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January 26, 2010


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That picture of "Mystic Meg" is scary!

Very interesting result you had! I might try it myself at sometime since you had a pretty fair response. I like that concept that the doctor has to try to satisfy the customer with the answer, to give something other than a rote answer. I can see where some doctors might like doing this kind of work even more as an intellectual challenge than for the money. If they get to pick the question, it may be in part because it is an issue they've been studying up on and are feeling a bit excited about but may not have any patients who need that exact bit of knowledge. Well, I'd like to think some of them feel that way about it.

I thought you had been to a seizure specialist. Huh. How strange that no one has referred you to one when your seizures are such a significant problem.

Jakey Hound

Apparently on-line counselling is getting pretty popular these dayz.

Can you ask the on-line Doctor "what is that rash on my leg?" Would they actually look at it using a webcam?

One Sick Mother


Mystic Meg does the horoscopes on one (or several) of the UK papers and she has been around for centuries (feels like). She was scary 30 years ago, and has only gotten moreso since. Not that the lighting helped any, either.

I hadn't thought about the intellectual challenge part of it, but it is an interesting thought.

I have been to two seizure specialists. Neither helped me, although one tried. I was advised in the ER once that if I wanted help outside of the influence of those two, I should travel outside of this area.

Jakey: Yes I have seen some TV segments about it, but more doctor-doctor consultations on difficult cases. I have not seem much about straight doctortution.

I don't know if I could ask the "rash on the leg" question. It's an interesting one, but I'm not willing to part with any more cash to find out.

...and anyway. I don't have a rash!



"Doctortutes" cracks me up. I thought of another example of them--and that's those who prescribe the behavioral modification for pain/fibromyalgia programs that aren't backed up with studies/info about specific outcomes. Someone I know was recommended to a 3-week, 40 hour a week program. Now that's a lot of money, and who's really going to benefit from that? When the 3-week program ends, she'll feel much better for a bit after pushing herself that hard. But I think the longer-term benefits are for other people, whether or not they see it that way. Medicine is a business.

I once contacted one on a message board--the doctors were paid to write articles and such for a major website but also answered questions. Now this was free and not pay. She sent me in the right direction for a problem that my current doctor and midwife wouldn't help with (unending postpartum bleeding at 12 weeks, with hemorrhage and ER visits)--I later found out there was a huge upheaval in my dr's. practice then, and everyone except the newcomer to that practice left shortly after. It was inexcusable for my reg. practitioners not to get the basic bloodwork/sono needed, and I changed doctors and got the help I needed. I've been with the new one almost 10 years. So these web doctors can help.

Like you, I would be wary of paying for advice but for someone reaching the end of their leash with a complex problem, it's very little money/risk and some good might come out of it. Sometimes it really does help to have someone fresh, open-minded re-examine a problem.

Some people have dysautonomia after meals; dysautonomia can cause seizures. Not necessarily connected, but it's always worth throwing out ideas when there are complex medical issues.

And yes, they should do an MRI with you; even if a diagnosis on that basis alone isn't likely, they can definitely exclude some possibilities rather than leaving them open.


Very interesting and a very clever post.

I have an e-consult offer buried in my blog. Don't want to be thought of as a 'tute', but your analogy works for the the pop-up kind - esp since it crashed your computer. When you go look for it...well, looks like you got what you paid for, eh?

Zoe Ashcraft

HEy girlie! zoe here, you know, I wonder if our seizures aren't somewhat the same- ? I tend to feel one coming on if I eat much in the way of carbs- (POTS specialist confirmed this is a norm)

also- I have one whenever my bp is taken- (that's a real nono now)
in hot showers, or baths
after exertion,
if I massage my cartoid arteries, or my Temporal/Shpenoid bone areas-
-- and I come right out of them when I am given oxygen. (that haS to be a no-brainer, right?)

I'm leaning towards it being the Dysautonomia/some kind of Syncope - which I thought was the LEAST serious of my collection of conditions - ha! (I love your writing and it's been waY too long since I've visited you and your blogginess!:)

Love you,

LR :)

This may be a largely grasping for clouds here, but I've been looking into vitamin K since it plays a role in connective tissue and calcium. That's the short version. I'm not going to supplement, but eat more vitamin K foods for awhile. Vitamin K controls calcifications of arteries and connective tissues. Damage to mitochondria occurs from excessively high intracellular calcium. I've read this before, but as I'm learning more about connective tissue and vitamin K, it has garnered my attention now since our soft skin and very bendy joints at my house (and hence joint deterioration) seems to be a problem. I'll let you know if a trial run of upping our vitamin K greens makes any difference here. (Not in a "cure" way, but a relief way.)


Interesting and tantalizing. I have hoped that medicine was a science instead of (as you point out in the next post) - an ego game where anything any OTHER doctor says is immediately thrown out.

To get an objective opinion and assistance for money is sort of the reason people GO to doctors isn't it. Why is it then that there seems to be better doctoring and more direct, scientific approaches when the doctor and the patient aren't actually connected.

I share your frustration - as finally, after years, doctors here get a BONUS if they take on someone with a chronic condition (incentives to take on those annoying people know...medical problems, like you and I - and I thought the kind of people doctors trained to treat - how wrong I was. Does medical school divide the classes into 'those you want to treat: boils, colds, and easy answers' and 'Stuff you should know a bit about in order to avoid getting sued' coupled with the course 'how to quickly dump the patient who might require you to do reading or research since your graduation 10-15 years ago.'

Me, cynical, not when I found that the waiting time NOW for a MRI appointment is earliest, April, 2011 - yup 14 months.


Thank you for being brave and doing this for me. If I knew about it when I was going through a battery of testing and acting as a hologram for an episode of "House", I would have jumped on it.

In fact, I did do this for my Volvo V70, which seemed worth the investment. FWIW, that only cost me $35. And they hit the nail on the head, unlike doctors who tend to theorize.

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