One Sick Mother

Where Was I? ...Oh Yes: #30

So, in my unrelenting quest to find a diagnosis and treatment for my disabling medical condition, I took myself off to see doctor #30 last Wednesday.  This guy is a metabolic endocrinologist and works mainly in pediatrics. I found him through a buddy of Joe's, interestingly enough (long story). I had called  #30's office, hoping to see him, or at least to get a recommendation for an adult version of him -if you know what I mean (because he is an adult, obviously).  I mentioned before that he had called and after a long conversation, agreed to take my case.  Hurray!  Most doctors who see me coming start crying for their Mommy.

So I packed the kids off to school and undertook the 2 hour walking-and-public-transport commute to the hospital where #30 practices, which is big and internationally recognized. And far away.

What with public transport, hospital red tape and my appalling sense of direction, I was an hour late. #30 is a very kindly mature gentleman and he agreed to see me anyway. He spent a lot of time with me. He had copies of all the stuff I had faxed to him, but no printouts of the documents I had e-mailed. Now, I usually bring copies of all correspondence, but my printer had chosen that morning to run out of ink, and had crapped out right before the most important document: the one depicting the timeline and sequence of events leading up to my first fit (ugh).

Nonetheless, #30 took a detailed history, although he concentrated more on stuff before I was sick than when I was sick -we kept getting sidetracked and I had a few minor seizures, which didn't help with anyone's concentration. So with the afternoon well advanced and no-one fed, he finally sat back and told me what he thought.

"I think you have a variant of Chronic Fatigue Syndrome.."

(whaa...?)

"...and none of the treatments for it work..."  (I nodded, speechless. It is known there is nothing you can do for CFS) 

"...except ours..."

He went on to explain that there are some variants of CFS that present with right-sided weakness, facial droop, seizures and pretty much all of the symptoms I had presented with (except the drug reactions). He invited me to Google it.

I did, of course and I found this piece, which is excerpted below. I have bolded the part that I think pertains to my symptoms:

Research on subgroups of CFS is underway, but is still in very early stages. To date, however, clinical experience and limited data suggest that subgroups of CFS may include the following:

• Post-ADD CFS: Young adults who had attention-deficit disorder as children, who have flipped from hyperactivity to fatigue. Such patients have severe hypersomnolence (sleeping too much, sleeping any time or anywhere). Such patients respond well to psychostimulants.
• Neurological CFS: Patients have more severe cognitive symptoms than patients in the other groups, including trouble thinking, remembering, and paying attention. While cognitive difficulties affect the vast majority of patients with CFS, this group experiences significantly more severe symptoms. Visual-spatial problems are common as are sensitivities to light and noise. Other symptoms in this group include seizure-like episodes and other abnormalities suggestive of temporal lobe seizures. Patients in this group tend to have severe sleep problems in which they never achieve stages 3 or 4 of the sleep cycle, awaken unrefreshed, and respond well to sleep-improving drugs.
• Post-viral CFS versus gradual-onset CFS: According to some experts, an estimated 70% of patients are healthy until a particular illness strikes at a definite time. In gradual-onset patients, however, symptoms develop gradually, and patients are unable to recall any specific viral or infectious illness that initiated the process.

Further delving into my medical records, which I had brought with me, uncovered some unusually high titers for Epstein Barr (AKA infectious mononeucleosis AKA Glandular fever), which #26 had uncovered almost two years ago (but done nothing). #30 said that many people with CFS have antibody profiles that look like mine.

Then #30 went on to explain that their treatment for CFS is a structured regimen of exercise therapy and nutritional support, which would have to be undertaken diligently for several weeks before any results would start to show.

Now I have no problem starting a monitored exercise program. I would love to lose a bit of weight and my response to exercise has been a bit ...um ...unpredictable in the past. I was fired from Physical Therapy for having too many seizures in their office.  But I asked the Big Question anyway (already knowing the answer):

"Could I do this program near my home, or does it have to be in the hospital?"

"It has to be here, in the hospital"

Fuck. I was afraid he would say that.

Here is my problem: Himself and myself are (legal) immigrants with two special-needs kids. We have no family or close friends nearby who can help us. The hospital is two hours away, only accessible via public transport and there is no-one who can accompany me on these trips. Therefore, if I go to the hospital, do my thing and then have a massive seizure on the NYC subway going home (or there!), I am basically screwed. -An epileptic lady I once struck up a conversation with on the subway said that if you have a fit on the subway, they call 911 on on your mobile phone and then take off with all your jewelry and belongings. At least they call 911!

Even supposing I don't have a fit: Grace gets on her bus at 9am and Joe gets off his bus at 3:10pm:

Allow an optimistic two hours to get to the hospital: 11:am

Allow 40 minutes for hanging around, getting registered and prepared etc: 11:40am

Allow 40 minutes to do the exercise program: 12:20 am

One hour (at least) cool-down and monitoring: 1:20pm

Two hours to get home and discover a hysterical Joe on the doorstep: 3:20pm

...and all this is assuming no problems or delays. There is no way I can do it.

Himself has been good about working from home on days when I have to schlep into the city for a doctor's appointment, but he can't do it three days a week for three months. And there is the other question:  What if I am in the hospital, and I get a call from the school, that Grace has dislocated a hip, or Joe has had a meltdown?  I will be two hours away and Himself -if he is at work- will be over an hour away in a different direction. There is on-one locally who would be able to deal with either of them under those or similar conditions.

That won't do.

In a way, I am stressing out prematurely about this. I had seven or eight vials of blood taken yesterday for #30 to review. Maybe he will find something not indicative of CFS therein and will change his treatment plan?

I guess we will wait and see....

Another Day, Another Doctor

I am going to visit a new doctor today. This will be #30 as counted in this blog (but #32 actually, as I left out two in the initial count).

This guy -so far- seems a little bit different: First of all, he called me before the initial appointment, asked many questions about my condition and spoke to me at length. He asked me to send him copies of bloodwork and other tests for review before the appointment.

...and  then  ...THEN he said he thought he might be able to figure out the problem.

WOW!

Most doctors just look at me -like I'm mental (although maybe he was doing that -hard to tell over the phone) and tell me to see ...someone else (doesn't matter who. ANYONE but them!)

But this guy... He said he had some ideas. 

I kinda wish he hadn't said that.

Because now my old stalker: Hope, has been all over me like a rash.

Maybe this guy will be the one to make Hope finally go away?

Or maybe he will have the answer?

I feel right now this guy is my last shot. I know that probably isn't logical, but feelings seldom are.

I will let you know...

More Bus Drama

My regular readers may recall that last year, I had to petition the school district to make a new school bus stop nearer to my home. This is because my children and I all have Ehlers-Danlos Syndrome, and I was afraid that the walk to the old bus stop, which involved walking on a street without a sidewalk and crossing two streets, might be dangerous in icy weather. If you have EDS and you slip on ice, there is a very good chance you will dislocate at least one joint (and not be able to get off the ground unassisted).

So last year, I had a series of battles with the district and the doctor's office to get it all sorted out. You can read about (most of) that here and here.

Last week, around Wednesday or Thursday, I realized that I had not received the little yellow cards that tells me the bus route details. I was pretty sure Grace's would be the same as last year, but Joe starts middle school this year and the times/routes are definitely different.

So I called the district to find out the routes.  "Your daughter is being picked up at 8:56 am at the New Stop (i.e. right by the house).  Your son will be picked up at 7:38am at the Old Stop (i.e. up the street, in Potential Dislocation Land)"

"Um... why are the stops different for both kids when I provided medical documentation last year for them both, stating that they needed to be picked up closer to home?"

"No. the documentation you provided was only for your daughter."

"No. I'm, pretty sure it was for both (but could I find my copy of the letter right then?  No.)"

"Well, you'll need a doctor's letter for your son.  ...you need one every year anyway because medical conditions change" -This made no sense because they had accepted last year's letter for Grace, but I kept my mouth shut on that point. Instead I said.

"This is genetic. It won't change. He was born with it; he'll die with it. But OK. I'll get a doctor's letter."

I hung up.

"I will die with what, Mom?"  (Oops! I hadn't realized that Joe was right behind me!)

"Ehlers-Danlos Syndrome."

"Oh. OK"

The phone rang a few minutes later. It was the district. They had found the original doctor's letter, and I was right: both children were mentioned by name therein. They would change Joe's stop to pick up at the same location as Grace's. I have to say, of all the offices I deal with in the District, Transportation are probably the nicest.

Unfortunately, the bus company is a whole 'nother story.

So day one of Middle school: Joe and I were out at 7:30. I wasn't sure if the new stop would pick up before or after the 7:38 stop down the street, so we went out early in case it was before (Joe, bless his little heart, had been all prepared: packed, washed, brushed and shined since about 7:10).

We saw the bus arrive at middle of the street and then turn down our street, away from our house, stop for a microsecond at the 7:38 pickup point and then take off in the wrong direction, away from us. OK maybe that was a different route. We waited just in case.

It wasn't a different route.

At 7:45am, with Joe wigging out about being late on his first day of middle school, which would -in his mind- start some kind of chain reaction to Armageddon; I loaded both kids in the car (poor Grace had been hauled out of bed early and asked to get dressed -just in case)  and dropped Joe off on time.

