, which have not been studied at all.  

Eventually, we iron out all the little glitches and we release a cleaned-up and safe product in version two or three.

Did the FDA, the doctors or ANYONE warn patients or parents that Gardasil is a 'version 1.0' -not just of a vaccine, but of a whole new technology and  processing methodology?  If anyone has been offered this vaccine, I would appreciate them letting me know if they were told this (thanks).

 

OK now to completely change the subject back to me for just a second.

I have been told I might have Chronic Fatigue Syndrome (CFS).  This was based on the fact that my system contains an abnormal number of antibodies against a virus. In my case, it is Epstein-Barr, but other cases of CFS have been linked to the HPV viruses.  I was very struck by the fact -as I mentioned earlier, that many of the people who got sick after the Gardasil shot had very similar symptoms to mine. Scarily similar.

And this got me thinking -funnily enough (in light of earlier descriptions)- of chickens and eggs:  Namely can CFS or a similar illness be caused by an immune response, rather than a viral infection?  In other words, could a Frankenvirus, which cannot cause illness in itself, cause a different kind of illness by triggering an unexpected immune response in some individuals?

Good question, no?  I wonder if anyone with any actual say in these matters has asked it?

..and I also wonder if IVIG or similar might help some of those girls and women who have had their lives destroyed by Gardasil?

Another big question surrounding Gardasil and other FrankenVaccines, -quite apart from the Frankenviruses therein, are the other additives, called  adjuvants, which are chemicals added to the vaccine, supposedly to make the virus more effective.  The main one used in Gardasil is approximately 225 mcg of aluminum (as Amorphous Aluminum Hydroxyphosphate Sulfate adjuvant).  There have been many questions raised in the medical community, asking if this additive is really necessary?  The Frankenvirus has been shown to work perfectly fine without it.

Gardasil is not the only HPV Frankenvaccine out there. Cervarix, which is GlaxoSmithKline's (GSK) version, has been approved for use in the UK and parts of Europe. Cervarix only contains two Frankenviruses, (as opposed to Gardasil's four) but  GSK have been bragging hugely about their adjuvant,  known as AS04, saying it provoked an even better (i.e. stronger) immune response than Merck's boring old aluminum salt.

'scuse me, but is that a good thing?  Just how much immune response can a body take before it goes into overdrive or starts to shut down?

The one death which had  initially  been linked to  Cevarix, now turns out not to have been linked at all. The 14yo English girl who died had undiagnosed cancer, which had become quite widespread. OK fair enough, but I still think the shot thing was probably a bit more than a coincidence. What else had changed with her?

I don't want to create mass panic here.  I know millions of girls and women have received the Gardasil shot and been fine.

So far.

But is their long-term health being monitored?  How many have gone on to have babies?  How have those babies been?  Really. Enquiring minds want to know:

What are the long-term effects of Frankenvaccines?

There have been thousands of serious adverse events reported and several deaths have been attributed to Gardasil. I don't think the FDA is looking at this as anything more than just another vaccine. I don't think the FDA has said to itself (as I would if I were in charge) "This is the very first in a brand new generation of vaccine technology and processes. We think we'll follow it up more closely than if it were a traditional vaccine".  No.  The FDA, the CDC, the AMA and everyone looking at the cost of cervical cancer treatment and are pushing hard for us to have our little girls injected with this stuff -which -let's face it- is to prevent against a sexually transmitted disease (it is NOT a cervical cancer vaccine. It is a HPV vaccine. Yes, HPV can and does cause cervical cancers, but HPV is transmitted sexually. How many NINE YEAR OLD GIRLS -other than the abused- are sexually active?).

Several things need to change : The FDA needs to instigate some kind of process to more actively monitor and follow up on brand new technology such as genetically engineered viruses and proprietary adjuvants. Currently, they only audit every two years. I would be more comfortable with every six months in cases like these.   Sorry if that's a lot of extra work on an already-stretched agency, but the public needs to be protected.

But instead, the FDA is pushing through more and more Frankenvaccines. Cevarix is set to be approved any day now and a new H1N1 Frankenvaccine, developed by Novavax in Maryland, is being watched with interest. They were the first to put a swine flu Frankenvirus together after the CDC released the sequence, taking less than a month to do it. This is impressive and could change the whole face of the industry.

But at what potential human cost?

Frankenvaccines  have only been in production for three years. They have NOT BEEN FULLY TESTED. The pharmacutical industry is forging ahead nonetheless. I did a little search on VLP patents which are in development or approved:

Over 3,800 of them, including at least one for HIV.

None of this is bad in itself. it would be great to have a safe and effective vaccine against HIV.   However,  I am reminded of the whole Thimerosal thing in the 90s, where vaccines were tested and approved individually, with no thought given to the overall load of virus and chemicals injected into tiny babies. This meant that many babies were injected with mercury at many times the adult recommended levels, because most of the vaccines contained it and no-one had done the math on the cumulative levels (It sounds unbelievable, but it is true. This is the kind of shit the FDA routinely overlooks).

Who is studying potential Frankenvaccine cumulative load and interactions with other Frankenvaccines, I wonder...?

I remember the 90s and it seems to me the whole Frankenvaccine issue - as it is currently playing out, has a much greater potential for interactions and adverse long-term effects than anyone in the pharmaceutical companies or the agencies that are supposed to regulate them are letting on.

So I won't be giving my kids a Frankenvaccine anytime soon.  -especially in light of my own health problems. I already have some of the reported side-effects of Gardasil already, possibly due to my immune response to a different (non franken-) virus. 

What if whatever I have is genetic?

Therefore, Grace will be "one less" person getting Gardasil.

Where Was I? ...Oh Yes: #30

So, in my unrelenting quest to find a diagnosis and treatment for my disabling medical condition, I took myself off to see doctor #30 last Wednesday.  This guy is a metabolic endocrinologist and works mainly in pediatrics. I found him through a buddy of Joe's, interestingly enough (long story). I had called  #30's office, hoping to see him, or at least to get a recommendation for an adult version of him -if you know what I mean (because he is an adult, obviously).  I mentioned before that he had called and after a long conversation, agreed to take my case.  Hurray!  Most doctors who see me coming start crying for their Mommy.

So I packed the kids off to school and undertook the 2 hour walking-and-public-transport commute to the hospital where #30 practices, which is big and internationally recognized. And far away.

What with public transport, hospital red tape and my appalling sense of direction, I was an hour late. #30 is a very kindly mature gentleman and he agreed to see me anyway. He spent a lot of time with me. He had copies of all the stuff I had faxed to him, but no printouts of the documents I had e-mailed. Now, I usually bring copies of all correspondence, but my printer had chosen that morning to run out of ink, and had crapped out right before the most important document: the one depicting the timeline and sequence of events leading up to my first fit (ugh).

Nonetheless, #30 took a detailed history, although he concentrated more on stuff before I was sick than when I was sick -we kept getting sidetracked and I had a few minor seizures, which didn't help with anyone's concentration. So with the afternoon well advanced and no-one fed, he finally sat back and told me what he thought.

"I think you have a variant of Chronic Fatigue Syndrome.."

(whaa...?)

"...and none of the treatments for it work..."  (I nodded, speechless. It is known there is nothing you can do for CFS) 

"...except ours..."

He went on to explain that there are some variants of CFS that present with right-sided weakness, facial droop, seizures and pretty much all of the symptoms I had presented with (except the drug reactions). He invited me to Google it.

I did, of course and I found this piece, which is excerpted below. I have bolded the part that I think pertains to my symptoms:

Research on subgroups of CFS is underway, but is still in very early stages. To date, however, clinical experience and limited data suggest that subgroups of CFS may include the following:

• Post-ADD CFS: Young adults who had attention-deficit disorder as children, who have flipped from hyperactivity to fatigue. Such patients have severe hypersomnolence (sleeping too much, sleeping any time or anywhere). Such patients respond well to psychostimulants.
• Neurological CFS: Patients have more severe cognitive symptoms than patients in the other groups, including trouble thinking, remembering, and paying attention. While cognitive difficulties affect the vast majority of patients with CFS, this group experiences significantly more severe symptoms. Visual-spatial problems are common as are sensitivities to light and noise. Other symptoms in this group include seizure-like episodes and other abnormalities suggestive of temporal lobe seizures. Patients in this group tend to have severe sleep problems in which they never achieve stages 3 or 4 of the sleep cycle, awaken unrefreshed, and respond well to sleep-improving drugs.
• Post-viral CFS versus gradual-onset CFS: According to some experts, an estimated 70% of patients are healthy until a particular illness strikes at a definite time. In gradual-onset patients, however, symptoms develop gradually, and patients are unable to recall any specific viral or infectious illness that initiated the process.

