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October 17, 2008

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Queen Slug

I think they only way to cure these things is to alter the genetic code before the child is born & really, that's a hell of a long way off. I doubt our grandkids will have that as an option even.

If they could fix adults, I don't think I'd want to be fixed. I don't think I could adapt to a rigid body, one that can't flex just a bit more when you need it to. I should mention I am one of those in daily pain, one of those who some days can't walk I hurt so bad, one of those who will most likely end up on disability from my EDS. I know were I suddenly cured I would end up hurting myself trying to do what I no longer could do because I don't think about it when I move. I think I might end up worse off.

As for the world, I don't know that they are prepared, but the Aspies I know are all adults & are doing well in the world, I think for the most part the Aspies will be ok. They will sinply make their own paths & spaces. The Auties, I can't say as I don't know very many. I don't think most adults would want to wake up in a mind that feels freakishly alien. Who in the world would want that?

So all in all, let's leave the cures for the babies.

andrea

I HAVE "theory of mind"; what I don't have is a knack for (or consequently, much interest in) small talk.

The issues with ToM is not that autistics cannot understand that others do have different perspectives, nor do we lack sympathy, but that we are so frequently "blind" to the nonverbal signals to pick up the social cues and "politics".

As for the hypermobility, yeah the arthritis sucks, but as you say, there are also a lifetime of benefits, like being able to scratch your own back or pick stuff up off the floor without crouching down.

andrea

One Sick Mother

QS,

Thanks for the input. I'm with you. Leave it for the babies.

Andrea,

I didn't want to generalize, so I took broke it down to one: "an adult Aspie or Autie". I know many have ToM and many don't and there are degrees inbetween.

But the point of the piece was not the specific semantics of either condition. The point was to explore what might happen if a magic "cure" suddenly arrived tomorrow?

What would you do? If there was a pill that could "cure" your Autism and make you a "normie": Would you take it?

OSM

Bendy Girl

Great post! I am one of those who has the severest forms of EDS and I certainly don't want to be 'cured' It's part of who I am pain and disability too.
I think there is a major issue in society with people wanting to believe everything can be cured-the longer we continue down that path the worse things will get. Genetic disorders are part of being human and shouldn't be eliminated, after all what will happen then?

Maija Haavisto

I'm a medical writer, a PWD and also somewhat of a moderate transhumanist (a good friend of mine also has EDS). And I'm very sure that we'll have a real cure for EDS in about 10-15 years - the same goes for all diseases and conditions. It will probably involve both gene therapy and something like nanobots to fix parts of your body. Of course, it will be entirely voluntary.

About autism, it's a more difficult issue of course. As it will soon be possible to modify people in any way we wish, it would probably be possible to make autistic people experience the best parts of the NT world (like emotional connections, reading body language etc) while still retaining their "savant" abilities. The problem will be with children and the very severely autistic people. Who will get to decide if they should be "cured"? Can they be "uncured"? I don't know.

You probably don't believe me, but I have studied this subject quite a bit, both for my work and my personal interest in the future. I have an illness which is currently usually incurable (CFS/ME) and I definitely want to be cured. Luckily the medical science is progressing at an amazingly rapid rate, even though it may seem painfully slow to us. Many formerly incurable illnesses like Parkinson's can already be cured (not 100%, but sometimes), we just need to figure out how to fix the damage already caused.

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