That afternoon, I waited for Joe's bus, which is about an hour ahead of Grace's. No bus went by my house.  I called the bus company. 

"My son isn't home yet. School finished a hour ago and I'm worried"

The lady was breezily unconcerned. "Oh the second wave of buses is just leaving his school now. He is probably on the second wave."

She clearly doesn't know anyone with Asperger's Syndrome. NO WAY was Joe on the second wave! I tried to explain this to her, but she blew me off as an overanxious mom.

Fuck YEAH I was overanxious! My kid was MISSING!

I started going through the elementary school phone book, trying to think of other people who would be on the same route and would have Middle school-age kids to see if these people had received their kids home OK. But the only person I found wasn't picking up.  I was about to call the district when the door opened and Joe walked in, out of breath and sweating.

I turns out, he had been on the first wave bus (of course) and when the bus had breezed by our stop, he had stayed on, thinking maybe it would go around the block or something. It hadn't, and as he got farther and farther from our house, he realized they bus wasn't going to stop for him. So not knowing what to do (although I have pounded "tell an adult" into his brain -apparently pointlessly -since he could vocalize),  he got off several blocks from our home and he ran back to our house, afraid that he was somehow in trouble for the bus's failure to stop.

*sigh*. That kids takes too much responsibility on himself. Apparently this is common with Autistic Spectrum kids.

So I called the district, thinking maybe they hadn't sent the paperwork to the bus company. They had. The lady said. "I even put 'medical' next to it in big letters, so they would know".  I believe her.

So I figure the afternoon bus driver can't or won't read.

You know, I just wish these drivers and administrators really understood the impact this sort of nonsense has on special needs kids. It may be a line on a list or a simple clerical error to them, but to the kid, the perception is (rightly or wrongly) that it is HUGE and potentially life changing. 

And somehow all their own fault.

Or their mother's fault.

Or both.

Joe spent quite some time stressing about the bus situation last night. I reassured him as best I could and told him that I would work with the district and the bus company to fix things, but like last year, it might take a few days to get it right (and don't get me started on substitute drivers, but I didn't go there). Joe got it -probably better than most kids would. "you shouldn't have to do that, Mom"
"Yes I should. It's my job. And if I have to stay on the phone all day to fix this, I will."

I really hoped today would be better than yesterday. As I made his lunch at 7am this morning, I wished and hoped that it would be.

We went out again at 7:30; waited, and again, we watched the bus come to the middle of the street, then turn away from our house. This time I was ready with my trusty phone in hand. I called the bus company, while frantically motioning for Joe to NOT run down the street, to chase a rapidly diminishing bus.  The bus company put me on hold for several minutes. Then they told me "a bus will be there in a couple of minutes to pick him up." Not YOUR bus:  A bus.  So they had screwed up. Again.

Well, but this time it was past Joe's 7:45 cutoff for having a meltdown. I hung up and he was pacing and flapping, all the time talking about fish:

"...so you had the fish and you just didn't reel it in. And in the meantime, I am starving and Grace is starving and you just won't reel that fish in..."

"What do you mean, Joe"

"it's an expression."

"I get that, but I don't understand the expression. What's the fish? Is the bus the fish?"

"Yes. ...No. I don't know.... Look, it's just an EXPRESSION!"

Joe understands about expressions and figures of speech. For years I have been telling him to 'keep his hair on", to "hold his horses" and that he is "on thin ice".  He understands this stuff a lot better than many Auties/Aspies his age.  But this making up of expressions is new to me and this particular autistic expression of speech is completely opaque to me; -to both of us, apparently. Maybe

he knows what he means somewhere in his brain. But I think he just got several metaphors mixed and I somehow ended up being the bad guy with a fishing rod and starving children.

And he managed to make it sound like that had been my sole ambition in life.

Eventually, an empty school bus arrived and stopped on the main road at the side of our house. I asked the driver: "Is this the spot where you will normally stop? Because the elementary school bus usually pulls around the corner out of the traffic?" The driver shrugged.

I don't know. I'm just filling in for the regular guy, who missed this stop." (Oh well, at least he was honest).

I walked back into the house at 8am, mentally exhausted.

I am now wondering what will happen this afternoon?  Where will Joe end up?

And I am also seriously considering the statement he made last night. "If I had a cellphone, I could have called you when the bus didn't stop. Maybe I need a cellphone, Mom"

Maybe he does.

I wonder if I could charge the cost to the useless bus company?

Why I Care

As most people who have read this site for more than three seconds will know, I have directed a lot of my time and energy to tracking down and outing scammers.  My ultimate goal is to shut these guys down, which is proving a lot more difficult than it should.

Why is it so hard?

Multiple reasons. For one, the Internet isn't a place. So who has jurisdiction on the Internet?

No-one.

Different countries have jurisdiction over their own "bit" of the Internet (and their own rules regarding it). There is some international co-operation regarding Internet use for very serious stuff, such as child pornography rings or human / human organ trafficking.  However, something as relatively "minor" as healthcare scams is way down the list of priorities for these guys.

So we look at the local enforcers.  Let's imagine a hypothetical situation:

Say you live in New Jersey and buy a product from a company that claims to be based in Norway. The product never arrives or doesn't work. Who do you contact?  The company. If they don't respond, to whom do you then turn? The FDA?  They won't get you your money back and they don't regulate supplements. Also, the company was based in Norway, right?  So the FDA will probably tell you to contact whoever in Norway regulates these guys.

Buy you don't happen speak or write Norwegian.

Nonetheless, you persevere and contact the Norwegian peeps, who do have English speakers on hand. They do a pretty rudimentary investigation on your missing $90, which is small potatoes to them, tell you that no such company as Oslo Health Solutions is registered in Norway, regardless what the internet says. But a search they did on the domain registration points to a US Domain site. You need to contact the US authorities.

You contact the US authorities with the domain information you got from the Norwegian folks. The US people check and they say the the US domain registration is a holding site, masking the real domain (many registration sites will offer this service). However, because the company who scammed you is based in Norway (or maybe Pakistan, from whence the dodgy product arrived), but not in the US, they have no grounds on which to investigate the real domain information. You need to go back to the Norwegians.

So you contact the Norwegians (again) and they insist that the domain company is a US one, and they have no jurisdiction. You need to contact the US authorities.

And so you are stuck.  You just went in a great big circle to end up precisely nowhere. For someone with a chronic health condition, this is probably familiar territory after dealing with the medical world.  But "familiar" does not mean "good".

So to whom do you turn?  Your credit card company. They are global too, and they will fight to get you back your money.

And so you eventually get back your money and you go on your way. 

However, no complaint has been registered that stuck, so the scammers are free to defraud indefinitely. 

But OSM. I hear you say  The imaginary person got their money back. So why do you care about all of this?

I care because the primary issue here isn't about the money. It's about the exploitation and mistreatment of sick people.

I care because people have their hopes raised (and you know how I feel about hope) and then dashed by callous predatory subhumans.

I care because if I don't care, and don't try to do something, it won't stop. More and more people will have their hopes raised and dashed.

I care because someone is profiting from their pain and desperation.

I care because the longer I do this, the less these medical conditions are lists of unpronounceable words, and the more they are associated with real people with real lives and families. Like:

• My friend, whose son has Muscular Dystrophy
• My stepmother, who has Rheumatoid Arthritis
• Stephen Deal, who also has MD
• Elizabeth, who has MSA
• Blake, who has SMA
• Janice who suffers very badly with Syringomyelia
• My friend Betsy who had Pseudotumor Cerebri
• The woman from whom we bought this house, who had Parkinson's Disease
• My friend's ex, who had Bell's Palsy
• Another friend's child, who was born with severe Cerebral Palsy and requires 24/7 care
• Another friend who has alopcea, which has impacted his self-esteem for years
• My great-aunt Nora, who went blind from Glaucoma

...and then all the people who have contacted me because they were scammed or almost scammed:

• A lady  in England with painful ganglion
• A man whose girlfriend has been blinded by Retinitis Pigmentosa
• A woman in Australia who has Melasma
• A man in Europe whose girlfriend has narcolepsy, and who has bad side effects from the conventional drugs used to treat it
• A man with Myasthenia Gravis in the States
• a very nice person -not sure wherefrom, who e-mailed me to ask me if I had any information on Scleroderma treatment, as the one product which had seemed to show promise had been outed as a scam by me.

There are many, many more.

So to me now, when I see these scams operating, I don't see words on a screen. I see my stepmother's hands, Or Elizabeth's vivid imagery. I see my friend pushing her son in a wheelchair, turning away from the Memorial Day parade because she cannot look at so many able-bodied kids parading down the main drag, while hers is the only one in town in a wheelchair.

I see evil, money-grubbing, bastards preying on and playing with my friends.

Behind these long disease names and behind every one of the links, there are real people with real challenges, who have to face each day and carry on. I care about that. I care about them, which is why I won't rest until the scammers are shut down,

The really sad thing is this: 

I seem to be the only one who cares this much.

Those Little Things We Say....

My sister had five children in as many years. So for several years,  her house was like some kind of cross between a daycare, a zoo, and an asylum. For most of these years, I lived in a different country so my main communication with her was over the phone.

So there we would be on the phone, chatting normally, when suddenly I would be deafened as my sis would break up a fight or something. Here is an example of what our phone conversations were like for several years.