Further delving into my medical records, which I had brought with me, uncovered some unusually high titers for Epstein Barr (AKA infectious mononeucleosis AKA Glandular fever), which #26 had uncovered almost two years ago (but done nothing). #30 said that many people with CFS have antibody profiles that look like mine.

Then #30 went on to explain that their treatment for CFS is a structured regimen of exercise therapy and nutritional support, which would have to be undertaken diligently for several weeks before any results would start to show.

Now I have no problem starting a monitored exercise program. I would love to lose a bit of weight and my response to exercise has been a bit ...um ...unpredictable in the past. I was fired from Physical Therapy for having too many seizures in their office.  But I asked the Big Question anyway (already knowing the answer):

"Could I do this program near my home, or does it have to be in the hospital?"

"It has to be here, in the hospital"

Fuck. I was afraid he would say that.

Here is my problem: Himself and myself are (legal) immigrants with two special-needs kids. We have no family or close friends nearby who can help us. The hospital is two hours away, only accessible via public transport and there is no-one who can accompany me on these trips. Therefore, if I go to the hospital, do my thing and then have a massive seizure on the NYC subway going home (or there!), I am basically screwed. -An epileptic lady I once struck up a conversation with on the subway said that if you have a fit on the subway, they call 911 on on your mobile phone and then take off with all your jewelry and belongings. At least they call 911!

Even supposing I don't have a fit: Grace gets on her bus at 9am and Joe gets off his bus at 3:10pm:

Allow an optimistic two hours to get to the hospital: 11:am

Allow 40 minutes for hanging around, getting registered and prepared etc: 11:40am

Allow 40 minutes to do the exercise program: 12:20 am

One hour (at least) cool-down and monitoring: 1:20pm

Two hours to get home and discover a hysterical Joe on the doorstep: 3:20pm

...and all this is assuming no problems or delays. There is no way I can do it.

Himself has been good about working from home on days when I have to schlep into the city for a doctor's appointment, but he can't do it three days a week for three months. And there is the other question:  What if I am in the hospital, and I get a call from the school, that Grace has dislocated a hip, or Joe has had a meltdown?  I will be two hours away and Himself -if he is at work- will be over an hour away in a different direction. There is on-one locally who would be able to deal with either of them under those or similar conditions.

That won't do.

In a way, I am stressing out prematurely about this. I had seven or eight vials of blood taken yesterday for #30 to review. Maybe he will find something not indicative of CFS therein and will change his treatment plan?

I guess we will wait and see....

Another Day, Another Doctor

I am going to visit a new doctor today. This will be #30 as counted in this blog (but #32 actually, as I left out two in the initial count).

This guy -so far- seems a little bit different: First of all, he called me before the initial appointment, asked many questions about my condition and spoke to me at length. He asked me to send him copies of bloodwork and other tests for review before the appointment.

...and  then  ...THEN he said he thought he might be able to figure out the problem.

WOW!

Most doctors just look at me -like I'm mental (although maybe he was doing that -hard to tell over the phone) and tell me to see ...someone else (doesn't matter who. ANYONE but them!)

But this guy... He said he had some ideas. 

I kinda wish he hadn't said that.

Because now my old stalker: Hope, has been all over me like a rash.

Maybe this guy will be the one to make Hope finally go away?

Or maybe he will have the answer?

I feel right now this guy is my last shot. I know that probably isn't logical, but feelings seldom are.

I will let you know...

Those Little Things We Say....

My sister had five children in as many years. So for several years,  her house was like some kind of cross between a daycare, a zoo, and an asylum. For most of these years, I lived in a different country so my main communication with her was over the phone.

So there we would be on the phone, chatting normally, when suddenly I would be deafened as my sis would break up a fight or something. Here is an example of what our phone conversations were like for several years.

Sis "...well, there he was, standing all alone, so I wen... GET OFF HIS HEAD!!!  YOU'LL HURT HIM(?)  GET OFF HIS HEAD NOW!!!  ...t over to him and sai...  LET GO OF HIS TAIL!!! NOW! HE'LL BITE YOU!!!  LET GO!!  RIGHT NOW!!! ...d "are you lost, luvvy?  Do you need me to help you find your mum?"

Yes. I was lost. And somewhat deaf in one ear.

I thought, after listening to my sis for years, that I was somewhat prepared for the kinds of things you say when you have kids. I also made sure I had a cordless phone and many handsets, which definitely cuts down on the yelling aspect (In fairness: my sis didn't actually yell that much normally, but while on the phone back then, she was tied to one location).

Today, as I found myself calmly telling Grace "don't suck the cat's blood" I realized that yes, there are definitely some phrases that pop out of my mouth; some combinations of words that I NEVER thought I would say in that order, and it makes me shake my head. Or smile. Usually both.  And sometimes the things I say make me wonder if I have been transported into some kind of bizarro world, or am somehow the star of my very own "Truman show"?  The "cat's blood" thing was totally innocuous, BTW. They were playing a vampire game, and poor George had been designated a 'victim'.

Now, I had expected some strange expressions to come out of my mouth. Here are a few I had expected (and got):

• We don't bring worms/ bugs/ snails/ dead birds into the house"
• We don't run out into traffic
• We don't threaten to kill our sister/brother.
• We don't pick the neighbour's flowers, not even as a gift for Mom.
• We don't go visiting the neighbours without permission (Grace)
• No. You may not drive the car
• See! I TOLD you Teddy can't go in the bath!
• This is what happens when you don't put your gum in the trash!

...and then some things I NEVER thought I would ever hear myself say; especially not in the calm, matter-of-fact voice I perfected about a year or so after Joe's special needs became apparent.

• We don't growl at friends/ strangers/ anybody
• We don't attack other kid's moms (/dads) in the zoo  ...Or anywhere, for that matter.
• We keep our clothes and shoes on in the restaurant, please
• We don't sniff the pizza delivery guy
• We don't tunnel behind the boxes on the supermarket shelf  (I distinctly remember wondering where Joe was, and then when looking down the aisle, I watched a progression of cereal boxes fall off the shelf, one after another, away from me, allowing me to track his progress down the back of the shelf. He was pretty fast! There was a long line of boxes by the time I got to him.)
• Do you always pick on disabled four-year olds? Or have you waited your whole life to meet your intellectual equal? (this to a man in K-mart, who was being mean to Joe.  ...and that one wasn't said in a calm voice!)
• Please don't sniff the food you are given in Kyle's house. His mom's feeling might be hurt.
• What show is that from? (this in response to a clearly echolalic utterance) 
• You need to tell people who you are when you call them on the regular phone. it's not like Skype.  They can't see you.
• No sweetheart. Zombies won't get into the house while we are sleeping. The alarm is set.
• I know the guy was fat, but you can't say that to his face.  You have to use other words, like 'big" ... better yet: Don't mention it at all...

...and there are a few non-parenting-related  phrases I never thought I would hear myself utter, either.

• "Don't call 911. It's only been 40 minutes" (since the seizure began) Don't try that one at home, kids.
• "I think we can get it back in. Just pull my arm straight out -don't twist, whatever you do.  On my count..."

I'm sure there are many more, but I can hear the kids start to get wild in the background, and I suspect I will have to go and use some of my phrases in a minute.

What about you?  Are there any particular phrases you never thought you would use that stand out in your mind?

