One Sick Mother

Gardasil, The First Frankenvaccine

A friend, a young lady of college age,  recently posted a link to this video on her Facebook page.  It is the story of Gabrielle Swank, who has become very ill after receiving her third Gardasil vaccination.  Aside from the obvious impact such a story would have on anyone; two particular aspects of it struck me very hard:

1. Many Of Gabrielle's symptoms are very similar to mine; although hers are  more severe and sudden in onset.  I checked out some other stories and a similar list of symptoms emerges.  Hmmmm.
2. My daughter, Grace is nine years old. Very soon, I will face the Gardasil decision on her behalf. (Ugh)

 

So I decided to investigate Gardasil. Like you do. And to share my findings with you.  Because there is a lot here and it is interesting, while at the same time; kind of scary:

The first thing I found out is this: Gardasil is the very first of a new breed of vaccine, which is manufactured by a completely different process than traditional vaccines have been.  There are two new vaccines in a similar vein racing through the FDA as we speak: Cervarix, by GSK, another HPV vaccine and a direct competitor of Gardasil, and a new H1N1 "swine flu" vaccine by Novavax.

Hello, Big Red flag!

Traditional vaccines are made using a live virus, which you then put into the embryo of a developing hen's egg. You leave it for three days for the embryo to develop  some more, replicating furiously and making new virus as it goes. Then you crack the egg,  extract the virus, kill or disable it so it won't cause the actual disease, clean off the bits of dead chick, and voila!  One single vaccine dose!  So you can't make a vaccine without breaking some eggs. (idle thought: Do vegans get vaccinated?  Hmmmm.)

Here is a video explaining the process.

There are several problems with this method: It is slow, labor intensive, expensive and is very dependent on the supply of chickens/eggs.  Apparently they prefer to use young hens in their first laying season, then they "sacrifice" them before the next virus season, presumably rearing a batch of their offspring as a replacement. ('nother idle thought: You know, reading all this, I wondered how they would make an avian flu vaccine? What if the flock got infected with the bird flu virus? ...Or would that be a good thing, and save the trouble of introducing the virus to the eggs artificially?).

The Gardisil vaccine is made using a brand new process -long overdue-  using something called VLPs, which stands for virus-like particles.   I know, right:   WTF is a virus-like particle?  Well it is a fancy,  state-of-the art piece of genetic engineering.

Best as I can understand; it works like this (this is my over-simplified and somewhat over-dramatized version, but it is not entirely inaccurate):

You take a virus, remove it's brains, and then put it in a little bath of yeast and nutrients. The virus will reconstitute itself into something mute that looks and walks and like a virus, but isn't technically a virus anymore. Therefore the name "Virus-Like particle".  

 

I prefer to think of it as a Frankenvirus.  

 

With the brains removed, the Frankenvirus  cannot cause that specific illness,
but it can still reproduce  (similar to  many man I know, no brains, but ready to reproduce with anybody not fast enough to get away)!  And so it does just that, merrily making more Frankenviruses without the lab needing to use any hen's eggs at all (and I bet all the vegans reading this are heaving a HUGE sigh of relief and queuing up to get Fraknenvirus injections...).

Because VLPs -or Frankenviruses as I now prefer to call them (it is less cold) LOOK very similar on the outside, the human body reacts to them as it would to a regular virus, generating antibodies and therefore immunity to the original virus. Apparently the process can be further tweaked, adding bells and whistles in the form of protein coatings that may trigger different immune responses in the "host" -which is the drug company's preferred term for "person" in this scenario (it is more cold).

Frankenvaccines are believed to be safer than traditional live or killed vaccines because there is no way they can inadvertently cause the illness for which they were designed. This all sounds very well and good.

But what about causing NEW illnesses?  Did anyone think to check that one out?  -Before Gardasil went into mass production on our next generation of mothers, I mean?

Yes, there were clinical trials, but this is brand new technology. There have been NO long-term trials -intended to be run "post-marketing" (i.e. we'll inject it into all of your little girls and let's see what happens!).  I wonder how many parents were informed that the Gardisil vaccine that was being injected into their daughters was the very first product in a brand new generation of vaccine technology? Because that is information I would want to know, and I think I have a right to know it before I am guilted into making a snap decision in the pediatrician's office

 As a former software person, I know that  "version 1" of any product is usually loaded with bugs (pun intended). Every person in my business knows that you have to get to at least version 3 before they get most of the glitches out of the software. So generally, we install our new code on our colleague's computers befire our own (Really. it's mean, but we make an excuse and we do it).

The big th 
ing about new software code (and presumably new vaccines and Frankenviruses), is that they may work just fine in the lab, but you never know what kind of conditions they may encounter out in the real world. W hen you release them into the world, there can be all sorts of actions, reactions and interactions with other entities and other ...stuff that you could not possibly have predicted under lab conditions.

...not to mention the long-term effects, which have not been studied at all.  

 

 

 

Eventually, we iron out all the little glitches and we release a cleaned-up and safe product in version two or three.

 

 

 

 

Did the FDA, the doctors or ANYONE warn patients or parents that Gardasil is a 'version 1.0' -not just of a vaccine, but of a whole new technology and  processing methodology?  If anyone has been offered this vaccine, I would appreciate them letting me know if they were told this (thanks).

 

OK now to completely change the subject back to me for just a second.

I have been told I might have Chronic Fatigue Syndrome (CFS).  This was based on the fact that my system contains an abnormal number of antibodies against a virus. In my case, it is Epstein-Barr, but other cases of CFS have been linked to the HPV viruses.  I was very struck by the fact -as I mentioned earlier, that many of the people who got sick after the Gardasil shot had very similar symptoms to mine. Scarily similar.

And this got me thinking -funnily enough (in light of earlier descriptions)- of chickens and eggs:  Namely can CFS or a similar illness be caused by an immune response, rather than a viral infection?  In other words, could a Frankenvirus, which cannot cause illness in itself, cause a different kind of illness by triggering an unexpected immune response in some individuals?

Good question, no?  I wonder if anyone with any actual say in these matters has asked it?

..and I also wonder if IVIG or similar might help some of those girls and women who have had their lives destroyed by Gardasil?

Another big question surrounding Gardasil and other FrankenVaccines, -quite apart from the Frankenviruses therein, are the other additives, called  adjuvants, which are  chemicals added to the vaccine, supposedly to make the virus more effective.  The main one used in Gardasil is approximately 225 mcg of aluminum (as Amorphous Aluminum Hydroxyphosphate Sulfate adjuvant).  There have been many questions raised in the medical community, asking if this additive is really necessary?  The Frankenvirus has been shown to work perfectly fine without it.

Gardasil is not the only HPV Frankenvaccine out there. Cervarix, which is GlaxoSmithKline's (GSK) version, has been approved for use in the UK and parts of Europe. Cervarix only contains two Frankenviruses, (as opposed to Gardasil's four) but  GSK have been bragging hugely about their adjuvant,  known as AS04, saying it provoked an even better (i.e. stronger) immune response than Merck's boring old aluminum salt.

'scuse me, but is that a good thing?  Just how much immune response can a body take before it goes into overdrive or starts to shut down?

The one death which had  initially  been linked to  Cevarix, now turns out not to have been linked at all. The 14yo English girl who died had undiagnosed cancer, which had become quite widespread. OK fair enough, but I still think the shot thing was probably a bit more than a coincidence. What else had changed with her?

I don't want to create mass panic here.  I know millions of girls and women have received the Gardasil shot and been fine.

So far. 

But is their long-term health being monitored?  How many have gone on to have babies?  How ha  v  e those babies been?  Really. Enquiring minds want to know: 

What are the long-term effects of Frankenvaccines?

There have been thousands of serious adverse events reported and several deaths have been attrib  uted to Gardasil. I don't think the FDA is looking at this as anything more than just another vaccine. I don't think the FDA has said to itself (as I would if I were in charge) "This is the very first in a brand new generation of vaccine technology and processes. We think we'll follow it up more closely than if it were a traditional vaccine".  No.  The FDA, the CDC, the AMA and everyone looking at the cost of cervical cancer treatment and are pushing hard for us to have our little girls injected with this stuff -which -let's face it- is to prevent against a sexually transmitted disease (it is NOT a cervical cancer vaccine. It is a HPV vaccine. Yes, HPV can and does cause cervical cancers, but HPV is transmitted sexually. How many NINE YEAR OLD GIRLS -other than the abused- are sexually active?).

Several things need to change : The FDA needs to instigate some kind of process to more actively monitor and follow up on brand new technology such as genetically engineered viruses and proprietary adjuvants. Currently, they only audit every two years. I would be more comfortable with every six months in cases like these.   Sorry if that's a lot of extra work on an already-stretched agency, but the public needs to be protected.

But instead, the FDA is pushing through more and more Frankenvaccines. Cevarix is set to be approved any day now and a new H1N1 Frankenvaccine, developed by Novavax in Maryland, is being watched with interest. They were the first to put a swine flu Frankenvirus together after the CDC released the sequence, taking less than a month to do it. This is impressive and could change the whole face of the industry.

But at what potential human cost?

Frankenvaccines  have only been in production for three years. They have NOT BEEN FULLY TESTED. The pharmacutical industry is forging ahead nonetheless. I did a little search on VLP patents which are in development or approved:

Over 3,800 of them, including at least one for HIV.

None of this is bad in itself. it would be great to have a safe and effective vaccine against HIV.   However,  I am reminded of the whole Thimerosal thing in the 90s, where vaccines were tested and approved individually, with no thought given to the overall load of virus and chemicals injected into tiny babies. This meant that many babies were injected with mercury at many times the adult recommended levels, because most of the vaccines contained it and no-one had done the math on the cumulative levels (It sounds unbelievable, but it is true. This is the kind of shit the FDA routinely overlooks).

Who is studying potential Frankenvaccine cumulative load and interactions with other Frankenvaccines, I wonder...?

I remember the 90s and it seems to me the whole Frankenvaccine issue - as it is currently playing out, has a much greater potential for interactions and adverse long-term effects than anyone in the pharmaceutical companies or the agencies that are supposed to regulate them are letting on.

So I won't be giving my kids a Frankenvaccine anytime soon.  -especially in light of my own health problems. I already have some of the reported side-effects of Gardasil already, possibly due to my immune response to a different (non franken-) virus. 

What if whatever I have is genetic?

Therefore, Grace will be "one less" person getting Gardasil.

 

Towards Natural Health: Scam

Do you know where the expression "Let the cat out of the bag" came from? 

Well, it came from the practice in Old England of selling piglets in a bag (i.e. "a pig in a poke") at the market or fair. Sometimes, people would buy a piglet only to find when they got home that the wriggling animal inside the bag was actually a worthless cat. So if you were wise, you would open the bag before you hand over any money and  "let the cat out of the bag". That is, you would reveal the scam.

Many pig sellers would leave the pig's tail sticking out of the bag, so you would know it was a piglet and not a cat. However, in a less well-known variation on the old scam, some unscrupulous bastards would cut off the piglets' tails and tie them onto bags, which each contained a cat.

So there was a 'level II' on the pig scam, if you like.

I see Towards Natural Health as a Level II internet scam.  They went through all the trouble to cut the tails off the poor piggies. But it is still a freaking scam; albeit a much prettier one than some the previous scams uncovered here on OSM.  And  keeping in a porcine vein, the expression "putting lipstick on a pig" very much comes to mind here.

Here is an example of one of their sites:

 

 

Wait a sec: To get the full impact you have to load it. Click here and come right back

It's really gorgeous lipstick,  isn't it?  The zooming graphics, the spinning-around globe thingy, the leaves, the starry things, the slick "shick" sound when you roll over a menu item, the persuasive language (although I am never sure what might "suite" me best.  A bathroom installed on my ass, perhaps...?), all the links that they post... 

But look at those links again. Notice they are all general. There are never specific links to the actual condition for which you seek relief. The links are the pig's tail.

Don't be fooled: It's a scam.  They try to cover their asses  by saying things like "This particular website is aimed at helping Motor Neuron Disease patients..."  I guess if you happen to come across the exact same site for ...say Grave's Disease, or one of the 62 or so other sites that I have found (so far), they think their asses are covered.  

Now, unlike SPAH, or Herbal Product Reviews, which are identical scams to this one; Towards Natural Health even has a main site, that goes on about their humanitarian mission to save the world or some such hogwash.

But it is all bullshit. A total and complete scam.  A con. A fraud. Please don't waste your time and money on these guys or on any of the products that they recommend.