Sis "...well, there he was, standing all alone, so I wen... GET OFF HIS HEAD!!!  YOU'LL HURT HIM(?)  GET OFF HIS HEAD NOW!!!  ...t over to him and sai...  LET GO OF HIS TAIL!!! NOW! HE'LL BITE YOU!!!  LET GO!!  RIGHT NOW!!! ...d "are you lost, luvvy?  Do you need me to help you find your mum?"

Yes. I was lost. And somewhat deaf in one ear.

I thought, after listening to my sis for years, that I was somewhat prepared for the kinds of things you say when you have kids. I also made sure I had a cordless phone and many handsets, which definitely cuts down on the yelling aspect (In fairness: my sis didn't actually yell that much normally, but while on the phone back then, she was tied to one location).

Today, as I found myself calmly telling Grace "don't suck the cat's blood" I realized that yes, there are definitely some phrases that pop out of my mouth; some combinations of words that I NEVER thought I would say in that order, and it makes me shake my head. Or smile. Usually both.  And sometimes the things I say make me wonder if I have been transported into some kind of bizarro world, or am somehow the star of my very own "Truman show"?  The "cat's blood" thing was totally innocuous, BTW. They were playing a vampire game, and poor George had been designated a 'victim'.

Now, I had expected some strange expressions to come out of my mouth. Here are a few I had expected (and got):

• We don't bring worms/ bugs/ snails/ dead birds into the house"
• We don't run out into traffic
• We don't threaten to kill our sister/brother.
• We don't pick the neighbour's flowers, not even as a gift for Mom.
• We don't go visiting the neighbours without permission (Grace)
• No. You may not drive the car
• See! I TOLD you Teddy can't go in the bath!
• This is what happens when you don't put your gum in the trash!

...and then some things I NEVER thought I would ever hear myself say; especially not in the calm, matter-of-fact voice I perfected about a year or so after Joe's special needs became apparent.

• We don't growl at friends/ strangers/ anybody
• We don't attack other kid's moms (/dads) in the zoo  ...Or anywhere, for that matter.
• We keep our clothes and shoes on in the restaurant, please
• We don't sniff the pizza delivery guy
• We don't tunnel behind the boxes on the supermarket shelf  (I distinctly remember wondering where Joe was, and then when looking down the aisle, I watched a progression of cereal boxes fall off the shelf, one after another, away from me, allowing me to track his progress down the back of the shelf. He was pretty fast! There was a long line of boxes by the time I got to him.)
• Do you always pick on disabled four-year olds? Or have you waited your whole life to meet your intellectual equal? (this to a man in K-mart, who was being mean to Joe.  ...and that one wasn't said in a calm voice!)
• Please don't sniff the food you are given in Kyle's house. His mom's feeling might be hurt.
• What show is that from? (this in response to a clearly echolalic utterance) 
• You need to tell people who you are when you call them on the regular phone. it's not like Skype.  They can't see you.
• No sweetheart. Zombies won't get into the house while we are sleeping. The alarm is set.
• I know the guy was fat, but you can't say that to his face.  You have to use other words, like 'big" ... better yet: Don't mention it at all...

...and there are a few non-parenting-related  phrases I never thought I would hear myself utter, either.

• "Don't call 911. It's only been 40 minutes" (since the seizure began) Don't try that one at home, kids.
• "I think we can get it back in. Just pull my arm straight out -don't twist, whatever you do.  On my count..."

I'm sure there are many more, but I can hear the kids start to get wild in the background, and I suspect I will have to go and use some of my phrases in a minute.

What about you?  Are there any particular phrases you never thought you would use that stand out in your mind?

Ode To Joe

I wish I had the video to accompany this story, but apparently the kids were supposed to bring in a tape on the day of filming in order to get a copy.  They didn't think to tell me this.  They didn't think I would want a copy. More likely, they didn't want me to have a copy.  Either way, I am stuck, now. Opportunity missed.

*shrug*

Kids.  What are you gonna do?

Backtrack a bit:

Joe and Grace took a course in TV and radio at summer school this year.  I was a little concerned about them being in the same class, that they might cling to each other and wouldn't mingle with the other kids or conversely, that they would fight (or both!). I instructed them to stay separate and be individuals.

In hindsight, maybe this was a mistake.

Most of the work involved in making little commercials or movies is team work.  Joe doesn't do well with people he doesn't know well, and some of the kids tried to take advantage of him ("Mom, I would rather be back in elementary school and bullied by M than in Summer school being bullied by K. At least I'm used to M."). 

He struggled with each project.

By the time they got to the last project, a music video, Joe was on his own. No-one volunteered to work with him, and he didn't know how to ask to be included in any group. How do you make a music video with just one person? (I was oblivious while all this was going on BTW. Neither kid told me. What happens in Summer School stays in Summer School, apparently. I found all this out after the fact.).

So Joe come home from school.  "Mom?  Can you put the 'OIde to Joy' on my iPod?"  All the other kids were singing or dancing, and he decided -all on his own- that his video was going to be just him conducting the "Ode to Joy" to camera. I thought it was an excellent idea.

We watched some You tube footage of conductors, starting with Rowan Atkinson's "The Conductor" (did you ever notice that Rowan Atkinson is hypermobile?), I thought he could play it for laughs (Joe is naurally quite funny), but Joe decided that he was going to play it straight and I respected that.

He went in on the day they shot the music videos, all dressed up in the suit that we had bought (but he hadn't worn), for elementary school graduation, and despite dropping his baton (a chopstick) once during the shoot, he stuck with it and did it. 

I went in today for parent's day, and  saw all the films the kids had made, and -although I know I am biased, I thought his conductor music video was the most memorable one there. 

I'm well proud of him.

Towards Natural Health: Scam

Do you know where the expression "Let the cat out of the bag" came from? 

Well, it came from the practice in Old England of selling piglets in a bag (i.e. "a pig in a poke") at the market or fair. Sometimes, people would buy a piglet only to find when they got home that the wriggling animal inside the bag was actually a worthless cat. So if you were wise, you would open the bag before you hand over any money and  "let the cat out of the bag". That is, you would reveal the scam.

Many pig sellers would leave the pig's tail sticking out of the bag, so you would know it was a piglet and not a cat. However, in a less well-known variation on the old scam, some unscrupulous bastards would cut off the piglets' tails and tie them onto bags, which each contained a cat.

So there was a 'level II' on the pig scam, if you like.

I see Towards Natural Health as a Level II internet scam.  They went through all the trouble to cut the tails off the poor piggies. But it is still a freaking scam; albeit a much prettier one than some the previous scams uncovered here on OSM.  And  keeping in a porcine vein, the expression "putting lipstick on a pig" very much comes to mind here.

Here is an example of one of their sites:

 

 

Wait a sec: To get the full impact you have to load it. Click here and come right back

It's really gorgeous lipstick,  isn't it?  The zooming graphics, the spinning-around globe thingy, the leaves, the starry things, the slick "shick" sound when you roll over a menu item, the persuasive language (although I am never sure what might "suite" me best.  A bathroom installed on my ass, perhaps...?), all the links that they post... 

But look at those links again. Notice they are all general. There are never specific links to the actual condition for which you seek relief. The links are the pig's tail.

Don't be fooled: It's a scam.  They try to cover their asses  by saying things like "This particular website is aimed at helping Motor Neuron Disease patients..."  I guess if you happen to come across the exact same site for ...say Grave's Disease, or one of the 62 or so other sites that I have found (so far), they think their asses are covered.  

Now, unlike SPAH, or Herbal Product Reviews, which are identical scams to this one; Towards Natural Health even has a main site, that goes on about their humanitarian mission to save the world or some such hogwash.

But it is all bullshit. A total and complete scam.  A con. A fraud. Please don't waste your time and money on these guys or on any of the products that they recommend.

Here's how I know they are a fraud:

First off,  all of the products that they recommend are either by Solutions by Nature, Gordon's  Herbal Research Center or Healing Plants, Ltd.  ALL of which have been outed here on OSM as scams.

Often, Towards Natural Health (TNH) will recommend the Solutions by Nature Product.  Hmmm.  I wonder why? 

Well, Here is TNH's address, taken from their main site. It is also the address to which all their  domains are registered (the ones I checked, anyway). PO Box 2175, Paleagade 7, DK-1231, KBH K, Denmark

Here is Solutions by Nature's Address:

 

PO Box 2175, Paleagade 7, DK-1231, KBH K, Denmark

I included both screen grabs so you can see for yourself that they are exactly the same, with no sleight of hand by this Sick Mother. 

 

Towards Natural solutions does list a different address on some of their sites.

Does that address: 115 Abercorn St, M0013, Paisley, PA3 4AT, Scotland; look familiar to you?  

It should.

It is the exact same one as is listed on the domain registration for Herbal  Product Reviews,  which OSM has previously outed as a scam.

 Don't listen to a word that tortoise says.

He is a lying wee bastard. 

And he wants to trample your ice cream, apparently.

Now some of you; -the more trusting among you- may be thinking "It can't possibly be a scam! Why would people go through all this trouble for a scam? "

For the same reason that people would mutilate baby pigs. Because it might make them money. These guys OWN all of these fake herbal sites. There are hundreds of them because they are carpet-bombing the "sick people" market with fake solutions in the hope that some of us will be sick or desperate enough to fall for the ploy. They  are professional con artists. Scamming people it is what they do, and -judging from the number of e-mails I get from people who were scammed or who narrowly escaped because of this site; -they are pretty good at it.