Some Worrying Developments

One day, a few weeks ago, Joe and I went to IHOP (that's International House of Pancakes in case you don't live over here) for breakfast and some mother-son time.  Grace had spent the night at a friend's house and Himself wanted to sleep. So it was just the two of us. When I asked Joe what he would like for breakfast, a little gleam came into his eye:
"Actually, I was thinking I'd like to go out for breakfast."
"OK" said I (walking straight into his litle trap), Where would you like to go"
"I was thinking I'd like to go to IHOP" he said, a tad over-casually. 

So we went to IHOP.  I'm a sucker, I know.  But Joe doesn't actually ask for much, so I do like to indulge him every now and again. And I like some of the food at IHOP.

Joe discovered they have crepes with nutella and banana, which he ordered "without the strawberry stuff" (quite right too. strawberry stuff is complete overkill, if you ask me).

We put away rather a large, sugar laden breakfast. On the way home, I wanted to pop into Trader Joe's to pick something up.  I was searching for a parking space when Joe said -out of the blue, in a serious voice:
"Oh. It's starting"
I glanced back at him and he looked uncomfortable. "What's starting?"  I asked him.
"Sometimes, when I eat a big meal, I get very sleepy."

Uh-oh.

That was my first symptom. It progressed into after a big meal, I feel horrible and fall asleep. and then to after a big meal, I feel horrible and have a massive fit and people call 911.

OK: Maybe it is common-or garden food coma, and I am over-reracting. But I resolved to watch him more closely.

Then I noticed another thing a few times: At dinnertime, Joe has been emptying and refilling his cup a LOT. He mentioned it to me in passing one evening: "I get very, very thirsty at night".

So do I. Intermittent polydipsia (excessive thirst and fluid intake) and polyuria (what goes in exessively, must come out excessively) have been ongoing and unexplained problems of mine for the past couple of years.

Of course, all this could be coincidental. It could be an active child forgetting to drink in the heat of summer and then at dinertime, his body strongly reminds him.

But my radar has been tripped and I am going to watch him closely.

And hope that whatever is going on with him: He doesn't have whatever-it-is that I have.

Fat and Happy?

I have a childhood memory of someone -probably an aunt, telling people "I'm fat, but I'm happy".  It is an expression that stuck with me, because it seems so contrary to all of the perceptions and indeed, most of the published data on obesity.

But my aunt's words have been resonating in my brain a lot recently, because:

1. I have gained weight. 
2. I have been feeling better; having fewer seizures and other neuro symptoms.  Therefore, I have been "happier". 

Now, the above two facts may not be related. They could be completely coincidental.  However, I don't think they are. I have written numerous times that I KNOW my fits are related to food and eating. I was wondering if maybe when my body is in "fat storing" mode, rather than "fat burning" mode; if there is something; -some chemical reaction, which does or does not occur that might trigger a seizure event?

It is an interesting question.

Unfortunately, I am not sure how to answer it:  How does one test for that stuff? To whom would I turn?  I am stuck in the old space, where I will ask an endocrinologist, only to be told to see  neurologist, and if I ask the neurologist, he will tell me to see an endocrinologist.

And there is the other dilemma.  Unlike my aunt, who may or may not have been lying: I am NOT happy to be fat. I am the heaviest I have been since pregnant with my second child, and I hate it.  But the fear is there: if I go back to low carb: -the only way I can successfully reduce and maintain my weight: will the fits return in earnest? 

Actually, scratch that. I know they WILL return. There is not  shadow of doubt in my mind. It will just be a question of when will they return?  And then what?

Dilemmas, dilemmas. 

*sigh*

They never end.

The Secret Evils of a Healthy Diet.

(I'm probably going to get blasted for this one, but I am writing it anyway.)

 No-one wants to hear that a Healthy Diet has Evils. Actually, it was hard to find a clear definition of what constitutes a Healthy Diet, let alone what constitutes Good and Evil therein. But I found a definition and I have found two Evils, which can work together, and -with a bit of assistance from your well-intended and unsuspecting primary physician, can cause a pretty serious problem over time.

WTF are you talking about, OSM? I hear you ask.

I'm talking about B12 deficiency.

Don't be daft, OSM, (I hear you say) there is plenty of B12 in a healthy, balanced diet.

Is there? Show me. OK. scratch that. I'll show you that there might not be sufficient B12 in a healthy diet.

...what exactly constitutes a healthy, balanced diet, anyway?  I tried to find a definition or example online, and could find very little. I did find this:

 

Clinical nutrition definition: Any diet based on sound nutritional principles; the HD philosophy is often coupled with the  belief that organic and/or unprocessed foods–ie, produced without pesticides and chemical preservatives, are superior to adulterated foods

Healthy diets, features of

• High consumption of fruits & vegetables

• Low consumption of red meat & fatty foods

• Raw foods & whole grains are preferred to processed or refined foods

• Protein primarily from fish, dairy products, nuts

• Consumption of salt, pepper, sugar, coffee & other caffeinated beverages, and alcohol, is discouraged

 

OK that sound fair enough, it echoes what most of me doctors have told me: Lots of vegetables and whole grains, low on red meats, fats and chemicals.

Here is a list of some B12 sfood sources from the National Institute of Health (NIH). I figure they should know, right?

Table 1: Selected food sources of vitamin B₁₂

Food	Micrograms (μg) per serving	Percent DV*
Mollusks, clam, mixed species, cooked, 3 ounces	84.1	1400
Liver, beef, braised, 1 slice	47.9	780
Fortified breakfast cereals, (100%) fortified), ¾ cup	6.0	100
Trout, rainbow, wild, cooked, 3 ounces	5.4	90
Salmon, sockeye, cooked, 3 ounces	4.9	80
Trout, rainbow, farmed, cooked, 3 ounces	4.2	50
Beef, top sirloin, lean, choice, broiled, 3 ounces	2.4	40
Fast Food, Cheeseburger, regular, double patty & bun, 1 sandwich	1.9	30
Fast Food, Taco, 1 large	1.6	25
Fortified breakfast cereals (25% fortified), ¾ cup	1.5	25
Yogurt, plain, skim, with 13 grams protein per cup, 1 cup	1.4	25
Haddock, cooked, 3 ounces	1.2	20
Clams, breaded & fried, ¾ cup	1.1	20
Tuna, white, canned in water, drained solids, 3 ounces	1.0	15
Milk, 1 cup	0.9	15
Pork, cured, ham, lean only, canned, roasted, 3 ounces	0.6	10
Egg, whole, hard boiled, 1	0.6	10
American pasteurized cheese food, 1 ounces	0.3	6
Chicken, breast, meat only, roasted, ½ breast	0.3	6

Have a serious look at that list. Now take out the breakfast cereal, because I am pretty sure that's a red herring and then honestly add up how much B12 you consume in a day. Notice that a serving of chicken breast: that vaunted staple of The Healthy Diet, contains only 6% of the Daily Value of B12. A cup of milk (8oz) only 10% and a cup of yogurt, which is two of those little 4oz carton thingys BTW, contains 25% of the DV. 

So -breakfast cereal aside (because I am going to come to that in a minute), were I to try and to get adequate B12 from food, according to this chart from the NIH,  I would need to eat all this:

Food	Percentage DV
2 eggs	20%
A pint of milk (2 8oz cups)	30%
3oz (one little can) of tuna	15%
Two half chicken breasts, roasted	12%
1 cup plain skim yogurt (which I hate)	25%
Total	102%

This brings me to 102% of the daily value. OK fine. Better to be slightly over than under. And remember, I would have to eat all this  in ADDITION to my veggies and wholegrains, which contain virtually no B12.

That's a lot of food. I don't eat three servings of protein AND two eggs AND all that milk and yogurt in one day! I don't know who does. And in order to get adequate B12 from food, I would need to eat like that every single day. Actually more for me. Because I am recovering from a B12 deficiency, I need more B12 than the average Joe.

I can raise my B12 intake by eating Unhealthy food; steak, a taco or a burger all have much higher B12 than the healthy food. But then me Healthy Diet is blown.

...and now we understand the title of this piece.