Here's how I know they are a fraud:

First off,  all of the products that they recommend are either by Solutions by Nature, Gordon's  Herbal Research Center or Healing Plants, Ltd.  ALL of which have been outed here on OSM as scams.

Often, Towards Natural Health (TNH) will recommend the Solutions by Nature Product.  Hmmm.  I wonder why? 

Well, Here is TNH's address, taken from their main site. It is also the address to which all their  domains are registered (the ones I checked, anyway). PO Box 2175, Paleagade 7, DK-1231, KBH K, Denmark

Here is Solutions by Nature's Address:

 

PO Box 2175, Paleagade 7, DK-1231, KBH K, Denmark

I included both screen grabs so you can see for yourself that they are exactly the same, with no sleight of hand by this Sick Mother. 

 

Towards Natural solutions does list a different address on some of their sites.

Does that address: 115 Abercorn St, M0013, Paisley, PA3 4AT, Scotland; look familiar to you?  

It should.

It is the exact same one as is listed on the domain registration for Herbal  Product Reviews,  which OSM has previously outed as a scam.

 Don't listen to a word that tortoise says.

He is a lying wee bastard. 

And he wants to trample your ice cream, apparently.

Now some of you; -the more trusting among you- may be thinking "It can't possibly be a scam! Why would people go through all this trouble for a scam? "

For the same reason that people would mutilate baby pigs. Because it might make them money. These guys OWN all of these fake herbal sites. There are hundreds of them because they are carpet-bombing the "sick people" market with fake solutions in the hope that some of us will be sick or desperate enough to fall for the ploy. They  are professional con artists. Scamming people it is what they do, and -judging from the number of e-mails I get from people who were scammed or who narrowly escaped because of this site; -they are pretty good at it.

And maybe there is another reason:

Maybe they like it.

Maybe they have such disdain for people with illness and disabilities, that they get some kind of kick out of messing with our heads and our wallets.

And that is really sick.  

 

Help though creating awareness?  Yes. It's what I plan to do. Thanks for the tagline.  It works far better when applied to One Sick Mother than when applied to Towards Natural Health.

Here is the list of TNH scam sites that I have found (updated Sept 6th 2009):

Abdominal Adhesions	http://www.adhesionshelp.org
Achlasia	http://www.achalasiahelp.org
Actinic Keratosis	http://www.actinickeratosishelp.org
Alopecia	http://www.alopeciahelp.org
Atrial Fibrillatin	http://www.fibrillationhelp.org
Bell's palsy	http://www.palsyhelp.org
Benign essential tremor	http://www.tremorhelp.org
Blepharitis	http://www.blepharitishelp.org
Bronchiectasis	http://www.bronchiectasishelp.org
Bullous pemphigoid	http://www.pemphigoidhelp.org
Burning mouth syndrome	http://www.bmshelp.org
Cellulitis	http://www.cellulitishelp.org
Costochrondritis	http://www.costochondritishelp.org
Delayed Ejaculation	http://www.delayedejaculationhelp.org
Emphysema	http://www.emphysemahelp.org
Epididymitis	http://www.epididymitishelp.org
Eye Bags	http://www.eyebagshelp.org
Flatulence	http://www.flatulence-help.org
Folliculitis	http://www.folliculitishelp.org
Ganglion cyst	http://www.ganglionhelp.org
Gastroparesis	http://www.gastroparesishelp.org
Granuloma annulare	http://www.garanulomahelp.org
Grave's disease	http://www.graveshelp.org
Grover's Disease	http://www.grovershelp.org
Guillain-Barre Syndrome	http://www.gbshelp.org
Hand tremors	http://www.handtremorshelp.org
Hernias	http://www.herniashelp.org
Hidradenitis Suppurativa	http://www.hidradenitishelp.org
Hydrocele	http://www.hydrocelehelp.org
Hyperhidrosis	http://www.hyperhidrosishelp.org
Ichthyosis	http://www.ichthyosishelp.org
Inclusion body myositis (IBM)	http://www.myositishelp.org
Keloids	http://www.keloidshelp.org
Keratosis  Pilaris	http://www.keratosishelp.org
Lichen Planus	http://www.lichenplanushelp.org
Lipoma	http://www.lipomahelp.org
Melasma	http://www.melasmahelp.org
Motor Neuron Disease	http://www.mndhelp.org
Myasthenia Gravis	http://www.myastheniahelp.org
Myelitis	http://www.myelitishelp.org
Narcolepsy	http://www.narcolepsyhelp.org
Osteomyelitis	http://www.osteomyelitishelp.org
Pemphigus	http://www.pemphigushelp.org
Peripheral Neuropathy	http://www.neuropathy-help.org
Peyronie's Disease	http://www.peyronieshelp.org
Polycystic Kidney Disease	http://www.pkdhelp.org
Polycythemia Vera	http://www.polycythemiahelp.org
Polymyalgia rheumatica (PMR)	http://www.polymyalgiahelp.org
Porphyria (All 6 kinds?)	http://www.porphyriahelp.org
Post-Polio Syndrome	http://www.postpoliohelp.org
Premature Gray Hair	http://www.grayhairhelp.org
Prickly heat	http://www.pricklyheathelp.org
Rectal prolapse	http://www.rectalprolapsehelp.org
Retinal Vein Occlusion	http://www.rvohelp.org
Retinitis Pigmentosa	http://www.retinitispigmentosahelp.org
Scleroderma	http://www.sclerodermahelp.org
Sebaceous Cyst	http://www.cysthelp.org
Seborrheic Keratosis	http://www.seborrheickeratosishelp.org
Sjogrens Syndrome	http://www.sjorgenshelp.org
Tinea Versicolor	http://www.tineahelp.org
Trigenimenal Neuralgia	http://www.trigeminalneuralgiahelp.org
Urethritis	http://www.urethritishelp.org
Uveitis	http://www.uveitishelp.org
Vocal Cord Nodules	http://www.vcnhelp.org
Waldenstrom's Macroglobulinemia	http://www.wmghelp.org

 

NOTE: While compiling this list, I realized that there are many More Solutions By Nature sites than I had  found previously. I will update that page when I get a chance. Really, there is too much out here for a single person to track  (I bet that is a large part of the plan)

The Secret Evils of a Healthy Diet.

(I'm probably going to get blasted for this one, but I am writing it anyway.)

 No-one wants to hear that a Healthy Diet has Evils. Actually, it was hard to find a clear definition of what constitutes a Healthy Diet, let alone what constitutes Good and Evil therein. But I found a definition and I have found two Evils, which can work together, and -with a bit of assistance from your well-intended and unsuspecting primary physician, can cause a pretty serious problem over time.

WTF are you talking about, OSM? I hear you ask.

I'm talking about B12 deficiency.

Don't be daft, OSM, (I hear you say) there is plenty of B12 in a healthy, balanced diet.

Is there? Show me. OK. scratch that. I'll show you that there might not be sufficient B12 in a healthy diet.

...what exactly constitutes a healthy, balanced diet, anyway?  I tried to find a definition or example online, and could find very little. I did find this:

 

Clinical nutrition definition: Any diet based on sound nutritional principles; the HD philosophy is often coupled with the  belief that organic and/or unprocessed foods–ie, produced without pesticides and chemical preservatives, are superior to adulterated foods

Healthy diets, features of

• High consumption of fruits & vegetables

• Low consumption of red meat & fatty foods

• Raw foods & whole grains are preferred to processed or refined foods

• Protein primarily from fish, dairy products, nuts

• Consumption of salt, pepper, sugar, coffee & other caffeinated beverages, and alcohol, is discouraged

 

OK that sound fair enough, it echoes what most of me doctors have told me: Lots of vegetables and whole grains, low on red meats, fats and chemicals.

Here is a list of some B12 sfood sources from the National Institute of Health (NIH). I figure they should know, right?

Table 1: Selected food sources of vitamin B₁₂

Food	Micrograms (μg) per serving	Percent DV*
Mollusks, clam, mixed species, cooked, 3 ounces	84.1	1400
Liver, beef, braised, 1 slice	47.9	780
Fortified breakfast cereals, (100%) fortified), ¾ cup	6.0	100
Trout, rainbow, wild, cooked, 3 ounces	5.4	90
Salmon, sockeye, cooked, 3 ounces	4.9	80
Trout, rainbow, farmed, cooked, 3 ounces	4.2	50
Beef, top sirloin, lean, choice, broiled, 3 ounces	2.4	40
Fast Food, Cheeseburger, regular, double patty & bun, 1 sandwich	1.9	30
Fast Food, Taco, 1 large	1.6	25
Fortified breakfast cereals (25% fortified), ¾ cup	1.5	25
Yogurt, plain, skim, with 13 grams protein per cup, 1 cup	1.4	25
Haddock, cooked, 3 ounces	1.2	20
Clams, breaded & fried, ¾ cup	1.1	20
Tuna, white, canned in water, drained solids, 3 ounces	1.0	15
Milk, 1 cup	0.9	15
Pork, cured, ham, lean only, canned, roasted, 3 ounces	0.6	10
Egg, whole, hard boiled, 1	0.6	10
American pasteurized cheese food, 1 ounces	0.3	6
Chicken, breast, meat only, roasted, ½ breast	0.3	6

Have a serious look at that list. Now take out the breakfast cereal, because I am pretty sure that's a red herring and then honestly add up how much B12 you consume in a day. Notice that a serving of chicken breast: that vaunted staple of The Healthy Diet, contains only 6% of the Daily Value of B12. A cup of milk (8oz) only 10% and a cup of yogurt, which is two of those little 4oz carton thingys BTW, contains 25% of the DV. 

So -breakfast cereal aside (because I am going to come to that in a minute), were I to try and to get adequate B12 from food, according to this chart from the NIH,  I would need to eat all this:

Food	Percentage DV
2 eggs	20%
A pint of milk (2 8oz cups)	30%
3oz (one little can) of tuna	15%
Two half chicken breasts, roasted	12%
1 cup plain skim yogurt (which I hate)	25%
Total	102%

This brings me to 102% of the daily value. OK fine. Better to be slightly over than under. And remember, I would have to eat all this  in ADDITION to my veggies and wholegrains, which contain virtually no B12.

That's a lot of food. I don't eat three servings of protein AND two eggs AND all that milk and yogurt in one day! I don't know who does. And in order to get adequate B12 from food, I would need to eat like that every single day. Actually more for me. Because I am recovering from a B12 deficiency, I need more B12 than the average Joe.

I can raise my B12 intake by eating Unhealthy food; steak, a taco or a burger all have much higher B12 than the healthy food. But then me Healthy Diet is blown.

...and now we understand the title of this piece.

Yes,  there are better sources of B12 on the list and you may say that I deliberately ignored them. But I can't tell you the last time I served my children wild rainbow trout for dinner, or indeed when I was a Mean Mom and had the audacity to serve farmed rainbow trout for dinner on a school night. Oh wait. I suddenly remembered when:

It was Never.  On both counts. 

We do eat tuna, which is a pretty low source of B12,  but not too much salmon, which is a much better source.  And both kids would probably run a mile if presented with a mollusk (although Grace will eat scallops) or a piece of liver.

So that leaves "unhealthy" food.

Now, I know most of you have probably looked at this list, zeroed in on the 'fortified breakfast cereal', then relaxed, with the thought  I eat me Special K every day. I'm fine.

Are you?

Let's explore that for a minute.

I was quite amazed, when researching this subject to find differing opinions on the recommended daily amount of B12 a healthy adult should intake. Here is an excerpt from the NIH page where I got that daily value grid.

The DV for vitamin B₁₂ is 6.0 micrograms (μg).

This is from the next paragraph, on the exact same page:

Table 2: Recommended Dietary Allowances (RDA) for vitamin B₁₂ for children and adults [7]

Age (years)	Males and Females (μg/day)	Pregnancy (μg/day)	Lactation (μg/day)
1-3	0.9	N/A	N/A
4-8	1.2	N/A	N/A
9-13	1.8	N/A	N/A
14-18	2.4	2.6	2.8
19 and older	2.4	2.6	2.8

 

So which is it, NIH?  Is it 6 micrograms or 2.4 micrograms?   Because that is a big difference! The 6 mcg number comes from the FDA, BTW.  The 2.4 mcg number comes from the Institute of Medicine. Personally, I prefer the FDA number. I'm going with that one for me and my kids. But here's the problem I have now:  Which number was used in the food values table above?  The FDA number or  the IOM one?  As 0.6mcg=10% of DV on that table, it must be the FDA number.  OK fine.