And maybe there is another reason:

Maybe they like it.

Maybe they have such disdain for people with illness and disabilities, that they get some kind of kick out of messing with our heads and our wallets.

And that is really sick.  

 

Help though creating awareness?  Yes. It's what I plan to do. Thanks for the tagline.  It works far better when applied to One Sick Mother than when applied to Towards Natural Health.

Here is the list of TNH scam sites that I have found (updated Sept 6th 2009):

Abdominal Adhesions	http://www.adhesionshelp.org
Achlasia	http://www.achalasiahelp.org
Actinic Keratosis	http://www.actinickeratosishelp.org
Alopecia	http://www.alopeciahelp.org
Atrial Fibrillatin	http://www.fibrillationhelp.org
Bell's palsy	http://www.palsyhelp.org
Benign essential tremor	http://www.tremorhelp.org
Blepharitis	http://www.blepharitishelp.org
Bronchiectasis	http://www.bronchiectasishelp.org
Bullous pemphigoid	http://www.pemphigoidhelp.org
Burning mouth syndrome	http://www.bmshelp.org
Cellulitis	http://www.cellulitishelp.org
Costochrondritis	http://www.costochondritishelp.org
Delayed Ejaculation	http://www.delayedejaculationhelp.org
Emphysema	http://www.emphysemahelp.org
Epididymitis	http://www.epididymitishelp.org
Eye Bags	http://www.eyebagshelp.org
Flatulence	http://www.flatulence-help.org
Folliculitis	http://www.folliculitishelp.org
Ganglion cyst	http://www.ganglionhelp.org
Gastroparesis	http://www.gastroparesishelp.org
Granuloma annulare	http://www.garanulomahelp.org
Grave's disease	http://www.graveshelp.org
Grover's Disease	http://www.grovershelp.org
Guillain-Barre Syndrome	http://www.gbshelp.org
Hand tremors	http://www.handtremorshelp.org
Hernias	http://www.herniashelp.org
Hidradenitis Suppurativa	http://www.hidradenitishelp.org
Hydrocele	http://www.hydrocelehelp.org
Hyperhidrosis	http://www.hyperhidrosishelp.org
Ichthyosis	http://www.ichthyosishelp.org
Inclusion body myositis (IBM)	http://www.myositishelp.org
Keloids	http://www.keloidshelp.org
Keratosis  Pilaris	http://www.keratosishelp.org
Lichen Planus	http://www.lichenplanushelp.org
Lipoma	http://www.lipomahelp.org
Melasma	http://www.melasmahelp.org
Motor Neuron Disease	http://www.mndhelp.org
Myasthenia Gravis	http://www.myastheniahelp.org
Myelitis	http://www.myelitishelp.org
Narcolepsy	http://www.narcolepsyhelp.org
Osteomyelitis	http://www.osteomyelitishelp.org
Pemphigus	http://www.pemphigushelp.org
Peripheral Neuropathy	http://www.neuropathy-help.org
Peyronie's Disease	http://www.peyronieshelp.org
Polycystic Kidney Disease	http://www.pkdhelp.org
Polycythemia Vera	http://www.polycythemiahelp.org
Polymyalgia rheumatica (PMR)	http://www.polymyalgiahelp.org
Porphyria (All 6 kinds?)	http://www.porphyriahelp.org
Post-Polio Syndrome	http://www.postpoliohelp.org
Premature Gray Hair	http://www.grayhairhelp.org
Prickly heat	http://www.pricklyheathelp.org
Rectal prolapse	http://www.rectalprolapsehelp.org
Retinal Vein Occlusion	http://www.rvohelp.org
Retinitis Pigmentosa	http://www.retinitispigmentosahelp.org
Scleroderma	http://www.sclerodermahelp.org
Sebaceous Cyst	http://www.cysthelp.org
Seborrheic Keratosis	http://www.seborrheickeratosishelp.org
Sjogrens Syndrome	http://www.sjorgenshelp.org
Tinea Versicolor	http://www.tineahelp.org
Trigenimenal Neuralgia	http://www.trigeminalneuralgiahelp.org
Urethritis	http://www.urethritishelp.org
Uveitis	http://www.uveitishelp.org
Vocal Cord Nodules	http://www.vcnhelp.org
Waldenstrom's Macroglobulinemia	http://www.wmghelp.org

 

NOTE: While compiling this list, I realized that there are many More Solutions By Nature sites than I had  found previously. I will update that page when I get a chance. Really, there is too much out here for a single person to track  (I bet that is a large part of the plan)

Herbal Product Reviews: Scam

Much as I hate doing all the research and the drudgework that is involved in researching and documenting all the scam sites that I have been outing recently, I find it hard NOT to do it. I take a break for a day or to, decide to write about me  (Hello?  The blog is not called One Scam Outer) and then I start to wonder what other scams are out there that I have missed?  How many other people, just looking for relief for themselves or their loved ones are being tricked out of their money, which could doubtless go to better uses?  And these thoughts niggle at me. Unrelentingly. So last night, I sat myself down and decided to go searching for more scams. 

I decided to search for remedies for Peyronie's Disease. Now, I had no idea what Peyronie's disease entails. I just know that it seems to be covered on all of the scam sites and -unlike ...say, "Myasthenia Gravis"- I can spell it consistently without having to look it up.

Imagine my surprise while researching, I was suddenly presented with a picture of three erect penises, all in a row.  You don't usually get that when researching scams. Way-hey! thought I: Porn!  this thought was instantly followed by Shit!  Are the blinds down?  ...because my large-screen monitor directly faces a downstairs window (I don't want the neighbours to think that I surf porn. I mean, even if I do, I don't want them to think that I do. ...it's a suburban thing).  Then I noticed that it wasn't porn, but a medical site showing some pictures of a Peyronie's sufferer;  Before, During and After treatment. And the penny dropped. Apparently Peyronie's effects the penis.

Who knew?  Apart from an actual sufferer, that is.

...and I have to throw in a confession here:  I must say that I was somewhat intrigued by the Before picture of the bent and twisted willy. Because I couldn't help but wonder if that one might reach places that other willies might miss, you know?  And before you other women say "Ewe!!":  Admit it:  Most of you thought the same thing. I am just the one who will actually put it in writing. 

And then publish it on the Internet...

Then I read a bit more and I realized that Peyronie's can be painful for the man, so nix that idea. ...unless he was Very Naughty (evil laugh).

Anyhoo: back to the point (quick! before I lose me PG13 rating!): There was I, surfing porn the net, searching for scams, when I found this page

This site: with no person or company name, no phone number, no qualifications or references, except for a little story, told in the first person singular about being a ex-sufferer, having been a sufferer for years, and  doing all the research, gone through all the message-boards and quacks and now presenting "objectively" these four products.

If you read the blurb on each of the products (and those of you who regularly read OSM may instantly recognize just from the names that ALL the products named are scams), the language changes to the first person plural:  "I" and "my" suddenly becomes "we" and "our".

Hmmm.

And then there is the cute little tortoise (WTF does a tortoise have to do with Peyronie's ?  ...I mean,  positively speaking?), promising to show you the way through this "dessert".  All's I can say to that guy is keep your reptilian little paws off my key lime pie!

Having found that tortoise,  I figured there were probably more where he came from.

I was right.  All with the identical back-story, all with the same text; -except for the disease /product names and most pushing the "ical" first, then "ton" then "fax" and lastly either the "ex" or "tab" with a minor disclaimer pinned on the latter.  I haven't seen the "tin" products mentioned, but I think that is because they have been outed too many times as fraudulent.

Here is the list of dodgy "Product Peview" sites.

 

Condition	Site
Abdominal Adhesions	abdominaladhesionsproducts.com
Achalasia	achalasiaproducts.com
Actinic Keratosis	actinickeratosisproducts.com
Alopecia	alopecia-products.com
Atrial Fibrillation	atrialfibrillationproducts.com
Bell's Palsy	bellspalsyproducts.com
Bronchiectasis	bronchiectasisproducts.com
Cellulitis	cellulitisproducts.com
Delayed Ejaculation	delayedejaculationproducts.com
Emphysema	emphysema-products.com
Eye Bags	eyebagsproducts.com
Folliculitis	folliculitisproducts.com
Gastroparesis	Gastroparesisproduts.com
Granuloma Annulare	garanulomaproducts.com
Grave's Disease	gravesdiseaseproducts.com
Guillain-Barre Syndrome	gbs-products.com
Hand Tremors	handtremorsproducts.com
Hernias	herniasproducts.com
Hidradenitis	hidradenitissuppurativaproducts.com
Hyperhidrosis	hyperhidrosisproducts.com
Keratosis	keratosisproducts.com
Lipoma	lipomaproducts.com
Melasma	melasmaproducts.com
Motor neuron Disease	mndproducts.com
Narcolepsy	narcolepsyproducts.com
Peyronie's Disease	peyroniesproducts.com
Vocal Cord Nodules	vcnproducts.com
Waldenstrom's Macroglobulinemia	wmg-products.com

 

I checked the registration for some of the sites, and all came back (surprise!) to the same name and address:

   Herbal Reviews
   115 Abercorn Street, M0013
   Paisley, Scotland PA3 4AT
   United Kingdom

I really wish I could find my original notes regarding Syrotab, which were taken in 2006, because I am pretty sure that they were originally run from an address in Paisley (curious to see if it was the same address as noted above), before "moving" to Oslo.  I remember because Himself has a degree in Scottish business law (which I think he used precisely that one time) and I remember grilling him about them at the time.