Yes,  there are better sources of B12 on the list and you may say that I deliberately ignored them. But I can't tell you the last time I served my children wild rainbow trout for dinner, or indeed when I was a Mean Mom and had the audacity to serve farmed rainbow trout for dinner on a school night. Oh wait. I suddenly remembered when:

It was Never.  On both counts. 

We do eat tuna, which is a pretty low source of B12,  but not too much salmon, which is a much better source.  And both kids would probably run a mile if presented with a mollusk (although Grace will eat scallops) or a piece of liver.

So that leaves "unhealthy" food.

Now, I know most of you have probably looked at this list, zeroed in on the 'fortified breakfast cereal', then relaxed, with the thought  I eat me Special K every day. I'm fine.

Are you?

Let's explore that for a minute.

I was quite amazed, when researching this subject to find differing opinions on the recommended daily amount of B12 a healthy adult should intake. Here is an excerpt from the NIH page where I got that daily value grid.

The DV for vitamin B₁₂ is 6.0 micrograms (μg).

This is from the next paragraph, on the exact same page:

Table 2: Recommended Dietary Allowances (RDA) for vitamin B₁₂ for children and adults [7]

Age (years)	Males and Females (μg/day)	Pregnancy (μg/day)	Lactation (μg/day)
1-3	0.9	N/A	N/A
4-8	1.2	N/A	N/A
9-13	1.8	N/A	N/A
14-18	2.4	2.6	2.8
19 and older	2.4	2.6	2.8

 

So which is it, NIH?  Is it 6 micrograms or 2.4 micrograms?   Because that is a big difference! The 6 mcg number comes from the FDA, BTW.  The 2.4 mcg number comes from the Institute of Medicine. Personally, I prefer the FDA number. I'm going with that one for me and my kids. But here's the problem I have now:  Which number was used in the food values table above?  The FDA number or  the IOM one?  As 0.6mcg=10% of DV on that table, it must be the FDA number.  OK fine.

Then I  looked at me box of special K:

	Cereal only	Cereal with ½ cup vit A&D fat-free milk
B12	100%	110%
Folic Acid	100%	100%

 

These are only percentages. There no values in micrograms. So I don't know if this figure is 100% of the FDA-recommended  6 mcg or of the IOM-recommended 2.4mcg. There is a big difference between the two, right?  Reading all the small print of the box I see "The Institute of Medicine suggests...." So I figure the numbers are IOM numbers. Therefore, the cereal does NOT provide 100% of my FDA recommended daily value.  And also, that first NIH table, with the food values:

Fortified breakfast cereals, (100%) fortified), ¾ cup

6.0

100

 

...is wrong! That's the FDA number, but Kellogg's are using the IOM one. Therefore, that line should read 2.4mcg and 40%.  For special K, at least.

I had a quick look online at the B12 value for Cheerios and again, no hard numbers, just percentages. This time the precentage was 25% without milk and 35% with milk. This time there was neither reference to the FDA or the IOM that I could see, so I have no idea which guideline they are using. For me  the point is moot because we don't really eat fortified breakfast cereal in this house. The Special K box that I used as an example here had been sitting there for ages! But if anyone out there is using fortified cereal as a means to keep their B12 levels propped up, just be sure you understand what those numbers actually represent.

Regardless of whether the recommended amount is 6.0 or 2.4, I figure that many of us who are trying to eat a healthy diet are not getting our full quota of B12 every day, (while the people scarfing down steak, burgers and tacos are doing much better on the B12 front!).   But that's OK, right?  If any of us are B12 deficient, the doctor will catch it in the annual physical  (because we all go for our annual physical right after our birthday, right)?  That's our safety net.  The annual physical.

Maybe. Maybe not.

The Mean Corpuscular Volume (MCV) test in the standard CBC is the method most doctors use to measure your B12 levels. It is an indirect measure:  The science behind it is relatively simple: If B12 levels are too low, the red blood cells (RBCs)  start coming out wonky. Instead of being a nice, neat doughnut shape,   like in this picture on the left, they are bigger and uneven with lumpy bits (that's a medical term!), like the picture on the right.  Personally I don't see too much of a difference, but that's probably why I don't work in a lab...

There are a few problems I see with this MCV approach for detecting dietary B12 deficiency:

1 Folic Acid (will explain in a tick).

2. The human liver can store up to four  years worth of B12, so by the time your red blood cells are coming out wrong, your diet will have been deficient for years.

3. Making red blood cell is not B12's only job. B12 also makes myelin, the stuff your nerve cells need in order to transmit signal properly:   Multiple Sclerosis is  disease in which myelin is effected;  so yeah. We need it. A lot. And by the time your blood cells start showing problems, the myelin could have been in trouble for a long time.

4. There is a perfectly good test  available that will directly measure blood serum levels of B12.

 

Sorry, wrong Superhero.

In 1998 the FDA required that certain manufacturers of grain staples like bread and cereal should  add Folic Acid to their product.  Folic Acid (B9)  is like a Vitamin Superhero.  It does lots of things in the body. It is most famous for preventing spina bifita  in babies if taken by women prior to conception and during pregnancy.  In fact, Folic Acid is such a superhero, that if your B12 levels are low, it will step in and help those little blood cells to stay healthy and doughnutty.

However, sending Folic Acid to do B12's job is problematic. Because if Folic Acid is a superhero,  it is like the Batman of Vitamins. Well meaning, with lots of tricks up it's sleeve,  but ultimately human. Batman can't fly. He can jump, glide and absail. He fakes it pretty well, but it isn't real flying.

B12 is more Like the Superman of vitamins. He doesn't need tricks or gadgets. He can fly.

B12's primary Superman trick is that it makes myelin.  Folic Acid just can't do that.  So if your B12 is low or missing, and your Folic Acid is high -and it often is  for those of us who like to eat healthy, because we pile on those leafy green vegetables-  Folic Acid will do it's very best to take over B12's job where it can: In the blood cell department.  Unfortunately, your myelin is on its own. Because Folic Acid can't fly.

So remember that blood test, the MCV that the doc will use to indirectly check your B12 levels?  It is now  actually useless for that purpose, and could even be dangerous, because Folic Acid is taking up the slack with the blood cells, but not with myelin.

That is the second secret evil of a healthy diet: Too much folic acid may mask B12 deficiency.

You need a serum B12 test to really know your B12 levels. Don't bother  faffing  around with MCVs for that purpose.  I'm serious.

What does B12 deficiency feel like?

Now all this -especially the folic-acid-masks-B12-deficiency thing this isn't scientifically proven. Yet. They are starting to find some stuff; see this,  this and this. It is relatively early days yet.  Most people can store about 4 year's supply of B12, so it will take a long time for a dietary deficiency to become apparent.  And B12 deficiency is sneaky and unobvious. For me, it started as fatigue and these hideous mouth ulcers that I used to intermittently get all along one side of my mouth and throat. 

I didn't notice that I was losing feeling in my hands until I burned my hand  and didn't feel it. -I didn't flinch at all, but I SAW my hand was burning and pulled it off the grill (ended up with a lovely blister about an inch across).  If that accident hadn't happened, I don't know when I would have realized there was a problem. Other people who have had B12 deficiency will say the same thing: That  it snuck up so slowly and they didn't realize there was a big problem until it was well advanced.

Because most people do what I did when I first started to feel tired. I blamed myself. I figured. I am unhealthy. I should eat better: More fruits and vegetables, less fast food and less red meat...

See the vicious cycle?

This is why we should go to the doctor, people.

... and ask for the correct test.

SPAH: The Medical Scam Clearinghouse

(This is the fifth -but most important- part of a series. Here are part 1, part 2, part 3, part 4)

Let's just imagine that you have devised a few bogus potions -so-called herbal supplements as  "guaranteed treatment" for almost 300 diseases and conditions from dandruff to cancer.  And let's just say that too many people are skeptical or leery so maybe you make some money, but not quite the millions you expected.  And suppose this isn't quite good enough for you?  You still want to sell MORE snakeoil and rake in more dollars from unsuspecting sick people. But finding new diseases to claim to treat/cure is difficult, because eventually, someone twigs and puts out the alert.  How do you one-up yourself in those circumstances, and market your snakeoil to a wider population?