Then I  looked at me box of special K:

	Cereal only	Cereal with ½ cup vit A&D fat-free milk
B12	100%	110%
Folic Acid	100%	100%

 

These are only percentages. There no values in micrograms. So I don't know if this figure is 100% of the FDA-recommended  6 mcg or of the IOM-recommended 2.4mcg. There is a big difference between the two, right?  Reading all the small print of the box I see "The Institute of Medicine suggests...." So I figure the numbers are IOM numbers. Therefore, the cereal does NOT provide 100% of my FDA recommended daily value.  And also, that first NIH table, with the food values:

Fortified breakfast cereals, (100%) fortified), ¾ cup

6.0

100

 

...is wrong! That's the FDA number, but Kellogg's are using the IOM one. Therefore, that line should read 2.4mcg and 40%.  For special K, at least.

I had a quick look online at the B12 value for Cheerios and again, no hard numbers, just percentages. This time the precentage was 25% without milk and 35% with milk. This time there was neither reference to the FDA or the IOM that I could see, so I have no idea which guideline they are using. For me  the point is moot because we don't really eat fortified breakfast cereal in this house. The Special K box that I used as an example here had been sitting there for ages! But if anyone out there is using fortified cereal as a means to keep their B12 levels propped up, just be sure you understand what those numbers actually represent.

Regardless of whether the recommended amount is 6.0 or 2.4, I figure that many of us who are trying to eat a healthy diet are not getting our full quota of B12 every day, (while the people scarfing down steak, burgers and tacos are doing much better on the B12 front!).   But that's OK, right?  If any of us are B12 deficient, the doctor will catch it in the annual physical  (because we all go for our annual physical right after our birthday, right)?  That's our safety net.  The annual physical.

Maybe. Maybe not.

The Mean Corpuscular Volume (MCV) test in the standard CBC is the method most doctors use to measure your B12 levels. It is an indirect measure:  The science behind it is relatively simple: If B12 levels are too low, the red blood cells (RBCs)  start coming out wonky. Instead of being a nice, neat doughnut shape,   like in this picture on the left, they are bigger and uneven with lumpy bits (that's a medical term!), like the picture on the right.  Personally I don't see too much of a difference, but that's probably why I don't work in a lab...

There are a few problems I see with this MCV approach for detecting dietary B12 deficiency:

1 Folic Acid (will explain in a tick).

2. The human liver can store up to four  years worth of B12, so by the time your red blood cells are coming out wrong, your diet will have been deficient for years.

3. Making red blood cell is not B12's only job. B12 also makes myelin, the stuff your nerve cells need in order to transmit signal properly:   Multiple Sclerosis is  disease in which myelin is effected;  so yeah. We need it. A lot. And by the time your blood cells start showing problems, the myelin could have been in trouble for a long time.

4. There is a perfectly good test  available that will directly measure blood serum levels of B12.

 

Sorry, wrong Superhero.

In 1998 the FDA required that certain manufacturers of grain staples like bread and cereal should  add Folic Acid to their product.  Folic Acid (B9)  is like a Vitamin Superhero.  It does lots of things in the body. It is most famous for preventing spina bifita  in babies if taken by women prior to conception and during pregnancy.  In fact, Folic Acid is such a superhero, that if your B12 levels are low, it will step in and help those little blood cells to stay healthy and doughnutty.

However, sending Folic Acid to do B12's job is problematic. Because if Folic Acid is a superhero,  it is like the Batman of Vitamins. Well meaning, with lots of tricks up it's sleeve,  but ultimately human. Batman can't fly. He can jump, glide and absail. He fakes it pretty well, but it isn't real flying.

B12 is more Like the Superman of vitamins. He doesn't need tricks or gadgets. He can fly.

B12's primary Superman trick is that it makes myelin.  Folic Acid just can't do that.  So if your B12 is low or missing, and your Folic Acid is high -and it often is  for those of us who like to eat healthy, because we pile on those leafy green vegetables-  Folic Acid will do it's very best to take over B12's job where it can: In the blood cell department.  Unfortunately, your myelin is on its own. Because Folic Acid can't fly.

So remember that blood test, the MCV that the doc will use to indirectly check your B12 levels?  It is now  actually useless for that purpose, and could even be dangerous, because Folic Acid is taking up the slack with the blood cells, but not with myelin.

That is the second secret evil of a healthy diet: Too much folic acid may mask B12 deficiency.

You need a serum B12 test to really know your B12 levels. Don't bother  faffing  around with MCVs for that purpose.  I'm serious.

What does B12 deficiency feel like?

Now all this -especially the folic-acid-masks-B12-deficiency thing this isn't scientifically proven. Yet. They are starting to find some stuff; see this,  this and this. It is relatively early days yet.  Most people can store about 4 year's supply of B12, so it will take a long time for a dietary deficiency to become apparent.  And B12 deficiency is sneaky and unobvious. For me, it started as fatigue and these hideous mouth ulcers that I used to intermittently get all along one side of my mouth and throat. 

I didn't notice that I was losing feeling in my hands until I burned my hand  and didn't feel it. -I didn't flinch at all, but I SAW my hand was burning and pulled it off the grill (ended up with a lovely blister about an inch across).  If that accident hadn't happened, I don't know when I would have realized there was a problem. Other people who have had B12 deficiency will say the same thing: That  it snuck up so slowly and they didn't realize there was a big problem until it was well advanced.

Because most people do what I did when I first started to feel tired. I blamed myself. I figured. I am unhealthy. I should eat better: More fruits and vegetables, less fast food and less red meat...

See the vicious cycle?

This is why we should go to the doctor, people.

... and ask for the correct test.

Oslo Health Solutions: Preying On The Sick Part III

I'm kind of sick talking about these people by now, to be honest with you. I have devoted hours and hours of rather nauseating research to Oslo Health Solutions and their claims. There are many, many more hours of work that could be done; -just on the Internet alone, before one starts on private and other channels, but I don't have the resources for it, financially,  physically or spiritually.

But there are two areas I do want to explore:  How people like this might think, because it seems to me,  their thought processes are very different than us trusting honest normal people. Maybe getting into their brains a little will help us to beware of others of their ilk.

And I also want to let you know how you can fight back; against people like this in general and against Oslo Health Solutions (OHS) in particular.  Because let's face it: Oslo Health Solutions run a pretty despicable operation and they need to be stopped.  Now.

So how do they think they can get away with it?  I have thought about this and I think I figured out a few um ....principles for Internet fraud.

1. Lie Big:
   It is a concept con-men have down cold, but one that most decent people can't get their heads around:  If you are going to lie to people: Lie big. Don't bend or massage the truth.  People are expecting that. Most normal people lie small, They exaggerate or use words like "almost" or "virtual".  But the truth is usually somewhere underneath. People expect this and watch out for exaggerations and small lies. People generally don't expect a lie to be totally bald-faced and to have no relation to the truth. Therefore we see the grandiose claims OHS make and we expect there is some truth to them. This is why OHS were so smart in their pitch. They understood this and therefore they sold so high, but delivered so low, they seem to have flown right underneath most radars.  
    
2. Divide and Conquer: 
   People with specific illnesses don't generally go looking for herbal treatments for other illnesses, so if one product was exposed as a fraud, then it is just that one out of ...what?  ...about 60 now that I have found?... I figure OHS simply dump the product that was exposed, find a new disease, re-brand the website and labels as "new disease-Tab" and then carry on selling the exact same product to a different market.
   
   I guess OHS didn't expect anyone to search on more than one or two of the diseases they cover. The must have figured that chances that someone would work out that they are selling  the same list of ingredients as  a completely guaranteed and clinically proven herbal treatment for up to nineteen (19) different conditions, from teething troubles to Multiple System Atrophy (MSA), which is generally fatal within two years of diagnosis (Elizabeth at Screw Bronze! has MSA. Read her blog if you want some graphic descriptions of what it does to one .... and   -Quick! give her some shallots and Red Earth!  That'll be bound to cure her...)
   
   
3. Avoid well-organized groups:
   There is No MS-Tab, no Breast Cancer-Tab, no Autism or Aspie-Tab, no Alzheimer's-Tab and I think there is a very good reason for this. It is probably the same reason Cardio-tab no longer exists:  These conditions are highly public and have well-populated organizations and lots of support groups surrounding them, the jig would be up pretty quickly with most of these conditions. -I was actually surprised to find MD-tab, Leukotab and Parkotab, as they are also quite well organized too.  
    
4. Use the Global Market to confuse your  umm... "customers":
   If you set up shop based out of a small, little understood country in Scandinavia, then ship your product from Pakistan, most normal sick people won't be able to figure out how to take action against you from halfway around the world... 
   
   But keep reading.  I have found a fair bit of information on this.

I have two imaginary scenarios for who could be behind Oslo Health Solutions:  In the first one, it is a couple of teenagers, now young men, who started it as little more than a lark out of someone's bedroom, not fully comprehending the real lives that could be effected behind the illness they researched on-line to create new markets for a Pakistani Hemorrhoid preparation.

It the other scenario, it was started very deliberately by adults who have no regard for others, knew exactly what they were doing and are in this game to make money, not caring at all who gets hurt in the process.

Regardless, it is wrong.

Several people asked me, both in comments and through other channels, if we could inform the FDA about this. I don't think the FDA has any interest, as natural remedies and herbal supplements are not very regulated here in the US. However, they might be interested to investigate if they thought Americans were being sold Strychnine as a supposed cure for Parkinson's disease.   I will look into this.

However, FDA aside (for now), the Norwegian government DOES regulate (and tax!) natural remedies. It falls under the jurisdiction of the Norwegian Medicines Agency, and they have an English version of their website, and of their contacts page (how cool is that?), complete with e-mail addresses, so you can send the links directly. I love Scandinavian efficiency!

Now, I suspect that Oslo Health Solutions are trying to get around some of the European laws and regulations governing sales of herbal remedies as well as false advertising laws by manufacturing and shipping their product from Pakistan. 

However, Pakistan now has the Electronic Transaction Ordinance (2002) which protect consumers in electronic commercial transactions, such as buying poison from Pakistan. More interestingly, there is the 2007 Electronic Crime Ordinance which has this interesting clause, potentially punishable by death:

17. Cyber terrorism. -

a. Any person, group or organization who, with terroristic intent utilizes, accesses or causes to be accessed a computer or computer network or electronic system or electronic device or by any available means, and thereby knowingly engages in or attempts to engage in a terroristic act commits the offence of cyber terrorism.

Explanation1: For the purposes of this section the expression “terroristic intent” means to act with the purpose to alarm, frighten, disrupt, harm, damage, or carry out an act of violence against any segment of the population, the Government or entity associated therewith...."

Do you think that selling Strychnine to Parkinson's patients over the Internet could be interpreted as "Intent to harm, damage or carry an act of violence against a segment of the population..." (what we in America would call a hate crime)?  I think it could be.  

Interesting stuff, eh? 

Now: Of the sites I investigated (and I have to admit that a few, such as Inisitab, and Abdotab were late additions to the party) the vast majority claimed to be run our of Norway, from this address:

Oslo Health Solutions

Oslo Health Solutions
Suite 329
Youngstorget
NO-0028 Olso
Norway

There are a few exceptions, Some had no address whatsoever, but when you click on the "order now" , button, it comes up as Oslo Health Solutions. These included Raynotab, Guillatab, Clearotab,

...and a few products seemed to be run out of the UK, from corporations (...or are they? "Inc" is not a UK corporation suffix  "Ltd" or "plc" are the norm over there.  ...Hmmmm.)  supposedly operating over there.  Note the addresses are all exactly the same.

Vertigo Tab Inc
Suite 10 & 11
Siddeley House
50 Canbury Park Road
Kingston Upon Thames
Surrey - KT2 6LX
UK

Anemia Tab Inc
Suite 10 & 11
Siddeley House
50 Canbury Park Road
Kingston Upon Thames
Surrey - KT2 6LX
UK

Psoriasis Tab Inc
Suite 10 & 11
Siddeley House
50 Canbury Park Road
Kingston Upon Thames
Surrey - KT2 6LX
UK

Vitiligo Tab was the one which had buried its tracks particularly well. No address, no telltale "Oslo Health Solutions" banner on the order form. The Web site was registered to a "Charls Dickens" (sic)  of

Berkeley Square House,
W1J 6BD
London,  W1J 6BD
United Kingdom

In the UK, companies making false claims over the Internet are regulated by  The Trading Standards Institute.  Vitigilo tab is claiming that "Vitiligo Tab is our 100% guaranteed and clinically proven permanent cure for Vitiligo" (my emphasis). Psoriasis Tab and Vertigo Tab also claim a "100% cure", whereas Anemia Tab claims a "completely guaranteed and clinically proven herbal treatment for Anemia".  Are these false claims?  I dunno, but I think they should be investigated by the appropriate parties.

