Setback

And I thought things were going so well.

My blood pressure has been on rather a roller coaster.  When I had the flu, it was 90/52 even with Florinef.  I saw #25 on Monday, and my BP was 150/100.  That was when I realized that the stupid BP monitor I have at home isn't working properly. It is measuring low. Like at least 20 points on both numbers low.

And #25 gave me a severe bollocking for taking Florinef "despite high BP"  (although I did explain that at the cardiologist's last week, it was normal before, during and after the stress test).  He also said that according to his records, my BP runs high.  Most of my other doctors (and I have several) tell me it runs low. I don't know why #25 sees this discrepancy. Either #25 needs a new BP cuff, or my BP gets higher later in the day -#25 usually sees patients late in the evening. whereas most of my other doctor appointments are earlier in the day. Of course, if I had a BP cuff that worked, I could test this theory.

Oh and #25 was very skeptical when I told him the Florinef helped my fits. He acted like it was a placebo effect (at best). I told him "just because you can't see the connection doesn't mean it is not there or that it is not real".  That endeared me to him, I'm sure. Well sorry, #25, I am your patient, not your friend, and you are supposed to be providing a service for which you are paid: i.e. getting me well. It has been over a year and I have just gotten worse.

I am very, very tired of this.

So the next day, when My BP was still apparently high (no way to accurately measure this, but if the size of my ankles was anything to go by, it was HIGH -I could have given a Grand Piano a run for it's money. Thank goodness it is winter), I decided to stop the Florinef.

It is now day 2 and my blood pressure has not gone down.  I am very confused. I don't know what is going on.  My foot is numb again, but I have not had any more seizures.   Yet.

I'm sure they are in the mail.

Comments

[fridawrites]

It seems very possible that his BP cuff is wrong and he may have more high BP patients than average. I like how you # the doctors--not a bad idea.

[Ab]

I know someone who's BP is high at night only. it is not common but certainly not unheard of. she had a mini stroke probably because it took them so long to figure it out.

[Lisa Moon]

Oh, gods, my dear - how infuriating! I can't stand it when docs think they know it all, especially when they clearly do NOT.

I'll be praying very hard for you to NOT receive a large sum of seizure-mail now or anytime in the future. :(

I mean, REALLY; if it's not one thing it's another - but do they ever have a real suggestion?

Personally, I've always thought my blood pressure must shoot right up everytime they start to inflate that damn cuff; I have large arms, so maybe that has something to do with it, but I always find the 'full' point on the painfull side! If it hurts/you anticipate it hurting, wouldn't that send your blood pressure up a bit?!

[Katherine]

I am so sorry, how very annoying! Doctors, can't live with them, can't live without them! I currently have 4, so I know a little bit how you feel. I too hope the seizures get lost in the mail for good.