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January 01, 2009


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Good luck with this next appointment. You must be a super-responder to blood sugar. But how can you avoid having normal levels of blood sugar unless you restrict your diet to only fats and vitamins? Maybe there is some tweak that will end up working for you.

One Sick Mother



I don't know if I am hypersensitive to blood sugar or insulin? I know some people are insulin resistant. I think some can be hyper-responsive to it (which is much less common, naturally.)

...I don't know. I have tried to puzzle this thing out myself so many times, I just get stuck.



I hope things go well, I like the idea of trying to identify with the scientific method the variant, or stabilizing or recording when you are well and what is different when you are having a seizure. As I found out, there is no normal. I had two holter tests 3 months apart when my disease started and my sleeping heart rate ROSE by 35%, and now my 'resting heart rate' is what someone has doing a light jog (about 95-98 - it used to be 62). In fact, now when my heart rate falls into the 'normal' range of 72, I am almost passed out from low volume and require stimulants. I just give this to point out that your condition may reset what is 'normal' and that is the new normal for you. And if the new normal doesn't make you feel awful and give you seizures, horaay for the new normal. I guess the question is how to lower how your body produces insulin (I think they must make some sort of insulin suppressant) - if that is the problem. I hope things go well and you get an answer.

One Sick Mother


Thanks for the support. Yes I think my "normal" is broken, and the break is chemical (hormonal). Which sucks because I am bad on the chemistry side of things. Electro/mechanical I can figure out fine. But then they start talking about precusors, agonists and receptors, my eyes glaze over and and I start to hyperventilate.

Part (most) of my problem -and I think you have the same issue but worse, is that more than one specialty is involved. A straight cardiac issue is treated by a cardiologist, but a neurologically based cardiac problem... well that becomes tricky and many docs are scared off.

I hope we both find some relief in 2009.


Lisa Moon

Ugh. This just reinforces my fears that doctors too often do not know much of anything, just some random crap they memorized and reel off... if you don't fit into the little boxes they learned about, well you must be faking it or something!

And there are SO many things that would actually be 'miraculously' dealt with if doctors could just get it together and discuss their respective areas of expertise and their patient's findings; they might actually HELP people or something!

Here's hoping our tests on the 6th are productive and helpful and not at all scary for the both of us. :)

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