So what you do is this: You go to their site and enter the postcode

for the guys against whom you wish to complain, which is KT2 6LX  or W1J 6BD (for Charls Dickens) and you follow the instructions from there.

Little people can fight back, you know. We just need to get the right muscle on our side.

Oslo Health Solutions: Preying On The Sick Part II

This is Part II of my little exploration of a unscrupulous company who takes advantage of sick people by selling them herbal remedies under false pretenses. In part I, I told you about the products sold by Oslo Health Solutions, which is by far the worst offender out there that I have found. In Part II, I am sticking with Oslo Health Solutions, and concentrating on the ingredients they claim are beneficial for a very wide variety of serious ailments. I am uncovering new and interesting information every day, none of it good.

 I promised you an analysis of the formulations that Oslo Health Solutions (OHS) purport to use for the various ailments that they purport to treat.  I performed this exercise a couple of years ago on the Syrotab formulation, what I am now calling "Formulation 1" herein, as it is touted not only for the "guaranteed treatment of Syringomelia" (a condition which cause hideous pain, disablement and eventual death), but as a "guaranteed treatment" for several conditions, including Post-Polio syndrome (potentially crippling), Osteomyelitis (potentially fatal) , Peripheral Neuropathy (often treatable if the underlying cause is located) and Muscular Dystrophy (both crippling AND fatal).  My little analysis at the time was done for fun, and it was amusing-if-a-little-scary then. Looking back and knowing what  I now know, Formulation 1

The main ingredients are listed as

Magnesium Murakab
Zinc Murakab
Berberis aristate
Ext Egg Shell Calcium
Sulphur
Substituted olive Oil

The exact proportion of each ingredient has been deliberately kept secret to avoid imitations of our confidential formula.

LETS BREAK THIS DOWN, SHALL WE?

Magnesium Murakab, Zinc Murakab
I could not find any information on these specific formulations of magnesium and zinc. So I looked up the work “Murakab”:

It is an Islamic concept meaning “complex ignorance” See the following explanation:

The classical ulama of Islam divided ignorance into two parts; namely; simple (basiit) ignorance and complex (murakab) ignorance. In simple ignorance one knows that one does not know whereas in complex ignorance one does not know that one does not know. Often people who do not have book knowledge, i.e., those who did not have the chance to study at universities are characterized by simple ignorance. This type of ignorance is not as deadly as complex ignorance since one does not have the arrogance and the pride that often accompanies the thought of considering oneself ’educated’.

Hmmm. Something smelled bad. So I kept looking down the ingredients list:

Berberis aristate Ext: OK this is actually something, though misspelled.  It is extract from the plant Berberis Aristata, English name Tree Tumeric, the root of which has antibiotic and anti-inflammatory properties. (To my eyes, They will need all the anti-inflammatory properties they can get to counterbalance that "Murakab" jab.)

Egg Shell Calcium (quoi? I know eggshells won't do any harm if ground up finely, but I don't think the type of calcium found in eggshells is can be absorbed by humans)

Sulphur:  (in what form? and some people are allergic to sulphur -where's the warning?)

Substituted olive Oil: Substituted for what? Or more interestingly; what was substituted for olive oil?

My summary at the time:

Should I ever get the urge to sprinkle my breakfast eggs with tree tumeric, sulphur and complex ignorance, then eat them shells and all, I will let you guys know how I get on. In the meantime,. I think that anyone with Syringomyelia or other conditions should save their money to apply to real medical expenses.

("Had the effectiveness of Syrotab not been proven beyond any doubt, it would not be "possible for us to make such a bold claim")

Formulation 2:

The main ingredients, according to Oslo Health Solutions are:

Berberis aristata D.C Ext.
Melia azadirachta Linn Seed
Raphanus satirus Linn
Melia azadirachta Bark
Red earth
Sulphur (purified)
Allium ascalonicum seed

These ingredients, presumably in different combinations (if one is to be kind) are "guaranteed" by OHS to treat the following

Muscular Fasciculation

Kugelberg Welander Syndrome 

Pseudotumor Cerebri

Ascites

Myelodysplastic Syndromes

Teething Troubles (Yes. They say you should give it to babies!)

Spasmodic Torticollis

Enlarged Tonsils

Arachnoid Cysts

Multiple System Atrophy

Ameloblastoma

Wiskott Aldrich Syndrome

Horner's Syndrome

Chordoma

Benign Essential Tremor

Myelodysplastic Syndromes

Benign Essential Blepharospasm

Cronkhite-Canada Syndrome

Megaloblastic Anemia

Really.

So I did a little research on each of these ingredients:

Berberis aristata D.C Ext.: Here again is our friend the Tree turmeric, spelled correctly this time.

Melia Azadirachta Linn Seed: Azadirachata Indica is an evergreen tree native to India and the region. It is used for medicinal purposes: The bark is used for fever, nausea and skin diseases. The leaves are used for skin diseases -but applied topically.

I couldn't figure out what the seed oil (I presume this is what Linn Seed means) is used for specifically.

Raphanus satirus Linn: I think this might actually refer to Raphanus Sativus Linn, which is the Chinese radish. Its seeds are used for natural medicine in diuretics and laxatives and also to help naso-pharyngeal affections and stomach troubles

Melia azadirachta Bark: Bark from the Azadirachata Indica tree as mentioned previously. The bark is used for fever, nausea and skin diseases.

Red Earth: Um. I think as the description suggests, this is earth (dirt) that is red, from India. It is seems to be used in face packs and the like. I don't know why anyone would eat it, but maybe there is a good reason.

Sulphur (purified): Used in Indian homeopathic medicine. I am not sure what for, exactly

Allium ascalonicum seed: Allium ascalonicum is the common shallot. Shallots appear to contain more flavonoids and phenols than other members of the onion family.

While researching these ingredients, I found them listed in the same order, with the same misspellings, on a site that appears to have nothing (publically) to do with Oslo Health Solutions.

Check out the information for Pileen, a natural remedy for hemmorhoids, which is marketed and sold by Ark Corporation (Rawalpindi, Pakistan)

Some text from their site:

PILEEN is an effective herbal remedy for treatment of piles or haemorrhoids. It stops bleeding of haemorrhoids and relieves pain and inflamation. Pileen also removes the constipation, which is one of the main cuases of piles. Pileen is equally effective for both (internal and extrenal) forms of piles.

WHAT IS PILES?
Piles, also known as haemorrhoids, are swollen blood vessels in the back passage. There are two types of piles - internal or external: Internal piles are the most common form of the condition and appear as bright red shiny swellings inside the anal canal, covered in the thin, moist lining of the rectum. External piles are swollen veins close to the anal opening, covered in a layer of skin with a dark red or dusky purple appearance and can resemble bunches of grapes.The main cuases of piles are constipation (for a long period) and use of too much chillies and spices.

To prevent piles :

• Ensure that there is adequate roughage (bran, whole grains, green vegetable, and fruits) in your diet.
• Avoid alcohol, tea, coffee and very spicy food
• Drink at least 8 glasses of water daily preferably non-refrigerated.
• If your life style is sedentary include some exercises in your daily routine.
• Get yourself treated for any condition that is causing you to strain such as chronic cough
• Attend to nature's call daily and do not postpone the urge to defecate, but do not sit for too long in the toilet.
• Maintain god hygiene and keep the anal area dry learn to relax mentally and regularize your life style
• Isabghol husk can be taken as a bulk forming laxative.

DOSAGE:
Two tablets thrice a day with water.

INGREDIENTS:
Berberis Aristata ,Melia Azedarch, Linn Seed, Raphanus Satirus, Red Earth, Purified Sulphur, Allium Ascaionicum Seed.

Just a side-by-side look at the ingredients again: Pileen above, multiple OHS products below

Berberis aristata D.C Ext.
Melia azadirachta Linn Seed
Raphanus satirus Linn
Melia azadirachta Bark
Red earth
Sulphur (purified)
Allium ascalonicum seed

Fascinating, huh?

The funniest fact is this:  OSH do sell a product called Hemorotab, but the ingredients are completely different than the hemmorhoid treatment they apparently re-label and sell to treat MSA and other serious health conditions! Mad, eh? Here is the list for Hemorotab (Hemorotab! I ask you?! Sweet mother of God! I couldn't MAKE this stuff up!)

(The main ingredients of Hemorotab tablets are: Nuqra flakes , Ruby triturated, Turquoise, Agate green, Bombyx mori, Elettaria cardamomum, Conucilien, Corallium rubrum, Coral, Sea coconut, Ambra grasea, Aquilaria ovata, Delphinium denudatum, Doronicum hookeri, Lapis lazuli, Myristica indica, Pearls triturated, Vateria indica, zehar mohra, Crocus sativus

Hmmmm ...rather heavy on the precious and semi-precious stones, this one. Who knew hemmorhoids were so status-conscious?)

...but I digress...

On to Formulation 3...

This one is supposedly for the treatment of Idiopathic thrombocytopenic purpura (ITP), which is a bleeding condition in which the blood doesn’t clot as it should due to a low platelet count. OHS's "treatment" for this includes the following.

Ammonium Chloride
Potassium Nitrate
Cinnamomum
Tamala
Rheum Emodi, Wall
Base Q . S

My analysis:

Ammonium Chloride: Salt of Ammonia. Its expectorant action is caused by irritative action on the bronchial mucosa. This causes the production of excess respiratory tract fluid which presumably is easier to cough up. I'm not sure what benefit this woudl have to bleeding or platelets, exactly.

Ammonium salts are an irritant to the gastric mucosa and may induce nausea and vomiting.  (Again, not getting the platelet connection here)

Potassium Nitrate: Salt Peter. A popular misconception was that potassium nitrate caused impotence and it used to be added to food in all-male institutions. This myth has been debunked. However, potassium nitrate and other nitrates do successfully combat high blood pressure and are used medically to relieve angina.  (Fair enough -not that I think ITP causes either of these problems.)  Oh and BTW:   Platelets, anyone?

Cinnamomum Tamala: Indian Bay leaf. It is mostly used as a seasoning, but is reputed to help colic, diarrhoea, and "rheumatism". It is also said to reduce blood sugar.

Rheum Emodi, Wall: Reported to be useful in biliousness, chronic bronchitis, asthma, sore eyes and bruises.(OK! Maybe this one is for the platelets!)

Base Q . S: I could only find references to this as a listed ingredient in some shampoo that is supposed to prevent hair loss...

Formulation 4.

For Peptic Ulcer Disease,  -the thing that struck me -just looking down this list, was that there is a lot of strong, fragrant substances being sold to soothe a peptic ulcer? Logically, that doesn't compute...

Camphor: Camphor is used in several cough preparations such as Vicks and Buckley's as a cough suppressant and topical analgesic

Menthol: Menthol has analgesic properties that are mediated through a selective activation of κ-opioid receptors. Menthol also enhances the efficacy of ibuprofen in topical applications via vasodilation, which reduces skin barrier function

Oleum anisi: Oil of Anise is employed as an aromatic carminative to relieve flatulence. The oil may be administered on sugar or as Spiritus or Elixir Anisi. It is a mild expectorant, and is an ingredient of simple cough lozenges, often in combination with liquorice

Oleum carvi: Caraway Oil is used to impart flavor to medicines, and to correct their nauseating and griping effects

Oleum eucalypti: The oil of eucalyptus (which is chiefly eucalyptol) and eucalyptol, in small doses, are gentle stimulants; in large doses, they occasion irritation of the throat and fauces, with increased flow of saliva; cephalagia, with extreme fatigue; frequency of the pulse; increased temperature; diminution of vascular tension; gastric irritability, and, not unfrequently, diarrhoea, accelerated respiration, the peculiar odor of the oil being exhaled with the breath; and increase of the urinary excretion

Oleum pine: Pine Oil. It is given internally as a disinfectant and expectorant,

Thymol: Thyme extract. Recent medical research on rats concludes that "Thyme extract had relaxing effects on organs possessing β₂-receptors (uterus and trachea). Thymol has GABAergic properties via a mechanism of action similar to the anaesthetic propofol. Though much less potent, thymol may possess abuse potential (Nice!).