Of course, I have a strong feeling that the real people behind this site are the same people behind SPAH and I am petty sure behind most of the other "herbal treatment"-themed organized scam sites out there: MAK International, one of whose core product offerings is a comparison shopping engine.

From their site:

Comparison shopping engines is perhaps the most targeted form of advertising possible for a website that intends to sell products. Nearly anyone visiting a comparison shopping engine is looking to purchase something. The way these engines work is by providing a product feed in a standard format as required by the comparison engine. Most engines accept a variety of feed forms like excel sheets, csv files and xml structured information. The standard information required for each product is the product price, a unique product number, product image and a short product description. This information needs to be constantly kept updated and should match exactly what is presented on your website.

 

When a potential customer goes to comaprison shopping site and searches for the product he or she is looking for the products that appear on the top get the highest number of clicks. The way the results are ranked varies from engine to engine. Some engines rank those products higher that pay more for the click, others sort the results by price and some by the relevancy of the product to the search key term. The last approach is particularly applicable to froogle, google's fast growing comparison shopping engine.

So really, their business has little to do with "treatments" and more to do with "clicks".

I sincerely hope that my outing of their scams is not furthering their business...

SPAH: The Medical Scam Clearinghouse

(This is the fifth -but most important- part of a series. Here are part 1, part 2, part 3, part 4)

Let's just imagine that you have devised a few bogus potions -so-called herbal supplements as  "guaranteed treatment" for almost 300 diseases and conditions from dandruff to cancer.  And let's just say that too many people are skeptical or leery so maybe you make some money, but not quite the millions you expected.  And suppose this isn't quite good enough for you?  You still want to sell MORE snakeoil and rake in more dollars from unsuspecting sick people. But finding new diseases to claim to treat/cure is difficult, because eventually, someone twigs and puts out the alert.  How do you one-up yourself in those circumstances, and market your snakeoil to a wider population?

Simple:  You create a bogus 'society', have it do comparisons of your bogus product against one or two other bogus products with a recommendation to always buy your product.  Here's the kicker:  The other bogus products are also owned by you, but sold by a different set of bogus websites.  So the bogus society can recommend any one of them, and you get the cash anyway.

Yes. You create two or three so called 'guaranteed treatments' for the SAME condition, market each one under a different bogus website and then set up a bogus "independent institute" to compare them all against each other, and then to "objectively" recommend one of them!

It's pure genius.   GENIUS!

Because no matter which bogus product the unsuspecting sick person chooses through your bogus "research institute" YOU get the (real) money.  Because let's face it: in this scenario, the only thing that is real is the money people lose.  And maybe they lose real time and real health.  While the owners of the bogus products and websites are laughing all the way to the (real) bank.

It's a rather sickening kind of genius, actually.  Completely Evil Genius, in fact.  I think I have found the Frankenstein's monster of the Internet..

Remember how I said that Oslo health Solutions had over 280 websites registered, but I had only found about 60 of them?  Well, I think  I have found the other 220.  And 295 from another site.  And maybe another few hundred elsewhere. I physically can't count them all!   

So here is how it works: Let's say that I am looking for a cure for Syringomyelia (which is where I started with all this stuff, let's stick with what we know, here). Syringomyelia (SM)  is a potentially devastating and excrutiatingly painful  degenerative condition of the spinal cord.  It is really difficult to treat, and many myths abound, which means that many doctors "don't believe in" the pain of it. So many people with SM have a hard time finding real help. Or they may not have insurance. So say I am in this position and I find this site, run by The Society for the Promotion of Alternative Health (SPAH -and I don't think those particular initials are an accident BTW), claiming to compare three available natural alternatives. 

So we read this, and my options are:

Omiglatex, which is marketed by Botanical Sources (BS). Omiglatex (and all the Botanical Sources products that I have checked) tries to claim a connection with the Mayo Clinic, just because Mayo once said something like plants are a good source of drugs (Duh! Most commercial drugs come from plants!). But other than that, BS makes few direct claims of its own, except for a money back guarantee and 100% natural ingredients. 

Don't take our word for it and use Omiglatex for a few days. You will begin to experience incremental long term changes. If you don't, we pledge to refund you in full, including delivery charges under our full no-questions-asked refund policy. This guarantee is valid for 60 days from the date of purchase allowing enough time for you to experience results with Omiglatex.

That  sounds stunningly familiar, doesnt' it?

I love the ingredients list for Omiglatex, which include our old friend Nux Vomica (better known as Strychnine  or "rat poison" here in the States); Coral calcium; Indian Rennett, a herb which is used to coagulate  ...stuff  and wattle bark, an old Indian herbal remedy for premature ejaculation

What does all this have to do with treating brain fog, constant burning nerve pain, paralysis and incontinence?  Dunno.  I suspect nothing at all.

So I checked out the next option on the list: Syrotab. 

Yes. Our old friend from Oslo Health Solutions.  

Nuff said about that. It's a proven scam...

 

 Maybe the third option will be the charm?  Right?

Mignitin seems to be a little different. 

It is from Berlin Homeo  Products in ...well, Berlin and is a hemopathic treatment for Syringomyelia   "The amazing 100% guaranteed treatment for Syringomyelia that is bound to leave you amazed!"  (It surely will!  You will be amazed that you paid money for this shite!)

 

Ant they have testimonials! 

 "Your organization is very professional and thank you for the continued support. This is the first time I have been introduced to homeopathy. I never thought it would work so well." - Betty - Florida 

"I can't thank you enough" - Mark - NY

"All I can say is amazing! I was about to give up after trying so many products." - Jessie - California

AND they accept PayPal!  Aren't they nice?

I'm sot too sure about the color scheme, or the picture of something that looks like the bastard love child between a feather duster and a lichen.

Mignitin lists its ingredients too.  You know, I have to LOVE these people for their consistency. They may change the colors and pictures around, but they always have almost exactly the same layout and links and very similar wording.

Here are the ingredients

Ingredient Name Dilution

Sepia D3+30C
Aesculus D1+10C
Cimicifug D1+10C
Calc fluor D6+60C
Baryta carb D6+60C
Rhus tox D1+10C
Kali carb D1+100C

Sepia =  cuttlefish ink

Aesculus = california horse-chestnut

Cimicifug... I think this is Cimicifuga Racemosa, which is Black Cohosh and sometimes used to treat menopause and some muscle (not nerve) pain

Calc fluor  = calcium flouride. -Used for "hard, stony glands" and a host of other stuff in the Quack Bible, my favorite being "threatened apoplexy"

Baryta Carb = Baryta Carbonica  "This remedy brings aid to scrofulous children, especially if they are backward mentally and physically, are dwarfish, do not grow and develop, have scrofulous ophthalmia, swollen abdomen, take cold easily, and then Always have swollen tonsils. Persons subject to quinsy... (WTF is quinsy?  Ah.  It is Peritonsillar abscess (PTA).  I prefer quinsy)...

Rhus tox = Rhus toxicodendron AKA poison ivy!

"Mignitin's composition is 100% safe and all its ingredients are purely natural and free from any side effects."

Kali carb  = Kali Carbonicum  and... oh hey!  I love this  I found it on a homeopathic site:  patient can broadly be described as compulsive - rigidly adhering to a code of ethics and rules. It is very difficult for the patient to express feelings and he exercises strong control over his emotions. Duty is one of the most important concepts for the Kali Carbonicum constitutional type. He will not park in a yellow zone. He will always return to a shop to give back change if he was given too much. He sees things in black and white. The patient is often very stoical. He neither complains about (nor notices) the stress he is under until the situation is very severe indeed. Things outside his control are very upsetting.

 That sounds rather like a description of an Aspie to me...

 ...but NOTHING like a Syringomyelia patient (unless its an Aspie with syringomyelia!).

 

So there you have it! Three Syringomyelia remedies, all bogus.

 

Bus OSM, I hear you say,  Maybe it is a co-incidence?  Maybe only the Syringomyelia treatments are bogus. Because I am so desperate for help, I want to believe! Well, I am nothing if not thorough when it comes to this stuff, so I checked out options for a few more conditions.

Leukemia i.e. cancer of the blood -all types apparently treated by one product from each of these companies.

Leukotab - from Oslo Health Solutions

Kemitin - from Berlin Homeo Products (The amazing 100% guaranteed treatment for Leukemia that is bound to leave you amazed!  Yeah. Amazed you're DEAD!)

 

Multiple System Atrophy -a gradual and fatal shutdown of the body's autonomic system. Usually fatal within two years of diagnosis.

Alpharax - from Botanical sources

Atrotab - from Olso Health Solutio...  ...uh-OH!  Typo!  Atrotab is actually (allegedly) for optic atrophy. Atrophtab  is for MSA.  That's a big mistake if you are running a legitimate service, but a simple one if you are running a SCAM!  Those two actually use different formulations, you see. Like that makes a difference!  I'm sure they are both completely bogus.