Simple:  You create a bogus 'society', have it do comparisons of your bogus product against one or two other bogus products with a recommendation to always buy your product.  Here's the kicker:  The other bogus products are also owned by you, but sold by a different set of bogus websites.  So the bogus society can recommend any one of them, and you get the cash anyway.

Yes. You create two or three so called 'guaranteed treatments' for the SAME condition, market each one under a different bogus website and then set up a bogus "independent institute" to compare them all against each other, and then to "objectively" recommend one of them!

It's pure genius.   GENIUS!

Because no matter which bogus product the unsuspecting sick person chooses through your bogus "research institute" YOU get the (real) money.  Because let's face it: in this scenario, the only thing that is real is the money people lose.  And maybe they lose real time and real health.  While the owners of the bogus products and websites are laughing all the way to the (real) bank.

It's a rather sickening kind of genius, actually.  Completely Evil Genius, in fact.  I think I have found the Frankenstein's monster of the Internet..

Remember how I said that Oslo health Solutions had over 280 websites registered, but I had only found about 60 of them?  Well, I think  I have found the other 220.  And 295 from another site.  And maybe another few hundred elsewhere. I physically can't count them all!   

So here is how it works: Let's say that I am looking for a cure for Syringomyelia (which is where I started with all this stuff, let's stick with what we know, here). Syringomyelia (SM)  is a potentially devastating and excrutiatingly painful  degenerative condition of the spinal cord.  It is really difficult to treat, and many myths abound, which means that many doctors "don't believe in" the pain of it. So many people with SM have a hard time finding real help. Or they may not have insurance. So say I am in this position and I find this site, run by The Society for the Promotion of Alternative Health (SPAH -and I don't think those particular initials are an accident BTW), claiming to compare three available natural alternatives. 

So we read this, and my options are:

Omiglatex, which is marketed by Botanical Sources (BS). Omiglatex (and all the Botanical Sources products that I have checked) tries to claim a connection with the Mayo Clinic, just because Mayo once said something like plants are a good source of drugs (Duh! Most commercial drugs come from plants!). But other than that, BS makes few direct claims of its own, except for a money back guarantee and 100% natural ingredients. 

Don't take our word for it and use Omiglatex for a few days. You will begin to experience incremental long term changes. If you don't, we pledge to refund you in full, including delivery charges under our full no-questions-asked refund policy. This guarantee is valid for 60 days from the date of purchase allowing enough time for you to experience results with Omiglatex.

That  sounds stunningly familiar, doesnt' it?

I love the ingredients list for Omiglatex, which include our old friend Nux Vomica (better known as Strychnine  or "rat poison" here in the States); Coral calcium; Indian Rennett, a herb which is used to coagulate  ...stuff  and wattle bark, an old Indian herbal remedy for premature ejaculation

What does all this have to do with treating brain fog, constant burning nerve pain, paralysis and incontinence?  Dunno.  I suspect nothing at all.

So I checked out the next option on the list: Syrotab. 

Yes. Our old friend from Oslo Health Solutions.  

Nuff said about that. It's a proven scam...

 

 Maybe the third option will be the charm?  Right?

Mignitin seems to be a little different. 

It is from Berlin Homeo  Products in ...well, Berlin and is a hemopathic treatment for Syringomyelia   "The amazing 100% guaranteed treatment for Syringomyelia that is bound to leave you amazed!"  (It surely will!  You will be amazed that you paid money for this shite!)

 

Ant they have testimonials! 

 "Your organization is very professional and thank you for the continued support. This is the first time I have been introduced to homeopathy. I never thought it would work so well." - Betty - Florida 

"I can't thank you enough" - Mark - NY

"All I can say is amazing! I was about to give up after trying so many products." - Jessie - California

AND they accept PayPal!  Aren't they nice?

I'm sot too sure about the color scheme, or the picture of something that looks like the bastard love child between a feather duster and a lichen.

Mignitin lists its ingredients too.  You know, I have to LOVE these people for their consistency. They may change the colors and pictures around, but they always have almost exactly the same layout and links and very similar wording.

Here are the ingredients

Ingredient Name Dilution

Sepia D3+30C
Aesculus D1+10C
Cimicifug D1+10C
Calc fluor D6+60C
Baryta carb D6+60C
Rhus tox D1+10C
Kali carb D1+100C

Sepia =  cuttlefish ink

Aesculus = california horse-chestnut

Cimicifug... I think this is Cimicifuga Racemosa, which is Black Cohosh and sometimes used to treat menopause and some muscle (not nerve) pain

Calc fluor  = calcium flouride. -Used for "hard, stony glands" and a host of other stuff in the Quack Bible, my favorite being "threatened apoplexy"

Baryta Carb = Baryta Carbonica  "This remedy brings aid to scrofulous children, especially if they are backward mentally and physically, are dwarfish, do not grow and develop, have scrofulous ophthalmia, swollen abdomen, take cold easily, and then Always have swollen tonsils. Persons subject to quinsy... (WTF is quinsy?  Ah.  It is Peritonsillar abscess (PTA).  I prefer quinsy)...

Rhus tox = Rhus toxicodendron AKA poison ivy!

"Mignitin's composition is 100% safe and all its ingredients are purely natural and free from any side effects."

Kali carb  = Kali Carbonicum  and... oh hey!  I love this  I found it on a homeopathic site:  patient can broadly be described as compulsive - rigidly adhering to a code of ethics and rules. It is very difficult for the patient to express feelings and he exercises strong control over his emotions. Duty is one of the most important concepts for the Kali Carbonicum constitutional type. He will not park in a yellow zone. He will always return to a shop to give back change if he was given too much. He sees things in black and white. The patient is often very stoical. He neither complains about (nor notices) the stress he is under until the situation is very severe indeed. Things outside his control are very upsetting.

 That sounds rather like a description of an Aspie to me...

 ...but NOTHING like a Syringomyelia patient (unless its an Aspie with syringomyelia!).

 

So there you have it! Three Syringomyelia remedies, all bogus.

 

Bus OSM, I hear you say,  Maybe it is a co-incidence?  Maybe only the Syringomyelia treatments are bogus. Because I am so desperate for help, I want to believe! Well, I am nothing if not thorough when it comes to this stuff, so I checked out options for a few more conditions.

Leukemia i.e. cancer of the blood -all types apparently treated by one product from each of these companies.

Leukotab - from Oslo Health Solutions

Kemitin - from Berlin Homeo Products (The amazing 100% guaranteed treatment for Leukemia that is bound to leave you amazed!  Yeah. Amazed you're DEAD!)

 

Multiple System Atrophy -a gradual and fatal shutdown of the body's autonomic system. Usually fatal within two years of diagnosis.

Alpharax - from Botanical sources

Atrotab - from Olso Health Solutio...  ...uh-OH!  Typo!  Atrotab is actually (allegedly) for optic atrophy. Atrophtab  is for MSA.  That's a big mistake if you are running a legitimate service, but a simple one if you are running a SCAM!  Those two actually use different formulations, you see. Like that makes a difference!  I'm sure they are both completely bogus.

Porphotin (from Berlin Homeo Products)  -contains Arsenic.  Nice!

 

Parkinson's Disease

Niprotax -from Botanical sources

Parkotab -from Oslo Health Solutions

Parkotin -from Berlin Homeo Products (site currently unavailable)

 

Musclar Dystropy

Dystratax (from Botanical Sources)

MD-tab (from Oslo Health Solutions)

Laritin  from Berlin Homeo Products

 

Do you see the pattern?  A product that end in "x" from Botanical Sources, then a product that ends in "tab" from Oslo Health Solutions, and lastly a product that ends in "tin" from Berlin Homeo products.  The full list of SPAH websites and the diseases for which they claim to present "treatment options" is below. There are 295 of them.

295 x 2 or 3 (we'll call it 2½) = approximately 737 bogus products.  And I thought 60 was a lot!

SPAH claims to have no affiliation with the products mentioned.  Of course they claim that! This is perfectly in keeping with Rule #1 of scams: Lie Big.