Tincture zingiber: Essence of Ginger  used to calm the stomach and also to treat pneumonia, acute and sub-acute dysentery

Formulation 5

This is purportedly for the treatment of Parkinson's Disease, Soft Tissue Sarcomas and Atrial Fibrillation. It was when I started to go through this particular list that I started to feel like I had stepped into the twilight zone. The lady from whom we bought our house had Parkinson's, and I saw a tiny piece of that that did to her. It is a horrible disease (most of the diseases OHS claim to treat are horrible. This seems to be deliberate). To think that these people are selling the list below (read it) as a "completely guaranteed and clinically proven herbal supplement that helps patients overcome the symptoms of Parkinson's Disease" just makes me want to vomit. Apparently, if I took some parkotab, I might do just that! Read on if you have the stomach for it:

Salvia Haematodes: (from a PubMed article) The aqueous extract of the root of Salvia haematodes has been investigated for its pharmacological actions on the cardiovascular and central nervous system. It was found to possess significant cardiotonic and anticonvulsant activities.

Centauria Behan: Centaurea Behen is the correct spelling. A white flower of the knapweed family. Said to be tonic.

Orchis Mascula: The ground-up root (called Salep) is very nutritive, astringent, expectorant and demulcent. It has been used as a diet of special value for children and convalescents,

Delphinium Denudatum: According to an Indian Medical site: "It helps in reducing the inflammation and also helps in relieving pain. It helps in curbing the infection happening in the body and wounds. It is a good nervine tonic and makes the nervous system strong. It improves digestion and normalizes the peristaltic movements in the gut. It stimulates heart for normal functioning and also helps in purifying the infected blood. It checks the respiratory system by expelling out the extra mucus from it. It is a good aphrodisiac agent and also normalizes the menstrual cycle". (I bet the men with Parkinson's will be pleased to have their cycles regulated. Quick! Call Michael J. Fox!)

Myristica Frargrans: Duplicate entry -a mispelling of Myristica Fragrans (i.e. nutmeg) -see below for details

Cinnamonum Cassia: "Chinese cinnamon", a key ingredient in 5 spice seasoning, but has no medical properties that I could find.

Doronicum Pardalia: Thanks to the misspelling of "Doronicum Pardalis" I found this little gem, from our friends at Ark Corporation in Pakistan.

Aren't misspellings fun?!

Doronicum Pardalis: -no such thing. Doronicum is a plant called leopard's bane and Pardalis is a descriptive word meaning well... leopard! (...so that means...what? leopard's leopard's bane? Leopards bane squared? The mind boggles...)

Zingiber Officinale: Common Ginger. It is often used as a natural remedy for stomach upset, motion sickness, and nausea

Asparagus Racemosus: A plant native to India. It is sometimes used to treat dyspepsia.

Paeonia Emodi: The Himalayan Peony. Not only is it purty,

it actually has a significant effect on the Central Nervous System.  Read this.

I don't know if this is necessarily a beneficial effect for Parkinson's sufferers, however...

Serpentine Bezoar:  It sounds like something out of Harry Potter, right? And it almost is. A bezoar is a mass found trapped in the digestive tract of an animal. A hairball is the most common kind (Yum!).

I couldn't find much information about serpetine beozar (outside of references on various OHS sites). I imagine most of the big ones would end up in a serpentine shape (think about it), as opposed to a having been taken from a snake's digestive tract, although maybe that's what they mean. Either way, I am not impressed.

In the middle ages, Beozars were highly prized and considered to be an antidote to any poison; -which theoretically makes it a good thing to put in this particular formulation,  given some of the other ingredients therein (see further down the list). But that myth was debunked in 1575.

Pearl Oster: This may refer to the remains of this woman (at this point, I wouldn't put anything past Oslo Health Solutions!)

...or it could mean "Pearl Oyster". This in turn, could either mean pearl oyster mushrooms, or it could refer to actual ground-up pearls (less likely).

Caryophilus Aromaticus, which are cloves

Kushta Qalee: I can't quite figure this one out. It appears to be some kind of substance popular for male performance improvement, It is used in several such products including  Ejacutab!  (hey look! There's the laughing couple again!)

Stychnos Nuxvomica: Misspelled. This refers to Strychnos Nux-Vomica, which is a product of the Strychnine tree. (Yes, really! Nux Vomica = poision nut!) According to the Internet, It can actually be used to treat flu, fatigue, hangovers, stress, headache and sleeplessness

...and to kill people, of course. Let's not forget that.

Asphaltum: No. This does not refer to ground-up road. Not quite, anyway. Asphaltum does occur naturally and is sold in India as Shilajit (which means destroyer of weakness in Sanskrit -love that!). According to a site I found "it works as a powerful anti oxidant thereby delaying aging. It is an effective remedy in arthritic conditions like rheumatoid arthritis, osteoarthritis, gout and other joint related problems and back pain".

Amber Gris: Ambergris occurs as a biliary secretian of the intetines of the Sperm whale and can be found floating upon the sea, or in the sand near the coast . Ambergris has been mostly known for its use in creating perfume and fragrance much like musk. During the Middle Ages, Europeans used ambergris as a medication for headaches, colds, epilepsy and other ailments

Bambusa Arundinacea: Thorny Bamboo. It is used as an aphrodisiac, diuretic, demulcent, tonic, pectoral, stimulant, and antifertility treatment.

Myristica Fragrans: Nutmeg! (known as Jaiphal in India) Jaiphal is a aromatic, carminative, hallucinogenic, stimulant that is considered effective in digestive disorder, de-hydration & skin disorders.

I wanted to continue this exercise. There are at least 8 other formulations that I have not covered. But honestly, I am feeling quite ill right now. I think If before, anyone might have thought there may be something to the claims of Oslo Health Solutions, the idea of giving whale bile, posion, hairballs and unstudied anti-convulsants to someone with Parkinson's disease will make them think again.

There will be a Part III in this series, because I still have some questions which I think are relevant. However, in the meantime, here is a list of even more Oslo Health Solutions products I have found while researching this piece.

Hernotab, Hemotab, Hemnotab, Hemorotab, Ejacutab, Phyratab, Fibritab

Is there no end? ...

Oslo Health Solutions: Preying On The Sick Part I

Every now-and-again, on a support board or some other website, I will run across a person who is asking about a herbal remedy they found on the Internet. Had we heard of it?  Has anyone tried it? Does it work? What are the side effects? Is the money-back guarantee for real?  Now, it very easy for a well person in the cold light of day to spout hackneyed phrases like "stay away from miracle cures" and "if it sounds too good to be true, it probably is". Those who are well and relatively pain-free don't understand the desperation some of us with chronic conditions (and our families) can go through when faced with an incurable condition and very little help. It is easy for the well to warn that cross-border herbal remedies are not regulated and that we have no clue what we might be getting.

Yes, it is easy to say if you are well.

However,  if you are looking down both barrels of a chronically painful and potentially disabling condition like Syringomyelia, for yourself or your child (or your  mother /aunt /brother /grandchild /father /sister /uncle /niece /nephew... etc) and it is three in the morning and you can't sleep for pain and worry, can't find a specialist who knows about the condition within 300 miles and then maybe some of these solutions may seem like they are worth a try.  How many among us would not spend a hundred dollars to try and help a loved one?   

Sick people and their families can be easy pickings for unscrupulous product developers and sales people.  I remember a couple of years ago, -in Feb '07 actually, I came across a product called Syrotab  mentioned on a message board. The product claimed that  “Syrotab is a completely guaranteed and clinically proven herbal treatment for Syringomyelia.

An admitted bold claim, but they say they can back it up.

If you look at the web site for Syrotab, it looks legit. 

 

The site is slick and professional looking, with a picture of a beauitful but rather vacant-looking bi-racial woman, flanked by a couple of handsome guys in the background; one serious and one trying to look sincere. The site has a short but accurate description of what Syringomyelia entails and then they get to their -self-acknowledged "bold" claims of treatment (not cure!) within a few weeks. They back up these claims with promises of clinical trials and money-back guarantees up the wazoo.

Back in February '07, I did some analysis on Syrotab.  I checked their site to try and find details on their clinical trial results. but the link said it is "coming soon"  For a laugh, I checked again today. Guess what?  It is still  "coming soon"!  Shocker!   Did you ever hear the Jamaican expression "Soon Come" (i.e. never)?   Yep. It's the same deal.

Back in '07, I cut and pasted some text from their website:

“Syrotab is a completely guaranteed and clinically proven herbal treatment for Syringomyelia.

It consists of a formulation consisting of purely natural ingredients based on the Unani (Greek) system of herbal medicine blended together in a specific proportion to fight and treat Syringomyelia effectively.

Thousands of patients have been successfully treated with Syrotab over the past few years. Syrotab is a completely outstanding product and there is absolutely no alternative to its unique formula. Had the effectiveness of Syrotab not been proven beyond any doubt, it would not be possible for us to make such a bold claim.

The main ingredients of Syrotab tablets are:
Magnesium Murakab
Zinc Murakab
Berberis aristate Ext
Egg Shell Calcium
Sulphur
Substituted olive Oil

The exact proportion of each ingredient has been deliberately kept secret to avoid imitations of our confidential formula.
Treatment with Syrotab is very rapid obvious results can be noticed within 40 days of use. A complete course of treatment lasts three months.

Syrotab is taken in an oral pill form and the normal dosage is two tablets twice a day, mornings and evenings. There are absolutely no side effects and the treatment is safe and sold over the counter.

Syrotab comes for a fixed price of $230 for a one month supply….”  Update: the price is now $79.99.  Bargain!     ...NOT!

I researched some of the ingredients mentioned, which was an education in itself.  I will get into all of that in part two of this piece.

When researching these ingredients, I came across something very interesting.  Amylotab! Here again, was my friend,. the vacant biracial woman.

...and here is the text from the "about Amylotab" page...

 
Amylotab is a completely guaranteed and clinically proven herbal treatment for Cutaneous Amyloidosis.

It consists of a formulation consisting of purely natural ingredients based on the Unani (Greek) system of herbal medicine blended together in a specific proportion to fight and treat Cutaneous Amyloidosis effectively.

Thousands of patients have been successfully treated with Amylotab over the past few years. Amylotab is a completely outstanding product and there is absolutely no alternative to its unique formula. Had the effectiveness of Amylotab not been proven beyond any doubt, it would not be possible for us to make such a bold claim.

The main ingredients of Amylotab tablets are:

Magnesium Murakab
Zinc Murakab
Berberis aristate Ext
Egg Shell Calcium
Sulphur
Substituted olive Oil

The exact proportion of each ingredient has been deliberately kept secret to avoid imitations of our confidential formula.

Treatment with Amylotab is very rapid obvious results can be noticed within 2 months (60 days) of use. A complete course of treatment lasts four months.

Amylotab is taken in an oral pill form and the normal dosage is two tablets twice a day, mornings and evenings. There are absolutely no side effects and the treatment is safe and sold over the counter.

Amylotab comes for a fixed price of $290 for a one month… (now a virtual bargain at $79.99!)

I saw a theme emerging. Something smelled very fishy indeed.  I did some more searching and found  Osteotab

It was probably a mistake on my part. But at that point I left the whole business behind me, thinking it was small scale and well, that it wasn't really my problem. Surely some other people would come along and blow the whistle on these guys?

Then yesterday, when I got started again on the theme of false miracle cures for a completely unrelated reason, I found all these sites still happily operating. I also found this!

 

 

Oh no, they Di-n't!!      (Oh yes. They did!)

...and after that, I went completely mad on Google using all sorts of combinations of keywords and search strings. I hit the motherlode!  I have summarized and collated the data.  The list is at the end of this piece with links and all that good stuff.  If you check it out, you will see the evidence is indisputable: Oslo Health Solutions are total rip-off artists.  What makes me so mad is the scale of the operation, as well as the people targeted. Most of the conditions they claim to "treat" are chronic and incurable. many cause serious pain, disability or death.  Talk about preying on the desperate!

Even worse, some of the conditions they claim to "treat" are progressive, dangerous, cancerous  or pre-cancerous. I don't think anyone would be stupid or desperate enough to try one of these treatments in lieu of real medical help. At least I hope not! But then again, there may be desperate people out there with no insurance, who spend what little money they may have on acquiring false hope.

There are two primary templates used on these sites. The most-used by far is the vacant woman one as show previously.  