Porphotin (from Berlin Homeo Products)  -contains Arsenic.  Nice!

 

Parkinson's Disease

Niprotax -from Botanical sources

Parkotab -from Oslo Health Solutions

Parkotin -from Berlin Homeo Products (site currently unavailable)

 

Musclar Dystropy

Dystratax (from Botanical Sources)

MD-tab (from Oslo Health Solutions)

Laritin  from Berlin Homeo Products

 

Do you see the pattern?  A product that end in "x" from Botanical Sources, then a product that ends in "tab" from Oslo Health Solutions, and lastly a product that ends in "tin" from Berlin Homeo products.  The full list of SPAH websites and the diseases for which they claim to present "treatment options" is below. There are 295 of them.

295 x 2 or 3 (we'll call it 2½) = approximately 737 bogus products.  And I thought 60 was a lot!

SPAH claims to have no affiliation with the products mentioned.  Of course they claim that! This is perfectly in keeping with Rule #1 of scams: Lie Big.

I did some searches on Botanical Sources and on Berlin Homeo Products. I couldn't find much about them.  They claim to be based out of Rome and Berlin.

Here is the contact info, which is probably meaningless.

Botanical Sources
Via Canova 24, Suite # NR 320
Roma 00186
Italy

[email protected]

The Berlin Homeo Products (BHP) stuff I know even less about. 

Berlin Homeo Products
Markgrafenstr. 56, Suite 110
Berlin, 10117
Germany
4487102

[email protected]

The websites I checked are registered to Botanical Sources or Berlin Homeo Products as appropriate.  But all of their sites that I have checked look identical for each organization. The BHP sites even have the same picture of the feather duster/ lichen cross, and the exact same testimonials from the same people, regardless of the disease claimed to treat. Did it just happen that 200+ people called "Mark" in NY, 200+ called "Jessie" in CA and 200+ people called Betty in Florida just happened to contact them and say the exact same thing about 200+ different products?

Ummm-hmmm.

 

So then I searched on SPAH.  The websites I checked are owned by MAK-International. Here is their home page. Notice anything?

Yep. You immediately notice that the design is about identical to all the Berlin Homeo Products sites

 ...but hold on second...  That woman looks like... she IS!  It's my old friend: Vacant Biracial woman from most of the Oslo Health Solutions sites!

Not only that, she is right there with her buddies, Mr Serious and Mr Trying to look Sincere (who is still trying to look sincere!).  They are the same people!  Wow!  What a total co-incidence that MAK International, Oslo Health Solutions and Berlin Homeo Products use exactly the same web designers or models.

Incredible. 

Literally.

So who is MAK International?  I can't find any incorporation information, but is seems to be run by two brothers (or cousins) of (I figure) Pakistani descent who were born and educated in Manchester, England (remember my theory that it was probably a couple of young techies?  It appears I was correct).   MAK International is (officially) run out of Pakistan. If I am right, that they are Pakistani- English, they are perfectly positioned to run a scam of this kind. Born in the UK, they would have full EU citizen status, able to travel or open offices anywhere in the EU.  Having Pakistani citizenship, presumably from their parents, would give them access to cheap labor and herbal crap and enable them to set up office in Pakistan.

Here is their information (I got it off their website, so it is public domain.)

Name: Mustafa Arif
Position: CEO
Born: Manchester, UK (1979)
Qualifications:

BENG Mechanical Engineering
Imperial College, London
CCNA - Cisco - year 2000

Responsibilities:

Implementing the marketing solutions devised for clients.

Experience:

Mustafa has been involved in internet marketing for the last eight years since 1998. He has seen the market evolve over the years.

Core Expertise:

• Search Engine Promotion
• Link Building
• Paid Inclusions
• CPC Marketing
• Affiliate Marketing
• Ad Networking

Name: Kashif  Arif
Position: Customer Liaison Officer
Born: Manchester, UK (1978)

Qualifications:

BENG Electronic Systems Engineering
UMIST, Manchester

Responsibilities:

Liaising with clients providing them pre-sales support. Understanding the client's needs and devising marketing plans according to the client's business type.

Experience:

Kashif held a similar position in Pace Technologies in Cambridge, one of the world's largest producers of digital satellite decoding devices. He was responsible for negotiating contracts for Pace's clients all over the world.

Core Expertise:

• Negotiating contracts
• Devising marketing plans in lieu of the client's needs and budget

 You may contact us via email, telephone, mail and in person.

Email

Sales Enquiries: [email protected]

Existing Clients: [email protected]

Office Address

2nd Floor - 33 Block Z (Commercial)
Defense Housing Authority (DHA)
Lahore 54792
Pakistan

Phone

0092-42-5749903
0092-300-4007904

Fax

0092-42-5749902

While I was researching all this, I must say the Botanical Sources link (or lack thereof) was bothering me. I was having a hard time directly connecting BS with the other three. But something was bugging me: something that I knew was there, but I was missing. Then I realized what it was: 

The logos.

More specifically, the little leafy or swirly things that is used in every logo.  There are always two, usually in complementary tones, and they usually look like leaves or a Pieces or ying/yang symbol.  Check out the leafy things and the "product shots" used by Botanical Sources and OSH

Botanical Sources

 

 

 

 

And these from Oslo Health Solutions.  The are not alike at all. Are they?

 

 

  

 

And we have some more from OSH, this time the "Pisces" version..

 

I like how Ejucatab has both 'Pices' and 'Leafy thingys'

Berlin Homeo Products (BHP) change the pattern a little. More abstract leaves and this time they change in size, not colour. (way to mix it up!)

And of course, MAK International:

 

 

   

 

You know, I found this little dot thingy on the corner of all the MAK International pages, but I don't have the right skills/software to blow it up properly. It looks intriguingly like it could be an amalgam of some of the other logos.  The colors are certainly correct.

If this turns out to be the case, that wouldn't surprise me in the least. These people seem to like their little inside jokes:  "Murakab" -which is an Islamic term meaning "complex ignorance" as an ingredient in many of their products; The fact that  initials of Society for the Promotion of Alternative Health make the word "SPAH" (think English accent) and the wee dot thingy all point to a rather ignoble disregard for their target market: i.e. sick people and their families.

The funniest joke of all is this: The Society for the Promotion of Alternative Health, -although is doesn't claim directly to be a registered charity or non-profit agency  ...ACCEPTS DONATIONS

"SPAH is a donor based organization. It accepts donations from only two sources; volunteering professionals who dedicate their time to the activities of SPAH and secondly from individuals who out of their own will want to donate to SPAH's cause as a result of benefiting from of its sponsored initiatives. It is not possible for us to accept any other kind of donations in order to ensure minimal outside influence on the organization's work."

Yes, they will take your money to further their (ig)noble cause (i.e. ripping off sick people). Except  they won't accept it if you are a corporation or organization. I figure because a corporation or organization will report such a donation on their taxes.  Too many questions might be asked then.  There's your "minimal outside influence on the organization's work".  They don't want Uncle Sam, Mother England or ...Auntie(?) Pakistan asking too many questions.

Below is the (new) Grand List of conditions these guys claim to treat. it is rather an eye-opener. If you have any of the conditions below, or know anyone who has them, please spread the word about this dreadful scam. I am not saying this to get more hits on OSM. In fact, I didn't even want to publish this myself (I have some concerns about potential recriminations from the Arif boys).  But the one person I know in De Meeja hasn't gotten back to me, and I feel the word needs to get out there. People need to be protected. Please post the link to this story to listservs, forums, messageboards or groups for any of these diseases that you might belong to. A scam only works when it is secret. If we generate enough exposure about MAK International, we can be sure they can profit no more from the misery of others.

I warn you to be sure your anti-virus and anti spyware software is all up-to-date before you click on any of the links because (this was taken from one of the SPAH sites)

Passive Information Collection

As you navigate through a Web site, certain information can be passively collected (that is, gathered without your actively providing the information) using various technologies and means, such as Internet Protocol addresses, cookies, Internet tags, and navigational data collection. We use Internet Protocol (IP) addresses on this site. An IP Address is a number assigned to your computer by your Internet service provider so you can access the Internet and is generally considered to be non-personally identifiable information, because in most cases an IP address is dynamic (changing each time you connect to the Internet), rather than static (unique to a particular user's computer). We use your IP address to diagnose problems with our server, report aggregate information, determine the fastest route for your computer to use in connecting to our site, and administer and improve the site

So having been fairly warned, please do check this out. it is quite mind-boggling.