I did some searches on Botanical Sources and on Berlin Homeo Products. I couldn't find much about them.  They claim to be based out of Rome and Berlin.

Here is the contact info, which is probably meaningless.

Botanical Sources
Via Canova 24, Suite # NR 320
Roma 00186
Italy

contact@botanical-sources.com

The Berlin Homeo Products (BHP) stuff I know even less about. 

Berlin Homeo Products
Markgrafenstr. 56, Suite 110
Berlin, 10117
Germany
4487102

info@berlin-homeo.com

The websites I checked are registered to Botanical Sources or Berlin Homeo Products as appropriate.  But all of their sites that I have checked look identical for each organization. The BHP sites even have the same picture of the feather duster/ lichen cross, and the exact same testimonials from the same people, regardless of the disease claimed to treat. Did it just happen that 200+ people called "Mark" in NY, 200+ called "Jessie" in CA and 200+ people called Betty in Florida just happened to contact them and say the exact same thing about 200+ different products?

Ummm-hmmm.

 

So then I searched on SPAH.  The websites I checked are owned by MAK-International. Here is their home page. Notice anything?

Yep. You immediately notice that the design is about identical to all the Berlin Homeo Products sites

 ...but hold on second...  That woman looks like... she IS!  It's my old friend: Vacant Biracial woman from most of the Oslo Health Solutions sites!

Not only that, she is right there with her buddies, Mr Serious and Mr Trying to look Sincere (who is still trying to look sincere!).  They are the same people!  Wow!  What a total co-incidence that MAK International, Oslo Health Solutions and Berlin Homeo Products use exactly the same web designers or models.

Incredible. 

Literally.

So who is MAK International?  I can't find any incorporation information, but is seems to be run by two brothers (or cousins) of (I figure) Pakistani descent who were born and educated in Manchester, England (remember my theory that it was probably a couple of young techies?  It appears I was correct).   MAK International is (officially) run out of Pakistan. If I am right, that they are Pakistani- English, they are perfectly positioned to run a scam of this kind. Born in the UK, they would have full EU citizen status, able to travel or open offices anywhere in the EU.  Having Pakistani citizenship, presumably from their parents, would give them access to cheap labor and herbal crap and enable them to set up office in Pakistan.

Here is their information (I got it off their website, so it is public domain.)

Name: Mustafa Arif
Position: CEO
Born: Manchester, UK (1979)
Qualifications:

BENG Mechanical Engineering
Imperial College, London
CCNA - Cisco - year 2000

Responsibilities:

Implementing the marketing solutions devised for clients.

Experience:

Mustafa has been involved in internet marketing for the last eight years since 1998. He has seen the market evolve over the years.

Core Expertise:

• Search Engine Promotion
• Link Building
• Paid Inclusions
• CPC Marketing
• Affiliate Marketing
• Ad Networking

Name: Kashif  Arif
Position: Customer Liaison Officer
Born: Manchester, UK (1978)

Qualifications:

BENG Electronic Systems Engineering
UMIST, Manchester

Responsibilities:

Liaising with clients providing them pre-sales support. Understanding the client's needs and devising marketing plans according to the client's business type.

Experience:

Kashif held a similar position in Pace Technologies in Cambridge, one of the world's largest producers of digital satellite decoding devices. He was responsible for negotiating contracts for Pace's clients all over the world.

Core Expertise:

• Negotiating contracts
• Devising marketing plans in lieu of the client's needs and budget

 You may contact us via email, telephone, mail and in person.

Email

Sales Enquiries: enquiries@mak-international.com

Existing Clients: support@mak-international.com

Office Address

2nd Floor - 33 Block Z (Commercial)
Defense Housing Authority (DHA)
Lahore 54792
Pakistan

Phone

0092-42-5749903
0092-300-4007904

Fax

0092-42-5749902

While I was researching all this, I must say the Botanical Sources link (or lack thereof) was bothering me. I was having a hard time directly connecting BS with the other three. But something was bugging me: something that I knew was there, but I was missing. Then I realized what it was: 

The logos.

More specifically, the little leafy or swirly things that is used in every logo.  There are always two, usually in complementary tones, and they usually look like leaves or a Pieces or ying/yang symbol.  Check out the leafy things and the "product shots" used by Botanical Sources and OSH

Botanical Sources

 

 

 

 

And these from Oslo Health Solutions.  The are not alike at all. Are they?

 

 

  

 

And we have some more from OSH, this time the "Pisces" version..

 

I like how Ejucatab has both 'Pices' and 'Leafy thingys'

Berlin Homeo Products (BHP) change the pattern a little. More abstract leaves and this time they change in size, not colour. (way to mix it up!)

And of course, MAK International:

 

 

   

 

You know, I found this little dot thingy on the corner of all the MAK International pages, but I don't have the right skills/software to blow it up properly. It looks intriguingly like it could be an amalgam of some of the other logos.  The colors are certainly correct.

If this turns out to be the case, that wouldn't surprise me in the least. These people seem to like their little inside jokes:  "Murakab" -which is an Islamic term meaning "complex ignorance" as an ingredient in many of their products; The fact that  initials of Society for the Promotion of Alternative Health make the word "SPAH" (think English accent) and the wee dot thingy all point to a rather ignoble disregard for their target market: i.e. sick people and their families.

The funniest joke of all is this: The Society for the Promotion of Alternative Health, -although is doesn't claim directly to be a registered charity or non-profit agency  ...ACCEPTS DONATIONS

"SPAH is a donor based organization. It accepts donations from only two sources; volunteering professionals who dedicate their time to the activities of SPAH and secondly from individuals who out of their own will want to donate to SPAH's cause as a result of benefiting from of its sponsored initiatives. It is not possible for us to accept any other kind of donations in order to ensure minimal outside influence on the organization's work."

Yes, they will take your money to further their (ig)noble cause (i.e. ripping off sick people). Except  they won't accept it if you are a corporation or organization. I figure because a corporation or organization will report such a donation on their taxes.  Too many questions might be asked then.  There's your "minimal outside influence on the organization's work".  They don't want Uncle Sam, Mother England or ...Auntie(?) Pakistan asking too many questions.

Below is the (new) Grand List of conditions these guys claim to treat. it is rather an eye-opener. If you have any of the conditions below, or know anyone who has them, please spread the word about this dreadful scam. I am not saying this to get more hits on OSM. In fact, I didn't even want to publish this myself (I have some concerns about potential recriminations from the Arif boys).  But the one person I know in De Meeja hasn't gotten back to me, and I feel the word needs to get out there. People need to be protected. Please post the link to this story to listservs, forums, messageboards or groups for any of these diseases that you might belong to. A scam only works when it is secret. If we generate enough exposure about MAK International, we can be sure they can profit no more from the misery of others.

I warn you to be sure your anti-virus and anti spyware software is all up-to-date before you click on any of the links because (this was taken from one of the SPAH sites)

Passive Information Collection

As you navigate through a Web site, certain information can be passively collected (that is, gathered without your actively providing the information) using various technologies and means, such as Internet Protocol addresses, cookies, Internet tags, and navigational data collection. We use Internet Protocol (IP) addresses on this site. An IP Address is a number assigned to your computer by your Internet service provider so you can access the Internet and is generally considered to be non-personally identifiable information, because in most cases an IP address is dynamic (changing each time you connect to the Internet), rather than static (unique to a particular user's computer). We use your IP address to diagnose problems with our server, report aggregate information, determine the fastest route for your computer to use in connecting to our site, and administer and improve the site

So having been fairly warned, please do check this out. it is quite mind-boggling.