However there is another template, even more slick,  which I have dubbed the "laughing couple"  (aren't they lovely?)  template. 

 

Although this site looks completely different to the others mentioned so far, read the text: 

Peritab is a completely guaranteed and clinically proven herbal treatment for Peripheral Neuropathy.

It consists of a formulation consisting of purely natural ingredients based on the Unani (Greek) system of herbal medicine blended together in a specific proportion to fight and treat Peripheral Neuropathy effectively.

Thousands of patients have been successfully treated with Peritab over the past few years. Peritab is a completely outstanding product and there is absolutely no alternative to its unique formula. Had the effectiveness of Peritab not been proven beyond any doubt, it would not be possible for us to make such a bold claim.

The main ingredients of Peritab tablets are:

Magnesium Murakab
Zinc Murakab
Berberis aristate Ext
Egg Shell Calcium
Sulphur Substituted olive Oil

The exact proportion of each ingredient has been deliberately kept secret to avoid imitations of our confidential formula.

Treatment with Peritab is very rapid. Obvious results can be noticed within one month of use. A complete course of treatment lasts two months.

Peritab is taken in an oral pill form and the normal dosage is two tablets twice a day, mornings and evenings. There are absolutely no side effects and the treatment is safe and sold over the counter.

Peritab comes for a fixed price of $180.00 for a two months supply (240 Tablets) and can be ordered from our website. We do not charge any shipping price.

Treatment with Peritab is fully guaranteed. We are so confidant about the effectiveness of Peritab, that in the rare case you remain unsatisfied with the improvement in your condition, you may simply return the empty packaging along with the original receipt and claim a refund of the amount you paid us. The guarantee is valid for 120 days from the date of purchase. Since all payments are made via credit card directly to CCNOW (our credit card processing company), your money is completely safe. CCNOW will ensure that we honor all claims for refund. The only condition is that you have to be persistent in your treatment with Peritab for a complete course of the treatment. Skipping pills or being irregular will only delay the treatment.

If it sounds familiar, it is. It is exactly the same wording as for Syrotab, Amyltab, Osteotab, MD-Tab and several others, right down to the ingredients list. A straight cut-and paste job, with just  product name and pricing changed.

 

Proof of Cut and Paste: Check out the title of this "Thyrotab" about page. They forgot to rename it from "Psoriasis Tab"!

Although there is no company name or address listed on the Peritab site that I could find, the "Order Now" button gives it away

CCNow is an authorized retailer for OSLO HEALTH SOLUTIONS

Bastards.

Just to clarify, I think CCNOW is a legit operation, however they don't issue refunds without their client's approval. Their client is Oslo Health Solutions,-not the consumer.  

Do Oslo Health Solutions back up their promises?  Well, this person will never know. OHS never sent the Ptosotab that was paid for.

 

The next person actually received some bottles of pills (I must admit I was surprised to see this) but returned them and got no refund (quelle surprise!).

 

Another report; -this time for Sarcotab:

But what about the clinical research, I hear you ask?  They say there is some.

I didn't check absolutely every site for clinical research, and most of the ones I did check, had the very familiar "will be posted soon" message.  However, Vitiligo Tab (Vitiligo Tab is our 100% guaranteed and clinically proven permanent cure for Vitiligo.) has a research report attributed to Gaurang Clinic and Center for Ayurvedic research. 

I tried to cross reference this by searching Guarang's own site for the paper -I thought they would have it listed among their 49 other reports, but it wasn't. Curious.

Then I read the report. It seemed a bit low on actual research to my somewhat-trained eyes. There is a of information about Vitiglio itself , and some interesting if rather vague claims made.  But the information on the study itself and the findings thereof seemed somewhat hazy. They look great at first blush, but there were some things that seemed a little ...off.  First off, the study was not double-blind. There was no placebo.

Next, I noticed that the report uses a timeframe of 1996-2001. However, Vitiligo Tab -according to the site copyright- wasn't introduced until 2007. Was it in development for 19 years? (no wonder it is so expensive).  And finally, it doesn't say how the results were measured and over what timeframes.  It used terms like "cured" and "90% Improvement, but does not break it down into the different types or extent of vitiligo, which had been painstakingly outlined in the beginning of the paper. It looks like it does: -uses terms like "both sexes are equally affected by Vitiligo"  but it doesn't say how they genders are affected by Vitiligo Tab!  Hmmmm.  

 Psoriasis Tab was another with a research paper published from the same source (different attributed author) 

 

Again, if you read this paper, it is heavy on waffle and very light on actual research and concrete findings. And again, that paper it is not listed on Guarang's site.

I have mentioned a lot of "tabs" in this post, haven't I?  A lot of products called something-or-other-Tab that claims to treat  well... something-or-other?  Do you want to know how many I found?  Almost 50 (forgot to put clustotab on the list). And I don't think I have found them all. Some have been discontinued (like cardiotab) but have left footprints around the web, showing that they *used* to exist. Oslo Health Solution have around 284 domains registered, so I am guessing there are other um.. products out there that I haven't found yet. Anyhoo,  have a little look at this list. It is in alphabetical order. Check the links and see for yourself if you come to the same conclusion that I did. That these people -Oslo Health Systems (formerly Botanical Sources) are total rip-off artists.

Here it is: The Grand List of Oslo Health System's (and related sites) "completely guaranteed and clinically proven" herbal treatments

 This list was last updated on September 7th, 2009. There are almost 300 products on it.