Abdominal Adhesions	http://adhesions-options.com
Acanthosis Nigricans	http://acanthosisnigricans-options.com
Achlasia	http://achalasia-options.com
Acrocyanosis	http://acrocyanosis-options.com
Acute Broncitis	http://acutebronchitis-options.com
Adenopathy	http://adenopathy-options.com
Adhd	http://adhd-options.com
Adrenoleukodystrophy	http://adrenoleukodystrophy-options.com
Agalactia	http://agalactia-options.com
Age-Related Macular Degeneration	http://agesight-options.com
Alkaptonuria	http://alkaptonuria-options.com
Allergic rhinitis	http://allergicrhinitis-options.com
Alopecia	http://alopecia-options.com
ameloblastoma	http://ameloblastoma-options.com
Amenorrhea	http://amenorrhea-options.com
Amlyoidosis	http://amyloidosis-options.com
Angina	http://angina-options.com
Anginoedema	http://angioedema-options.com
Angionma	http://angioma-options.com
Anklyosing Spondylitis	http://ankylosingspondylitis-options.com
Anorectal Fistula	http://fistula-options.com
Antiphospholipid Syndrome	http://antiphospholipid-options.com
Aquagenic Pruritus	http://pruritus-options.com
Arachnoid cysts	http://arachnoidcysts-options.com
Artery stenosis	http://arterystenosis-options.com
Ascites	http://ascites-options.com
Asthma	http://asthma-options.com
Atelectasis	http://atelectasis-options.com
Atherosclerosis	http://atherosclerosis-options.com
Athlete's foot	http://athletesfoot-options.com
Atrialfibrillation	http://atrialfibrillation-options.com
Autoimmune Hemolytic Anemia	http://hemolyticanemia-options.com
Azospermia	http://azospermia.com
Behcet's Syndrome	http://behcets-options.com
Bell's palsy	http://bellspalsy-options.com
Benign essential blaphasospasm	http://benignessentialblepharospasm.com
Benign essential tremor	http://benignessentialtremor-options.com
Blepharitis	http://blepharitis-options.com
Blisters	http://blisters-options.com
Blood in the Semen	http://semenblood-options.com
Bone and Joint Tuberculosis	http://bonetb-options.com
Bone Degeneration	http://bonedegeneration.com
Bowen's Disease	http://bowensdisease-options.com
Bradycardia	http://bradycardia-options.com
Breath odor	http://breathodor-options.com
Bromhidrosis	http://bromhidrosis-options.com
Bronchiectasis	http://bronchiectasis-options.com
Bulima	http://bulimia-options.com
Bullous pemphigoid	http://bullouspemphigoid-options.com
Burning mouth syndrome	http://burningmouth-options.com/
Canker sore	http://cankersore-options.com
Carbunkles	http://carbuncles-options.com
Carcinoid syndrome	http://carcinoid-options.com
Cardiomyopathy	http://cardiomyopathy-options.com
Cataract	http://cataract-options.com
Cellulitis	http://cellulitis-options.com
Cerebal palsy	http://cerebralpalsy-options.com
CerebraxReiter's Syndrome	http://reiterssyndrome-options.com
Cervical spine ( i.e. "neck"!)	http://cervicalspine-options.com
Cervical Spondylosis	http://spondylosis-options.com
Cervicitis	http://cervicitis-options.com
Cheilitis	http://cheilitis-options.com
Chloracne	http://chloracne-options.com
Chondromalacia Patellae	http://chondromalacia-options.com
Chordoma	http://chordoma-options.com
Cluster Headache	http://clusterheadache-options.com
Condyloma	http://condyloma-options.com
Congestive Heart Failure	http://congestiveheart-options.com
Constipation	http://constipation-options.com
Cronkhite-Canada syndrome	http://cronkhitecanada.com
Cushings disease	http://cushings-options.com
Cyclic Vomiting Syndrome	http://cyclicvomiting-options.com
Dandruff	http://dandruff-options.com
Dark Circles	http://eyebags-options.com
Deep Venous Thrombosis	http://venousthrombosis-options.com
Delayed Ejaculation	http://delayedejaculation-options.com
Dequervains tendinitis	http://dequervainstendinitis-options
Dermatomyositis	http://dermatomyositis-options.com
Diabetes Insipidus	http://diabetes-options.com
Diverticular Disease	http://diverticular-options.com
Drematofibroma	http://dermatofibroma-options.com
Drooling	http://drooling-options.com
Drug Induced Liver Disease	http://liverdisease-options.com
Dysfunctional Uterine Bleeding	http://uterinebleeding-options.com
Dyshidrosis	http://dyshidrosis-options.com
Dyspepsia	http://dyspepsia-options.com
Eczema	http://eczema-options.com
Ehlers-Danlos syndrome (EDS)	http://ehlersdanlos-options.com
emphysema	http://emphysema-options.com
Enlarged Tonsils	http://enlargedtonsils-options.com
Eosinophilia	http://eosinophilia-options.com
Epididymitis	http://epididymitis-options.com
Erysipelas	http://erysipelas-options.com
Erythema multiforme	http://erythemamultiforme-options.com
Erythroderma	http://erythroderma-options.com
Erythromelalgia	http://erythromelalgia-options.com
Eyelid ptosis	http://eyelidptosis-options.com
Fahr's Disease	http://fahrsdisease-options.com
Fatty liver	http://fattyliver-options.com
Fibroadenoma of Breast	http://breastfibroadenoma-options.com
Fibrocystic Breast Disease	http://fibrocysticbreast-options.com
Flatulence	http://flatulence-options.com
Folliculitis	http://folliculitis-options.com
Formaldehyde poisoning	http://formaldehydepoisoning-options.com
Friedreich's Ataxia	http://ataxia-options.com
Frostbite	http://frostbite-options.com
Frozen shoulder	http://frozenshoulder-options.com
Ganglion cyst	http://ganglion-options.com
Gastritis	http://gastritis-options.com
Gastro paresis	http://gastroparesis-options.com
Gilbert's Syndrome	http://gilbertsyndrome-options.com
Gingivitis	http://gingivitis-options.com
Glaucoma	http://glaucoma-options.com
Globus hystericus	http://globushystericus-options.com
Glossopharyngeal Neuralgia	http://glossopharyngealneuralgia-options.com
Gonorrhea	http://gonorrhea-options.com/index.html
Granuloma annulare	http://granulomaannulare-options.com
Grave's disease	http://gravesdisease-options.com
Grover's Disease	http://grovers-options.com/index.html
Guillain-Barre Syndrome	http://guillainbarre-options.com
gynecomastia	http://gynecomastia-options.com
Hand tremors	http://handtremors-options.com
Hearing loss	http://hearingloss-options.com
Hemmorhoids (what, no Pileen?)	http://hemorrhoids-options.com
Hepatic Hemangioma	http://hemangioma-options.com
Hereditary Fructose Intolerence	http://fructoseintolerance-options.com
Hernias	http://hernias-options.com
Herpes Simplex and Zoster	http://herpes-options.com
Herpetiform dermatitis	http://herpetiformisdermatitis-options.com
Hidradenitis Suppurativa	http://hidradenitis-options.com
Hives	http://hives-options.com
Hookworm	http://hookworm-options.com
Horner's Syndrome	http://hornerssyndrome-options.com
Hydrocele	http://hydrocele-options.com
hydrocephalus	http://hydrocephalus-options.com
Hydronephrosis	http://hydronephrosis-options.com
Hyperhidrosis	http://hyperhidrosis-options.com
Hypertension	http://hypertension-options.com
Hypertensive retinopathy	http://retinopathy-options.com
Hypotension	http://hypotension-options.com
Hysteria	http://hysteria-options.com
Ichthyosis	http://ichthyosis-options.com
Idiopathic Thrombocytopenic Purpura	http://purpura-options.com
Iga Nephropathy	http://iganephropathy-options.com
Impetigo	http://impetigo-options.com
Inclusion body myositis (IBM)	http://myositis-options.com
Intrahepatic Cholestasis of Pregnancy	http://cholestasis-options.com
Irritable Bowel Syndrome	http://irritablebowel-options.com
Jock itch	http://jockitch-options.com
Keloids	http://keloids-options.com
Keratoacanthoma	http://keratoacanthoma-options.com
Leg ulcers	http://legulcers-options.com
Lennox Gastaut Syndrome	http://lennoxgastaut-options.com
Leukemia	http://leukemia-options.com
Lichen Planus	http://lichenplanus-options.com
Lichen Simplex Chronicus	http://lichensimplex-options.com
Lipoma	http://lipoma-options.com
Liver cirrhosis	http://livercirrhosis-options.com
Liver cyst	http://livercyst-options.com
Low back pain	http://lowbackpain-options.com
Lymphadenitis	http://lymphadenitis-options.com
Malabsorption	http://malabsorption-options.com
Male Infertility	http://maleinfertility-options.com
Mastitis	http://mastitis-options.com
Melasma	http://melasma-options.com
Meniere's Disease	http://menieres-options.com
Menorrhagia	http://menorrhagia-options.com
Mental Retardation (Grrrrr)	http://mentalretardation-options.com
Molluscum Contagiosum	http://molluscum-options.com
Motor Neuron Disease	http://motorneuron-options.com
Multiple System Athrophy	http://multiplesystematrophy-options.com
Muscular Dystrophy	http://musculardystrophy-options.com
Muscular Fasciculation	http://muscularfasciculation.com
Myasthenia Gravis	http://myastheniagravis-options.com
Myelitis	http://myelitis-options.com
Myocarditis	http://myocarditis-options.com
Myopic degeneration	http://myopicdegeneration-options.com
Narcolepsy	http://narcolepsy-options.com
Nasal Polyps (Note Correct Spelling)	http://nasalpolypus.com
Nephrotic Syndrome	http://nephrotic-options.com
neutropenia	http://neutropenia-options.com
Obesity	http://obesity-options.com
Optic atrophy	http://opticatrophy-options.com
Osteo necrosis	http://osteonecrosis-options.com
Osteomyelitis	http://osteomyelitis-options.com
Osteoporosis	http://osteoporosis-options.com
Otitis media	http://otitismedia-options.com
Pancreatitis	http://pancreatitis-options.com
Papular Urtucaria	http://papularurticaria-options.com
Parkinsonism	http://parkinsonism-options.com
Paroxysmal Tachycardia	http://paroxysmaltachycardia-options.com
Pelvic Inflammatory Disease	http://pelvicinflammatory-options.com
Pemphigus	http://pemphigus-options.com
penumothorax	http://pneumothorax-options.com
Peptic ulcer	http://pepticulcer-options.com
Periodontitis	http://periodontitis-options.com
Peripheral Neuropathy	http://peripheralneuropathy-options.com
Peyronie's Disease	http://peyronies-options.com
Pharangitis	http://pharyngitis-options.com
photodermatitis	http://photodermatitis-options.com
Photosensitivity	http://photosensitivity-options.com
Pick's Disease	http://picksdisease-options.com
Pityriasis Alba	http://pityriasis-options.com
Pityriasis Roseca	http://pityriasisrosea-options.com
Pityriasis Rubra	http://pityriasisrubra-options.com
Pneumothorax	http://pneumothorax-options.com
Polycystic Kidney Disease	http://polycystickidney-options.com
Polycythemia Vera	http://polycythemiavera-options.com
Polymyalgia rheumatica (PMR)	http://polymyalgiarheumatica-options.com
Polyps	http://polyps-options.com
Porphyria (All 6 kinds?)	http://porphyria-options.com
Postconcussion syndrome	http://postconcussion-options.com
Post-Polio Syndrome	http://postpolio-options.com
Post-traumatic Syndrome	http://post-traumatic-options.com
Precocious puberty	http://precociouspuberty-options.com
Pre-eclampsia (pregnancy complication)	http://preeclampsia-options.com
Premature Gray Hair	http://grayhair-options.com
Pressure Ulcer	http://pressureulcer-options.com
Priapism	http://priapism-options.com
Prickly heat	http://pricklyheat-options.com
Prostatitis	http://prostatitis-options.com
Pruritus Ani	http://pruritusani-options.com
PseudoTumor Cerebri	http://pseudotumorcerebri-options.com
Raynauds Syndrome	http://raynauds-options.com
Rectal prolapse	http://rectalprolapse-options.com
Renal Artery Stenosis	http://renalarterystenosis-options.com
Renal Failure	http://renalfailure-options.com
Restless Leg Syndrome	http://restlessleg-options.com
Retinal Vein Occlusion	http://retinalveinocclusion-options.com
Retinitis Pigmentosa	http://retinitispigmentosa-options.com
Rheumatoid Arthritis	http://rheumatoidarthritis-options.com
Ringworm	http://ringworm-options.com
Rosacea	http://rosacea-options.com
Salivary Duct Stones	http://ductstones-options.com
Scabies	http://scabies-options.com
Schistosomiasis	http://schistosomiasis-options.com
Schizophrenia (now that is dangerous!)	http://schizophrenia-options.com
Sciatica	http://sciatica-options.com
Scleroderma	http://scleroderma-options.com
Sebaceous Cyst	http://sebaceouscyst-options.com
Seborrheic Keratosis	http://seborrheickeratosis-options.com
Sensitive Teeth	http://sensitiveteeth-options.com
Shingles	http://shingles-options.com
Sick Sinus Syndrome	http://sicksinus-options.com
Sinus Tachycardia	http://sinustachycardia-options.com
Sjogrens Syndrome	http://sjogrens-options.com
Skin Abscess	http://abscess-options.com
Skin Tags	http://skintags-options.com
Soft Tissue Sarcomas	http://softtissuesarcomas-options.com
Spasmodic Dysphonia	http://spasmodictorticollis-options.com
Spider Veins	http://spidervein-options.com
Spinal Muscular Atrophy	http://spinalmuscularatrophy-options.com
Stroke (...REALLY?)	http://stroke-options.com
Sunburn (check the privacy policy)	http://sunburn-options.com
Syphilis	http://syphilis-options.com
Syringomyelia	http://syringomyelia-options.com
Teething troubles	http://teething-options.com
Temporomandibular Joint Syndrome	http://tmj-options.com
Tetanus	http://tetanus-options.com
Thalassemia minor	http://thalassemiaminor-options.com
Thrombocythemia	http://thrombocythemia-options.com
Thyroid Nodule	http://thyroidnodule-options.com
Thyroiditis	http://thyroiditis-options.com
Tick Bite	http://tickbite-options.com
Tinea	http://tinea-options.com
Tinea Versicolor	http://tineaversicolor-options.com
Tinnitus	http://tinnitus-options.com
Trigenimenal Neuralgia	http://trigenimenalneuralgia-options.com
Trimethylaminuria	http://trimethylaminuria-options.com
Ulcerative Colitis	http://colitis-options.com
Undescended Testicle	http://undescendedtesticle-options.com
Upper Gastrointestinal Bleeding	http://intestinalbleeding-options.com
Urethritis	http://urethritis-options.com
Urticaria Pigmentosa	http://urticariapigmentosa-options.com
Uterine Fibroids	http://uterinefibroids-options.com
Uterine Prolapse	http://uterineprolapse-options.com
Uveitis	http://uveitis-options.com
Vitreous Hemorrhage	http://vitreoushemorrhage-options.com
Vocal Cord Nodules	http://vocalcordnodules-options.com
Vocal Cord Paralysis	http://vocalcordparalysis-options.com
Von Willebrand Disease	http://vonwillebrand-options.com
Vulvovaginitis	http://vulvovaginitis-options.com
Vulvular Dystrophy	http://vulvardystrophy-options.com
Waldenstrom's Macroglobulinemia	http://macroglobulinemia-options.com
Warts	http://warts-options.com
Wilson's Disease	http://wilsons-options.com
Wiskott Aldrich Syndrome	http://wiskottaldrich.com
XXXX (Look Ma!  I found the template!)	http://legulcers-options.com/aboutus.html

