One Sick Mother

First: A Big Frickin Disclaimer:

I am not associated with any of the sites or organizations that I out as scammers on this blog. Neither am I associated with their competitors, Big (or little) Pharma, any medical or herbal products or services.

In other words: I am completely, uttterly (and sometimes painfully) independent and without affiliations.

This site does not support any advertisements or endorsements of any kind as a matter of strict policy. All links off the main page are to my own work or to other independent blogs.

And no. I don't make any money from this. I just do it because I can.

Now let's continue on to that "About me" I promised earlier:

I used to be a Business Analyst and Product Manager working with technology for Wall St, until I got sick in 2006.

Since then I have been trying to find a diagnosis (really!) and a treatment plan so I can get back to my life.

In the meantime, I use my not-inconsiderable research and analytical skills to both amuse and annoy myself by finding and outing bogus cures, miracle treatments and online scammers who prey on sick people in order to make a quick buck.

I also like to write about the sites/ organizations that enable the scammers by taking their money or "turning a blind eye" to their activities (i.e. most governments).

...and anything else that takes my fancy.

You may want to skip the rest, which is boring stuff about my medical conditions:

I started having fits in 2006.

First "they" said it was epileptic seizures, and I was put on a series of drugs, most of which landed me in the ER.

Then I was told it wasn't epilepsy, and so somehow not worthy (unfit?) to be called "seizures" anymore. My neurologist calls them "episodes", but that makes them sound like temper tantrums.

Convulsions might fit, but I have been reading the "Outlander" series by Diana Gabaldon, in which the characters are always doing things "convulsively": shuddering, jerking, wincing... You name it, it was done convulsively. And my things were more ...well convoluted than that.

So I decided to go with "fits". It's snappy, irreverent and to the point. "Fits" fits.

I have found out in the course of the past two-and-a-half years that there can be many different causes of fits other than epilepsy and the other one the doctors tell you about; -psychosomatic illness (and Yes. I have seen a shrink). In fact, in almost every discipline you encounter, they can come up with a possible explanation for fits. And a test.

So I have been to 27 doctors trying to find the cause of these fits. During that process, I was "incidentally" diagnosed with numerous different conditions, most of which you will see listed on the page. Some impact me more than others. The grandaddy of them all is Ehlers-Danlos Syndrome, a genetic flaw which impacts collagen. As collagen is in every part of the body, EDS can have some interesting ramifications for people like me.

And my kids.

I have a feeling when I get to the end of this journey, EDS will be at the root of my "fits" and other symptoms.

Or maybe not.

I am still learning...