Condition	Product
Abdominal Adhesions	http://abdotab.com/about_tab.html
Acanthosis Nigricans	http://nigratab.com/about_tab.html
Achlasia	http://achlotab.com/about_tab.html
Acrocyanosis	http://nansotab.com/about_tab.html
Acute Broncitis	http://bronchitab.com/about_tab.html
Adenopathy	http://adnotab.com/about_tab.html
Adhd	http://hypotab.com/about_tab.html
Adrenoleukodystrophy	http://adrenotab.com/about_tab.html
Agalactia (lack of breast milk)	http://milkotab.com/about_tab.html
Age-Related Macular Degeneration	http://sightotab.com/about_tab.html
Alkaptonuria (genetic)	Alkotab.com (site not available)
Allergic rhinitis	http://rhinotab.com/about_tab.html
Alopecia	http://alotab.com/about_tab.html
ameloblastoma	http://blastotab.com/about_tab.html
Amenorrhea	http://amenotab.com/about_tab.html
Amlyoidosis	http://amylotab.com/about_tab.html
Angina	http://angiotab.com/about_tab.html
Anginoedema	http://dematab.com/about.html
Angionma	http://hematab.com/about_tab.html
Anklyosing Spondylitis	http://spondotab.com/about_tab.html
Anorectal Fistula	http://anoratab.com/about_tab.html
Antiphospholipid Syndrome	http://phosphitab.com/about_tab.html
Aquagenic Pruritus	http://aquitab.com/about_tab.html
Arachnoid cysts	http://archotab.com/about_tab.html
Artery stenosis	http://stenotab.com/about_tab.html
Ascites	http://ascotab.com/about_tab.html
Asthma	http://asthotab.com/about_tab.html
Atelectasis	http://atelotab.com/about_tab.html
Atherosclerosis	http://atherotab.com/about_tab.html
Athlete's foot	http://athletab.com/about_tab.html
Atrial Fibrillation	http://fibritab.com/about_tab.html
Autoimmune Hemolytic Anemia	http://hemotab.com/about_tab.html
Azospermia	http://spazotab.com/about_tab.html (Spazotab?  Seriously?)
Behcet's Syndrome	http://behcotab.com/about_tab.html
Bell's palsy	http://palsitab.com/about_tab.html
Benign essential blaphasospasm	http://prismatab.com/about_tab.html
Benign essential tremor	http://trematab.com/about_tab.html
Blepharitis	http://belphotab.com/about_tab.html
Blisters	http://blistotab.com/
Blood in the Semen	http://silutin.com/
Bone and Joint Tuberculosis	http://tb-tab.com/
Bone Degeneration	http://genratab.com/
Bowen's Disease	http://bonatab.com/
Bradycardia	http://bradnotab.com/
Breath odor	http://odutab.com/
Bromhidrosis	http://bromotab.com/
Bronchiectasis	http://bronchotab.com/
Bulima	http://balmotab.com/
Bullous pemphigoid	http://pemphitab.com/
Burning mouth syndrome	http://burnatab.com/
Canker sore	http://cankertab.com/
Carcinoid syndrome	http://carcotab.com/
Cardiomyopathy	http://cardio-tab.com/
Cataract	http://catratab.com/
Cellulitis	http://cellutab.com/
Cerebal palsy	http://palsotab.com/
CerebraxReiter's Syndrome	http://reitotab.com/
Cervical spine ( i.e. "neck"!)	http://vercitab.com/
Cervical Spondylosis	http://cervotab.com/
Cervicitis	http://cervitab.com/
Cheilitis	http://cheilotab.com/
Chloracne	http://chloratab.com/
Chondromalacia Patellae	http://chondrotab.com/
Chordoma	http://chordotab.com/
Cluster Headache	http://clustotab.com/
Condyloma	http://condytab.com/
Congestive Heart Failure	http://cardotab.com/
Constipation	http://constitab.com/
Cronkhite-Canada syndrome	http://cronkatab.com/
Cushings disease	http://hisnotab.com/
Cyclic Vomiting Syndrome	http://nausitab.com/
Dandruff	http://danditab.com/
Dacryocystitis	http://www.dacrotab.com/
Dark Circles	http://clearotab.com/
Deep Venous Thrombosis	http://thrombitab.com/
Delayed Ejaculation	http://ejacutab.com/
Dermatomyositis	http://myotab.com/
Diabetes Insipidus	http://insitab.com/
Diverticular Disease	http://divutab.com/
Drematofibroma	http://ridmotab.com/
Drooling	http://droolotab.com/
Drug Induced Liver Disease	http://livnitab.com/
Dysfunctional Uterine Bleeding	http://uterotab.com/
Dyshidrosis	http://hidrotab.com/
Dyspepsia	http://dyspitab.com/
Eczema	http://eczitab.com/
Ehlers-Danlos syndrome (EDS)	http://danlotab.com/
emphysema	http://emphotab.com/
Enlarged Tonsils	http://tonsotab.com/
Eosinophilia	http://eosiotab.com/
Epididymitis	http://epotab.com/
Erysipelas	http://eritab.com/
Erythema multiforme	http://emutab.com/
Erythroderma	http://erythrotab.com/
Erythromelalgia	http://meoltab.com/
Eyelid ptosis	http://ptosotab.com/
Fahr's Disease	http://fahrotab.com/
Fatty liver	http://faltotab.com/
Fibroadenoma of Breast	http://fibrotab.com/
Fibrocystic Breast Disease	http://fibrangin.com/
Flatulence	http://flatotab.com/
Folliculitis	http://follitab.com/
Formaldehyde poisoning	http://formatab.com/
Friedreich's Ataxia	http://ataxotab.com/
Frostbite	http://frostab.com/
Frozen shoulder	http://frozitab.com/
Ganglion cyst	http://ganglitab.com/
Gastritis	http://gastritab.com/
Gastro paresis	http://gastrotab.com/
Gilbert's Syndrome	http://gilbotab.com/
Gingivitis	http://gingotab.com/
Glaucoma	http://glaucotab.com/
Globus hystericus	http://globutab.com/
Glossopharyngeal Neuralgia	http://glossotab.com/
Gonorrhea	http://gonorrhotab.com/
Granuloma annulare	http://granutab.com/
Grave's disease	http://gravitab.com/
Grover's Disease	http://grovatab.com/
Guillain-Barre Syndrome	http://guillatab.com/
gynecomastia	http://gynetab.com/
Hand tremors	http://tremitab.com/
Hearing loss	http://sonitab.com/
Hemmorhoids (what, no Pileen?)	http://hemorotab.com/
Hepatic Hemangioma	http://hematab.com/
Hereditary Fructose Intolerence	http://fructotab.com/
Hernias	http://hernotab.com/
Herpes Simplex and Zoster	http://herpotab.com/
Herpetiform dermatitis	http://formotab.com/
Hidradenitis Suppurativa	http://hidratab.com/
Hives	http://hivotab.com/
Hookworm	http://hooknotab.com/
Horner's Syndrome	http://hornotab.com/
Hydrocele	http://hydrotab.com/
hydrocephalus	http://hydra-tab.com/
Hydronephrosis	http://nephratab.com/
Hyperhidrosis	http://anti-sweat.com/
Hypertension	http://nervotab.com/
Hypertensive retinopathy	http://retinotab.com/
Hypotension	http://pentotab.com/
Hysteria	http://hystotab.com/
Ichthyosis	http://ichnotab.com/
Idiopathic Thrombocytopenic Purpura	http://thorsatec.com/
Iga Nephropathy	http://iganotab.com/
Impetigo	http://impotab.com/
Inclusion body myositis (IBM)	http://mysotab.com/
Intrahepatic Cholestasis of Pregnancy	http://choleotab.com/
Irritable Bowel Syndrome	http://irnatab.com/
Jock itch	http://tinnitab.com/
Keloids	http://kelotab.com/
Keratoacanthoma	http://keratotab.com/
Leg ulcers	http://lu-tab.com/
Lennox Gastaut Syndrome	http://lennotab.com/
Leukemia	http://leukotab.com/
Lichen Planus	http://lp-tab.com/
Lichen Simplex Chronicus	http://lichnotab.com/
Lipoma	http://limpotab.com/
Liver cirrhosis	http://cirrhotab.com/
Liver cyst	http://livotab.com/
Low back pain	http://back-tab.com/
Lymphadenitis	http://lymphatab.com/
Malabsorption	http://sorbotab.com/
Male Infertility	http://fertotab.com/
Mastitis	http://mastotab.com/
Melasma	http://melasma-tab.com/
Meniere's Disease	http://menrotab.com/
Menorrhagia	http://menotab.com/
Mental Retardation (Grrrrr)	http://retratab.com/
Molluscum Contagiosum	http://molsitab.com/
Motor Neuron Disease	http://mototab.com/
Multiple System Athrophy	http://atrophtab.com/
Muscular Dystrophy	http://md-tab.com/
Muscular Fasciculation	http://fascitab.com/
Myasthenia Gravis	http://mg-tab.com/
Myelitis	http://myelitotab.com/
Myocarditis	http://carditab.com/
Myopic degeneration	http://mydotab.com/
Narcolepsy	http://narcotab.com/
Nasal Polyps (Note Correct Spelling)	polytab (reassigned)
Nephrotic Syndrome	http://nephrotab.com/
neutropenia	http://neutrotab.com/
Obesity	http://obesotab.com/
Optic atrophy	http://atrotab.com/
Osteo necrosis	http://ostotab.com/
Osteomyelitis	http://osteotab.com/
Osteoporosis	http://ostatab.com/
Otitis media	http://otiotab.com/
Pancreatitis	http://pancrotab.com/
Papular Urtucaria	http://paputab.com/
Parkinsonism	http://parkotab.com/
Paroxysmal Tachycardia	http://tachratab.com/
Pelvic Inflammatory Disease	http://pelvotab.com/
Pemphigus	http://pemphotab.com/
penumothorax	http://pneumotab.com/
Peptic ulcer	http://peptotab.com/
Periodontitis	http://periotab.com/
Peripheral Neuropathy	http://peritab.com/
Peyronie's Disease	http://pyrotab.com/
Pharangitis	http://phyratab.com/
photodermatitis	http://dermotab.com/
Photosensitivity	http://seenotab.com/
Pick's Disease	http://picknotab.com/
Pityriasis Alba	http://albatab.com/
Pityriasis Roseca	http://rosotab.com/
Pneumothorax	http://pneumotab.com/
Polycystic Kidney Disease	http://cystotab.com/
Polycythemia Vera	http://pv-tab.com/
Polymyalgia rheumatica (PMR)	http://myalatab.com/
Polyps	http://colotab.com/
Porphyria (All 6 kinds?)	phyrotab (not available)
Postconcussion syndrome	http://concutab.com/
Post-Polio Syndrome	http://pp-tab.com/
Post-traumatic Syndrome	http://traumatab.com/
Precocious puberty	http://pubotab.com/
Pre-eclampsia (pregnancy complication)	http://clamotab.com/
Premature Gray Hair	http://melatab.com/
Pressure Ulcer	http://press-tab.com/
Priapism	http://priatab.com/
Prickly heat	http://pricknotab.com/
Pruritus Ani	http://prurotab.com/
PseudoTumor Cerebri	http://pseudotab.com/
Raynauds Syndrome	http://raynotab.com/
Rectal prolapse	http://rectotab.com/
Renal Artery Stenosis	http://stenotab.com/
Renal Failure	http://renotab.com/
Restless Leg Syndrome	http://restotab.com/
Retinal Vein Occlusion	http://occlotab.com/
Retinitis Pigmentosa	http://retnitab.com/
Rheumatoid Arthritis	http://arthotab.com/
Ringworm	http://ringotab.com/
Rosacea	http://rosatab.com/
Salivary Duct Stones	http://ductotab.com/
Schistosomiasis	http://schistotab.com/
Schizophrenia (now that is dangerous!)	http://schizotab.com/
Sciatica	http://sciatab.com/
Scleroderma	http://sclerotab.com/
Sebaceous Cyst	http://sebatab.com/
Seborrheic Keratosis	http://sebotab.com/
Sensitive Teeth	http://sensotab.com/
Shingles	http://shingotab.com/
Sick Sinus Syndrome	http://sindrotab.com/
Sinus Tachycardia	http://tachytab.com/
Sjogrens Syndrome	http://sjorgotab.com/
Skin Abscess	http://absotab.com/
Skin Tags	http://tagnotab.com/
Soft Tissue Sarcomas	http://sarcotab.com/
Spasmodic Dysphonia	http://dysphotab.com/
Spider Veins	http://telitab.com/
Spinal Muscular Atrophy	http://muscotab.com/
Stroke (...REALLY?)	http://strototab.com/
Sunburn (check the privacy policy)	http://bursitab.com/
Syringomyelia	http://syrotab.com/
Teething troubles	http://dentotab.com/
Temporomandibular Joint Syndrome	http://tempotab.com/
Tetanus	http://tetnatab.com/
Thalassemia minor	http://thalsotab.com/
Thrombocythemia	http://thrombotab.com/
Thyroid Nodule	http://thyrotab.com/
Thyroiditis	http://thyrodin.com/
Tick Bite	http://ticknotab.com/
Tinea Versicolor	http://tineatab.com/
Tinnitus	http://tinnutab.com/
Trigenimenal Neuralgia	http://trignotab.com/
Trimethylaminuria	http://lamnitab.com/
Ulcerative Colitis	http://coliotab.com/
Undescended Testicle	http://testitab.com/
Upper Gastrointestinal Bleeding	http://gastrobat.com/
Urethritis	http://urethrotab.com/
Urticaria Pigmentosa	http://carcitab.com/
Uterine Fibroids	http://utritab.com/
Uterine Prolapse	http://utrinotab.com/
Uveitis	http://uveinotab.com/
Vitreous Hemorrhage	http://vitrotab.com/
Vocal Cord Nodules	http://nodutab.com/
Vocal Cord Paralysis	http://vocotab.com/
Von Willebrand Disease	http://willetab.com/
Vulvovaginitis	http://vagnotab.com/
Vulvular Dystrophy	http://dystrotab.com/
Waldenstrom's Macroglobulinemia	http://waldotab.com/
Warts	http://wartotab.com/
Wilson's Disease	http://wilsotab.com/
Wiskott Aldrich Syndrome	http://wiskotab.com/

I have figured out that Oslo Health Solutions and their affiliates use around 13 different formulations to "treat"  over 60 different diverse ailments. I will discuss these in Part II.

Stay tuned.

Frug: A Limbrel Review, Part I

I mentioned that I have started taking Limbrel for the arthritis in my hands.  Limbrel is officially approved for the treatment of osteoarthritis, However, we are not sure if this is the type of arthritis I actually have (me being me: test results indicate little wrong, but clinical presentation and pain say otherwise). I think my poor rheumy is desperate at this point, because my hands are getting worse, and nothing that has helped has been tolerated by my body (which appears to be the story of my life).

Limbrel is a new product. Not many people are taking it yet. So I thought I would write a little review here and document my progress on OSM for those of you who might be interested.

But before I do that, I am  going to explore Limbrel itself, how it came about, and why is it classified and marketed the way it is.

Limbrel is an interesting product. It is not considered a drug. It may sound like a drug; -with a generic name (flavocoxid) and everything. It may look like a drug (see picture of druggy looking product and packaging).  It is only available by prescription here in the USA. However, It is actually is classified -not as a drug- but as a "medical food product".

What the fuck does that mean? I hear you ask?  Indeed, I said it to meself. So I tried to find out.

According to the FDA, as defined in in section 5(b) of the Orphan Drug act (Orphan drugs! This is getting better already! Are they drugs without parents or drugs for kids without parents?  I have no parents, so I probably qualify either way...  but I digress...) a medical food product is:

a food which is formulated to be consumed or administered enterally under the supervision of a physician and which is intended for the specific dietary management of a disease or condition for which distinctive nutritional requirements, based on recognized scientific principles, are established by medical evaluation.

Huh?

So by these guidelines, shouldn't Ensure be a medical food? Or the ketogenic diet? -or a lowfat diet, for that matter?  Indeed,  all food -if you think about it, is to manage a specific medical condition called malnutrition.  Naturally, some works better than others in achieving this end (resulting in many morbidly nourished people in this country -but that's a whole 'nother post!).

Where is the line between "food" and "medical food"? Indeed, where is the line between "medical food" and "nutritional supplement"? Because although Limbrel  looks like a drug, the descriptions sound more like a nutritional supplement to me. See for yourself. This is an excerpt taken from the official site:

Limbrel contains flavocoxid, a proprietary blend of natural ingredients from phytochemical food source materials. Flavocoxid is comprised primarily of the flavonoids such as baicalin and catechin. These or similar ingredients can be found in common foods such as soy, peanuts, cauliflower, kale, apples, apricots, cocoa and green tea. The fact that these and similar ingredients have been widely researched and used in medicinal products in other countries also supports biacalin and catechin’s safety and effectiveness. Limbrel provides levels of these flavonoids needed to meet the distinctive nutritional requirements of people with osteoarthritis and cannot be obtained through simply changing the diet.

Hmmm.  So it is a food and not a drug because it is a naturally occurring product which is extracted from plants.  Ah! OK then.

But hang on a minute: Morphine is extracted from the dried milky exudate of the unripe seed capsule of the opium poppy (Papaver somniferum). (-I found that definition on a web site, BTW. OSM has pretty good English, but "exudate" is not a word I use daily. Nor is "somniferum" -but I kind of like it!).  So Morphine is a natural plant extract, too. Why then is Morphine, which is a natural plant extract, classified as a Schedule II narcotic drug, and Limbrel, which is also a natural plant extract, classified as a medical food?  Indeed, why is St. John's Wort, which is also a natural plant extract, and only available by prescription in Ireland, classified as a "nutritional supplement" (i.e even lower on the totem pole than "medical food" ) and available over-the-counter here n the US? 

It's all quite confusing, really.

OK. Let's get the simple explanation out of the way first: One keyword is "narcotic"  Morphine is narcotic, which according to Dictionary.net means:

A drug which, in medicinal doses, generally allays morbid susceptibility, relieves pain, and produces sleep; but which, in poisonous doses, produces stupor, coma, or convulsions, and, when given in sufficient quantity, causes death.

Death is not a good side effect. Nor is addiction, which is the other big thing with narcotics. I can understand why morphine would be regulated so closely. You can't really sell it in the vitamin aisle.

So taking this same logic: Is Limbrel a food, not a drug because it is not addictive and cannot be overdosed on? So if I happened to down me entire bottle of Limbrel in a single sitting, does this mean I wouldn't get seriously ill or die?  This is not a theory I intend to ever test, BTW; -especially given the side effects I have experienced on just the regular dose (more on this later), but I am thinking out loud here.

And what about St. John's wort (SJW)?  That is available on the supermarket shelf and you can overdose on that. An overdose can cause Seratonin Syndrome, which is dangerous.

Symptoms of serotonin syndrome include:

 

• Confusion
• Seeing or hearing things that are not really there (hallucinations)
• A fast heartbeat (tachycardia)
• Feeling faint
• Fever
• Sweating
• Muscle spasms
• Difficulty walking
• Diarrhea.
   

In one reported case, an overdose of St. John's wort caused seizures.

But SJW is not regulated as heavily as Limbrel is. SJW is not classified as a "medical food" but as a nutritional supplement, and is therefore available in me local supermarket, parading merrily on a shelf my kids can easily reach.