Abdominal Adhesions	http://adhesions-options.com
Acanthosis Nigricans	http://acanthosisnigricans-options.com
Achlasia	http://achalasia-options.com
Acrocyanosis	http://acrocyanosis-options.com
Acute Broncitis	http://acutebronchitis-options.com
Adenopathy	http://adenopathy-options.com
Adhd	http://adhd-options.com
Adrenoleukodystrophy	http://adrenoleukodystrophy-options.com
Agalactia	http://agalactia-options.com
Age-Related Macular Degeneration	http://agesight-options.com
Alkaptonuria	http://alkaptonuria-options.com
Allergic rhinitis	http://allergicrhinitis-options.com
Alopecia	http://alopecia-options.com
ameloblastoma	http://ameloblastoma-options.com
Amenorrhea	http://amenorrhea-options.com
Amlyoidosis	http://amyloidosis-options.com
Angina	http://angina-options.com
Anginoedema	http://angioedema-options.com
Angionma	http://angioma-options.com
Anklyosing Spondylitis	http://ankylosingspondylitis-options.com
Anorectal Fistula	http://fistula-options.com
Antiphospholipid Syndrome	http://antiphospholipid-options.com
Aquagenic Pruritus	http://pruritus-options.com
Arachnoid cysts	http://arachnoidcysts-options.com
Artery stenosis	http://arterystenosis-options.com
Ascites	http://ascites-options.com
Asthma	http://asthma-options.com
Atelectasis	http://atelectasis-options.com
Atherosclerosis	http://atherosclerosis-options.com
Athlete's foot	http://athletesfoot-options.com
Atrialfibrillation	http://atrialfibrillation-options.com
Autoimmune Hemolytic Anemia	http://hemolyticanemia-options.com
Azospermia	http://azospermia.com
Behcet's Syndrome	http://behcets-options.com
Bell's palsy	http://bellspalsy-options.com
Benign essential blaphasospasm	http://benignessentialblepharospasm.com
Benign essential tremor	http://benignessentialtremor-options.com
Blepharitis	http://blepharitis-options.com
Blisters	http://blisters-options.com
Blood in the Semen	http://semenblood-options.com
Bone and Joint Tuberculosis	http://bonetb-options.com
Bone Degeneration	http://bonedegeneration.com
Bowen's Disease	http://bowensdisease-options.com
Bradycardia	http://bradycardia-options.com
Breath odor	http://breathodor-options.com
Bromhidrosis	http://bromhidrosis-options.com
Bronchiectasis	http://bronchiectasis-options.com
Bulima	http://bulimia-options.com
Bullous pemphigoid	http://bullouspemphigoid-options.com
Burning mouth syndrome	http://burningmouth-options.com/
Canker sore	http://cankersore-options.com
Carbunkles	http://carbuncles-options.com
Carcinoid syndrome	http://carcinoid-options.com
Cardiomyopathy	http://cardiomyopathy-options.com
Cataract	http://cataract-options.com
Cellulitis	http://cellulitis-options.com
Cerebal palsy	http://cerebralpalsy-options.com
CerebraxReiter's Syndrome	http://reiterssyndrome-options.com
Cervical spine ( i.e. "neck"!)	http://cervicalspine-options.com
Cervical Spondylosis	http://spondylosis-options.com
Cervicitis	http://cervicitis-options.com
Cheilitis	http://cheilitis-options.com
Chloracne	http://chloracne-options.com
Chondromalacia Patellae	http://chondromalacia-options.com
Chordoma	http://chordoma-options.com
Cluster Headache	http://clusterheadache-options.com
Condyloma	http://condyloma-options.com
Congestive Heart Failure	http://congestiveheart-options.com
Constipation	http://constipation-options.com
Cronkhite-Canada syndrome	http://cronkhitecanada.com
Cushings disease	http://cushings-options.com
Cyclic Vomiting Syndrome	http://cyclicvomiting-options.com
Dandruff	http://dandruff-options.com
Dark Circles	http://eyebags-options.com
Deep Venous Thrombosis	http://venousthrombosis-options.com
Delayed Ejaculation	http://delayedejaculation-options.com
Dequervains tendinitis	http://dequervainstendinitis-options
Dermatomyositis	http://dermatomyositis-options.com
Diabetes Insipidus	http://diabetes-options.com
Diverticular Disease	http://diverticular-options.com
Drematofibroma	http://dermatofibroma-options.com
Drooling	http://drooling-options.com
Drug Induced Liver Disease	http://liverdisease-options.com
Dysfunctional Uterine Bleeding	http://uterinebleeding-options.com
Dyshidrosis	http://dyshidrosis-options.com
Dyspepsia	http://dyspepsia-options.com
Eczema	http://eczema-options.com
Ehlers-Danlos syndrome (EDS)	http://ehlersdanlos-options.com
emphysema	http://emphysema-options.com
Enlarged Tonsils	http://enlargedtonsils-options.com
Eosinophilia	http://eosinophilia-options.com
Epididymitis	http://epididymitis-options.com
Erysipelas	http://erysipelas-options.com
Erythema multiforme	http://erythemamultiforme-options.com
Erythroderma	http://erythroderma-options.com
Erythromelalgia	http://erythromelalgia-options.com
Eyelid ptosis	http://eyelidptosis-options.com
Fahr's Disease	http://fahrsdisease-options.com
Fatty liver	http://fattyliver-options.com
Fibroadenoma of Breast	http://breastfibroadenoma-options.com
Fibrocystic Breast Disease	http://fibrocysticbreast-options.com
Flatulence	http://flatulence-options.com
Folliculitis	http://folliculitis-options.com
Formaldehyde poisoning	http://formaldehydepoisoning-options.com
Friedreich's Ataxia	http://ataxia-options.com
Frostbite	http://frostbite-options.com
Frozen shoulder	http://frozenshoulder-options.com
Ganglion cyst	http://ganglion-options.com
Gastritis	http://gastritis-options.com
Gastro paresis	http://gastroparesis-options.com
Gilbert's Syndrome	http://gilbertsyndrome-options.com
Gingivitis	http://gingivitis-options.com
Glaucoma	http://glaucoma-options.com
Globus hystericus	http://globushystericus-options.com
Glossopharyngeal Neuralgia	http://glossopharyngealneuralgia-options.com
Gonorrhea	http://gonorrhea-options.com/index.html
Granuloma annulare	http://granulomaannulare-options.com
Grave's disease	http://gravesdisease-options.com
Grover's Disease	http://grovers-options.com/index.html
Guillain-Barre Syndrome	http://guillainbarre-options.com
gynecomastia	http://gynecomastia-options.com
Hand tremors	http://handtremors-options.com
Hearing loss	http://hearingloss-options.com
Hemmorhoids (what, no Pileen?)	http://hemorrhoids-options.com
Hepatic Hemangioma	http://hemangioma-options.com
Hereditary Fructose Intolerence	http://fructoseintolerance-options.com
Hernias	http://hernias-options.com
Herpes Simplex and Zoster	http://herpes-options.com
Herpetiform dermatitis	http://herpetiformisdermatitis-options.com
Hidradenitis Suppurativa	http://hidradenitis-options.com
Hives	http://hives-options.com
Hookworm	http://hookworm-options.com
Horner's Syndrome	http://hornerssyndrome-options.com
Hydrocele	http://hydrocele-options.com
hydrocephalus	http://hydrocephalus-options.com
Hydronephrosis	http://hydronephrosis-options.com
Hyperhidrosis	http://hyperhidrosis-options.com
Hypertension	http://hypertension-options.com
Hypertensive retinopathy	http://retinopathy-options.com
Hypotension	http://hypotension-options.com
Hysteria	http://hysteria-options.com
Ichthyosis	http://ichthyosis-options.com
Idiopathic Thrombocytopenic Purpura	http://purpura-options.com
Iga Nephropathy	http://iganephropathy-options.com
Impetigo	http://impetigo-options.com
Inclusion body myositis (IBM)	http://myositis-options.com
Intrahepatic Cholestasis of Pregnancy	http://cholestasis-options.com
Irritable Bowel Syndrome	http://irritablebowel-options.com
Jock itch	http://jockitch-options.com
Keloids	http://keloids-options.com
Keratoacanthoma	http://keratoacanthoma-options.com
Leg ulcers	http://legulcers-options.com