Many of these conditions are relatively benign or harmless. However, some are serious conditions: MSA, Spinal Muscular Atrophy, Muscular Dystrophy, Syringomyelia, Ascites, Stroke, Pseudotumor Cerebri, renal failure, leukemia

Some are targeted at pregnant women (preeclampsia, Intrahepatic Cholestasis of Pregnancy),

Some at babies (teething, prickly heat)

And some are just evil  (Mental retardation, schizophrenia, gonorrhea, syphilis)

Please spread the word and help shut these people down.

NOTE: Special thanks to a reader,  Kathryn who first sussed the SPAH connection.

Processing...

So Joe has been trying to come to terms with all I have told him recently, about having Asperger's syndrome and being different.  I can see the struggle in him sometimes and I feel bad.  He has made a few comments, too and asked me questions he has asked before like "why are you always pushing me?" and "why do I have to have Speech Therapy(/Summer School/resource room/etc)?".  However, he is now asking them with a new, negative twist; something about those three years he regained, as if he didn't have to do any more work because he regained them.

I had been afraid of this, so I decided to have A Talk with him to clear up any misconceptions. Because it was obvious to me that there were a few.

It emerged during the course of our talk, that Joe thought I was trying to "fix" him.  To somehow 'cure' him of his "Joeness"  and turn him into a normal kid.  That broke my heart for several reasons. First of all, I figured Joe must have thought that I thought he somehow wasn't 'right' or up to par. In other words;  Joe felt rejected by me.

And the other reason is that this is the age-old problem of an Autistic Spectrum disorder. That people with Autism feel that the normies are out to make them one of us. I tried to set Joe straight on both points

Except he wasn't getting it.

Finally, not knowing what to say, I blurted out "You're not mine!  You are your own person. I have only borrowed you and it is my job to prepare you for the world.  I don't want you to come to me in 20 years time and say that I did a bad job because I didn't make you ready for college or for dealing with people.  Do you understand?  It is my job to prepare you for the world when you are a man."

 And we talked a lot more. 

One of Joe's concerns (Renee, you will appreciate this) was that he was afraid that the more he progressed, the more he would lost his "gifts", most notably his synesthesia.  I told him that if Synesthesia is going to leave him, it will leave him anyway (many people outgrow it in puberty)  and refusing to learn other skills for fear of losing synesthesia might backfire and he could lose out twice.

And we talked about Asperger's Syndrome. Joe had two concerns about this:

His first concern was that it might get "worse" like when he first "got" it (i.e. when he had his huge Autistic Regression at 19 months).  I explained that this was very highly unlikely, unless he was poisoned or something (by mercury.  ...and yes. I am one of those parents, but not militantly).

His other concern of course, was the flipside of this coin: That he would lose his Asperger's syndrome, which is very much part of him and one of the things that make him "Joe".   I explained that he would always have some Asperger's syndrome; - it doesn't go away, and he would always be Joe.  

We talked for a long time: We talked about school, college, jobs, friends -both regular and "with gifts" (-Joe's term meaning "special needs").  I explained that learning to interact with regular people, which he will need to do in his adult life, will not make him a regular person. It will make him a person with Asperger's who can deal well with regular people.  That kid is a very deep thinker and capable of understanding some very mature concepts (I do simplify the language). He amazes me. 

I think he felt better after our talk, although I know we will need to have another talk soon, and many more in the weeks and indeed, the years to come.