Lennox Gastaut Syndrome	http://lennoxgastaut-options.com
Leukemia	http://leukemia-options.com
Lichen Planus	http://lichenplanus-options.com
Lichen Simplex Chronicus	http://lichensimplex-options.com
Lipoma	http://lipoma-options.com
Liver cirrhosis	http://livercirrhosis-options.com
Liver cyst	http://livercyst-options.com
Low back pain	http://lowbackpain-options.com
Lymphadenitis	http://lymphadenitis-options.com
Malabsorption	http://malabsorption-options.com
Male Infertility	http://maleinfertility-options.com
Mastitis	http://mastitis-options.com
Melasma	http://melasma-options.com
Meniere's Disease	http://menieres-options.com
Menorrhagia	http://menorrhagia-options.com
Mental Retardation (Grrrrr)	http://mentalretardation-options.com
Molluscum Contagiosum	http://molluscum-options.com
Motor Neuron Disease	http://motorneuron-options.com
Multiple System Athrophy	http://multiplesystematrophy-options.com
Muscular Dystrophy	http://musculardystrophy-options.com
Muscular Fasciculation	http://muscularfasciculation.com
Myasthenia Gravis	http://myastheniagravis-options.com
Myelitis	http://myelitis-options.com
Myocarditis	http://myocarditis-options.com
Myopic degeneration	http://myopicdegeneration-options.com
Narcolepsy	http://narcolepsy-options.com
Nasal Polyps (Note Correct Spelling)	http://nasalpolypus.com
Nephrotic Syndrome	http://nephrotic-options.com
neutropenia	http://neutropenia-options.com
Obesity	http://obesity-options.com
Optic atrophy	http://opticatrophy-options.com
Osteo necrosis	http://osteonecrosis-options.com
Osteomyelitis	http://osteomyelitis-options.com
Osteoporosis	http://osteoporosis-options.com
Otitis media	http://otitismedia-options.com
Pancreatitis	http://pancreatitis-options.com
Papular Urtucaria	http://papularurticaria-options.com
Parkinsonism	http://parkinsonism-options.com
Paroxysmal Tachycardia	http://paroxysmaltachycardia-options.com
Pelvic Inflammatory Disease	http://pelvicinflammatory-options.com
Pemphigus	http://pemphigus-options.com
penumothorax	http://pneumothorax-options.com
Peptic ulcer	http://pepticulcer-options.com
Periodontitis	http://periodontitis-options.com
Peripheral Neuropathy	http://peripheralneuropathy-options.com
Peyronie's Disease	http://peyronies-options.com
Pharangitis	http://pharyngitis-options.com
photodermatitis	http://photodermatitis-options.com
Photosensitivity	http://photosensitivity-options.com
Pick's Disease	http://picksdisease-options.com
Pityriasis Alba	http://pityriasis-options.com
Pityriasis Roseca	http://pityriasisrosea-options.com
Pityriasis Rubra	http://pityriasisrubra-options.com
Pneumothorax	http://pneumothorax-options.com
Polycystic Kidney Disease	http://polycystickidney-options.com
Polycythemia Vera	http://polycythemiavera-options.com
Polymyalgia rheumatica (PMR)	http://polymyalgiarheumatica-options.com
Polyps	http://polyps-options.com
Porphyria (All 6 kinds?)	http://porphyria-options.com
Postconcussion syndrome	http://postconcussion-options.com
Post-Polio Syndrome	http://postpolio-options.com
Post-traumatic Syndrome	http://post-traumatic-options.com
Precocious puberty	http://precociouspuberty-options.com
Pre-eclampsia (pregnancy complication)	http://preeclampsia-options.com
Premature Gray Hair	http://grayhair-options.com
Pressure Ulcer	http://pressureulcer-options.com
Priapism	http://priapism-options.com
Prickly heat	http://pricklyheat-options.com
Prostatitis	http://prostatitis-options.com
Pruritus Ani	http://pruritusani-options.com
PseudoTumor Cerebri	http://pseudotumorcerebri-options.com
Raynauds Syndrome	http://raynauds-options.com
Rectal prolapse	http://rectalprolapse-options.com
Renal Artery Stenosis	http://renalarterystenosis-options.com
Renal Failure	http://renalfailure-options.com
Restless Leg Syndrome	http://restlessleg-options.com
Retinal Vein Occlusion	http://retinalveinocclusion-options.com
Retinitis Pigmentosa	http://retinitispigmentosa-options.com
Rheumatoid Arthritis	http://rheumatoidarthritis-options.com
Ringworm	http://ringworm-options.com
Rosacea	http://rosacea-options.com
Salivary Duct Stones	http://ductstones-options.com
Scabies	http://scabies-options.com
Schistosomiasis	http://schistosomiasis-options.com
Schizophrenia (now that is dangerous!)	http://schizophrenia-options.com
Sciatica	http://sciatica-options.com
Scleroderma	http://scleroderma-options.com
Sebaceous Cyst	http://sebaceouscyst-options.com
Seborrheic Keratosis	http://seborrheickeratosis-options.com
Sensitive Teeth	http://sensitiveteeth-options.com
Shingles	http://shingles-options.com
Sick Sinus Syndrome	http://sicksinus-options.com
Sinus Tachycardia	http://sinustachycardia-options.com
Sjogrens Syndrome	http://sjogrens-options.com
Skin Abscess	http://abscess-options.com
Skin Tags	http://skintags-options.com
Soft Tissue Sarcomas	http://softtissuesarcomas-options.com
Spasmodic Dysphonia	http://spasmodictorticollis-options.com
Spider Veins	http://spidervein-options.com
Spinal Muscular Atrophy	http://spinalmuscularatrophy-options.com
Stroke (...REALLY?)	http://stroke-options.com
Sunburn (check the privacy policy)	http://sunburn-options.com
Syphilis	http://syphilis-options.com
Syringomyelia	http://syringomyelia-options.com
Teething troubles	http://teething-options.com
Temporomandibular Joint Syndrome	http://tmj-options.com
Tetanus	http://tetanus-options.com
Thalassemia minor	http://thalassemiaminor-options.com
Thrombocythemia	http://thrombocythemia-options.com
Thyroid Nodule	http://thyroidnodule-options.com
Thyroiditis	http://thyroiditis-options.com
Tick Bite	http://tickbite-options.com
Tinea	http://tinea-options.com
Tinea Versicolor	http://tineaversicolor-options.com
Tinnitus	http://tinnitus-options.com
Trigenimenal Neuralgia	http://trigenimenalneuralgia-options.com
Trimethylaminuria	http://trimethylaminuria-options.com
Ulcerative Colitis	http://colitis-options.com
Undescended Testicle	http://undescendedtesticle-options.com
Upper Gastrointestinal Bleeding	http://intestinalbleeding-options.com
Urethritis	http://urethritis-options.com
Urticaria Pigmentosa	http://urticariapigmentosa-options.com
Uterine Fibroids	http://uterinefibroids-options.com
Uterine Prolapse	http://uterineprolapse-options.com
Uveitis	http://uveitis-options.com
Vitreous Hemorrhage	http://vitreoushemorrhage-options.com
Vocal Cord Nodules	http://vocalcordnodules-options.com
Vocal Cord Paralysis	http://vocalcordparalysis-options.com
Von Willebrand Disease	http://vonwillebrand-options.com
Vulvovaginitis	http://vulvovaginitis-options.com
Vulvular Dystrophy	http://vulvardystrophy-options.com
Waldenstrom's Macroglobulinemia	http://macroglobulinemia-options.com
Warts	http://warts-options.com
Wilson's Disease	http://wilsons-options.com
Wiskott Aldrich Syndrome	http://wiskottaldrich.com
XXXX (Look Ma!  I found the template!)	http://legulcers-options.com/aboutus.html

Many of these conditions are relatively benign or harmless. However, some are serious conditions: MSA, Spinal Muscular Atrophy, Muscular Dystrophy, Syringomyelia, Ascites, Stroke, Pseudotumor Cerebri, renal failure, leukemia

Some are targeted at pregnant women (preeclampsia, Intrahepatic Cholestasis of Pregnancy),

Some at babies (teething, prickly heat)

And some are just evil  (Mental retardation, schizophrenia, gonorrhea, syphilis)

Please spread the word and help shut these people down.

NOTE: Special thanks to a reader,  Kathryn who first sussed the SPAH connection.