Hello, FDA?  Here is a new word for you: Consistency.

I am still curious why Limbrel walks like a drug and talks like a drug but is not a drug?  I did a little patent search: Limbrel has two so far; this one  and this one  and a couple pending.  I suspect the answer is the simplest one:

Money.

If you control the patent and the product, -especially with the backing of the FDA, you become the sole and defacto supplier for 50 years.  It's a really clever move.  If Limbrel was simply marketed as a nutritional supplement, it would lose a lot of cachet -AND it would mean open season for competitors.  Getting classified as it has been was pure genius. Not only for the patent and FDA protection, but because most consumers think "prescription" means "better".

Limbrel was developed by Primus Pharmaceuticals, a private company run by a bunch of late-middle-age-to-mature white guys. As it is private, I can't get hold of their financial reports, which is a shame. I was pretty curious about some of their activities. I am particularly interested to see how they managed to make a common substance found in everyday food into a prescription product.  I strongly suspect their real genius lies in management, marketing  and lobbying, not in science.   I could be wrong, of course. OSM is rather known for her cynicism.

I tried to find some evidence to back me suspicions, thinking I would unearth a huge amount of political contributions, but I only found a few campaign contributions by JD Weir, who is the Head Honcho  there (although I'm sure that's not what it says on his business cards) to support some local right-wing republicans. No big surprise there.  I'm sure the real money was hidden behind some ostensibly independent lobbying group.

I'll have to dig a little deeper.

You know the biggest irony is the amount of time this piece has taken me to write. There is a simple reason for this. My hands are KILLING me at the moment. I have had to take many breaks, and slather on the Voltaren gel. The irony of this is not lost on me. I aggravate the inflammation by writing about Limbrel, so I need Limbrel to combat the inflammation.

It's messed up.

As to how I am doing with Limbrel? Well,  It is early days yet -not even a week. As it is not a drug, I was told not to expect results immediately. I have mainly had side-effects so far: upset stomach and noxious flatulance that could clear the mall in record time. I was told this is my body being "cleansed of toxins" I don't know if I buy that or not, but I am giving it more time, but not much. If the toxins aren't out soon. Himself will leave me and the children and animals will go with him. 

BTW my new name for Limbrel the half-food/half-drug is this:

Frug.

It sounds filthy, doesn't it? Time will tell if it is.

A Different Kind of Autism Awareness Day Post

This is not a standard Autism Awareness Day post. In this post am I advocating a different kind of Autism awareness.

I want to address this piece directly to those of us who have neurological and developmental differences: Those with Autism (all forms), AD(H)D, Tourettes, OCD, ODD, NVLD, SPD/SID:

Have pity on the Neurotypicals (NTs). They are in decline.

Look at the rate at which our population is growing: In 2004, Autism impacted one person in 166. In 2007 it was 1 in 150.  If we follow this growth in a linear pattern, Autistics will outnumber the normies around 2036. That's just Autism, of course. If you factor in the other stuff, particularly ADD and ADHD, which is about 3% of the current population, the timeline is shorter.

It's scary, right?  In about thirty years,  we will be in charge.  We really should start planning now. First of all there is the name: By 2036, We will be the neurologically typical.  So we need a new name for them. I think we may want to consider "Neurological Throwback". This way the acronym stays the same, which will provide some continuity and should prove useful for all sorts of reasons.

We need to be kind to the NTs that remain, especially the children, who will probably suffer the same isolation and confusion that we remember from our own childhood. We should try and learn their ways, and do our best to help them fit in. We should try to understand their insistence on timliness and routine (if we have ADHD) and their constant changing of routines (if we are Autistic).  We must try and learn some of their social customs: like smalltalk -just to keep them comfortable. It is amazing how may NTs wish to discuss the current weather; -as it that were more than a two or three word conversation; as opposed to global weather patterns over the past 100 years, which is far more interesting.  We should bear this in mind.  And they also have this curious obsession with "eye contact", so although this is extraordinarily distracting for many of us, we should make an effort. After all, many of them fought very hard for us. OK it was mostly our parents, but still. We should return the favor. Pay it forward, as it were.

I guess they need a ribbon too. I like the AIDS ribbon. It is pretty.  If AIDS is cured by 2036, I think the NTs should have that one.  The other glaring option of course, is the "puzzle ribbon". We won't need a ribbon anymore, as we will be setting the policy. But... I don't know. Personally I wasn't a big fan of the puzzle ribbon. Well, let's see if it fits.  Here is the ADA's explanation of the symbolism.

The puzzle pattern reflects the mystery and complexity of the autism spectrum. The different colors and shapes represent the diversity of the people and families living with the condition. The brightness of the ribbon signals hope—hope that through increased awareness of autism, and through early intervention and appropriate treatments, people with autism will lead fuller, more complete lives.

Personally, I think that's a bit insulting.  But technically, if you substitute "Autism Spectrum for "Neurological throwback", it almost fits:

The puzzle pattern reflects the mystery and complexity of the Neurological Throwback. The different colors and shapes represent the diversity of the people and families living with the condition. The brightness of the ribbon signals hope—hope that through increased awareness of NTs, and through early intervention and appropriate treatments, people who are neurological throwbacks will lead fuller, more complete lives.

Well, maybe not...

Another option would be to just go for a ribbon that it the opposite of Autism. How about plain gray?  A plain gray ribbon to represent the inpeneratrable fog that is the NT mind/communication style  when seen from an Autistic point of view. Hmmm. It's a definite possibility.

Education of NTs will be important, The population shift will occur among the youngest kids first (obviously) so we need to start thinking about the schools NOW.  IDEA will need to be completely re-vamped (as will the ADA). We should devote more schools purely to what used to be called "Special Education" and ramp up or programs for ABA, speech therapy, occupational therapy etc therein. In fact, we probably need to redesign a lot of these schools from the ground up for lighting, seating, noise pollution and other sensory distractions. We could leave a few classrooms in the old style of desks, bright lights and bright colors for the remaining NT students and teachers. We may even devote a few special schools just for the teaching of NT students, as verbal-based learning will become more and more specialized in the future.

With that in mind, we should have existing NT teachers document NT learning styles and design appropriate curricula for future use, as the Autie/Aspie teachers of the future may have difficulty understanding and teaching these kids.   

We can start thinking now about assigning a World Neurothrowback Awareness day. I propose we just give them this one: April 2nd. After the population shift, we won't need it anymore. They can have it. 

So today: April second is Autism Awareness day. It is the day that all of us on the Autistic Spectrum (or related disorder)  should be aware of our future responsibilities, and to start preparing to accommodate the dwindling population of Neurothrowbacks. Our time is fast approaching.  I don't think the world is nearly ready.

Think about it.

Something + Nothing = ?

Saw the rheumy yesterday.  No more NSAIDs for me. Now she is unsure what to do to help me.  As usual OSM was the one to have to get creative:  I asked if she thought a histamine reaction could have triggered that flare. She jumped on that one like a sailor on an Amsterdam hooker.   YES!  that could cause it.  Then she set about recommending OTC remedies for the next outburst  "but check with your GI guy first"  (Hey! she used my blog name for him! thought I).  Of course, next flare will come, I will load up on Benedryl and I will probably end up both in pain AND loopy.  We shall see...

We talked about supplements and all that and I mentioned that I no longer eat during the day.  She was horrified.  "But that's so bad for you! Metabolically, that's the worst thing you can do!" I know all that already, of course. But what choice do I have? If I eat during daylight, I have a reaction. I have been feeling better since NOT eating, so guess what? I'm sticking with it until someone else can come up with a usable plan. 

Then she asked if I had tried any natural remedies for seizures?  I haven't tried any. I know of some. A very nice lady contacted me through this blog and mentioned some to me, and I thought about it. Actually, now that the monsters are back in school I may be able to give them a try, but I was not willing to risk it otherwise.  I have such bizarro reactions to everyday stuff, sometimes, God knows what they could  do to me! Really. Taking almost anything other than straight minerals and vitamins is a crap shoot with me.

I 'splained all this to the rheumy, and she was a bit incredulous.  "But if they are ...NATURAL?  What harm can they do?"  And I responded, "Morphine is natural, but I'm not taking that. either!" She was a little miffed but she got the point.

Today the GI guy got back to me with my biopsy results. They found something and nothing.  No celiac (Hurray!). No carcinoid tumors (but I knew that already. Had been tested for those by the endo... But Hurray anyway!).   I have the ulcer they saw already. And Gastritis! And some other "itis" (he was talking too fast for me to write it down) And I have a bacteria.  In my gut!  I was hardly amazed at that news. I mean don't many of us take bacteria for our digestion? Isn't "probiotics" a fancy term for "bacteria"?  But apparently this particular bacteria is Not a Good One. It is a Bad One called helicobacter pylori.  The GI guy seemed quite excited about this: "You need to come in next week and we will start treatment. This could explain some of your symptoms!"  He very kindly spelled it for me and told me to look it up. I thanked him, hung up the phone and looked it up. 

I was instantly disappointed. Instantly! Helicobacter pylori it is a bacteria found in the stomach of 50% of the world's population. So me and approximately 3,363,127,098 other people have this bacteria. Do any of these other people have the same issues I do? I doubt it. Anecdotal evidence suggests that most of them eat just fine without having fits or falling unaccountably asleep.   But most of them don't also have my other conditions. Maybe I have hit on some formula. Some magic combination of conditions.  I broke things down a bit more.

Approximate number of people beside me who have H-pylori: 3,363,127,098
Adjusted for Ehlers-Danlos Syndrome: 672,625.4   Hmmmm.
Adjusted for idiopathic syringomyelia: 0.37
OK that's too low. That's not even a person! Or if it is a person, it's a primordial dwarf, and I definitely don't have that. Maybe the syringomyelia is a red herring? I'll take it out.
We are back to: 672,625.4
Adjusted for reactive hypoglycemia: 33,631  -and that is generous.

The other stuff; the vitamin deficiencies etc, could theoretically have been caused by the bacteria, so I left them out.

OK 33 thousand throughout the world is not too many people. And if I adjust it for things like gender/age range/ race, the number is even lower. But still: It is a common bacteria. If it was responsible, surely this would have been documented somewhere? I did some more research on it: Absence of H-pylori (I feel we are on first-name terms now, because I researched it so much today) has been linked to GERD.  OK so that didn't yield much.

I searched on helicobacter pylori and seizures.  Apparently some forms of intractable epilepsy have been linked to H-pylori.  Hmmmm.  Couldn't get into the articles without paying, so I didn't get to the part where they got rid of the h-pyloroi and ...  then what?  Did the seizures stop or continue?  Were the people able to return to their lives? Cliffhanger! But that looks like a promising lead. I hope the GI guy has some time on his hands over the weekend and a few good subscriptions.

And there were some other interesting leads, too.

But you know; I am not getting my hopes up. I have been through this too many times: I go to a doctor, they find something (or think they find something), they treat (test for) the something and it either turns out to be nothing.  Or worse: It IS something, but it is not causing my symptoms.  This is how I have amassed such a huge list of diagnoses. Each new specialist just piles a new one on. But then it turns out that the new diagnosis has NOTHING to do with me seizures.  And I am back to square one, but now with yet another diagnosis and I am  a little more educated, a little more deflated, a little more hopeless, a little more scarred...

...and a LOT more cynical.

Not this time, my friends. This time I am expecting NOTHING. Except maybe GERD.  Knowing my luck, that's what will happen.

Nothing + GERD  = ...OSM?

Autism And Schizophrenia Linked! Part III

(This is the third of a three-part series. The full version is available under the "Articles.." section <-- to your left)

I want to make a few things clear here: I am not claiming that every parent in this study who was diagnosed as schizophrenic was misdiagnosed. I don’t doubt that there could be a correlation between schizophrenia in parents and Autism in their children. However, I am saying that any correlation this study claims is probably not nearly as strong as suggested. I suspect that it is highly probable given the timing of the study and the diagnostic tools available at the time, that at least some of the parents may in fact have Autistic Spectrum Disorders (ASDs) as opposed to true schizophrenia.

 Here is the core problem as I see it: Dr Daniels is an epidemiologist. Nothing wrong with that at all.  Here is MedicineNet’s definition of the same.

Epidemiologist: A person engaged in epidemiology (not confined to epidemics). Epidemiologists include people with an M.D., Ph.D., D.P.H. (Doctor of Public Health), M.P.H. (Master of Public Health), R.N., and a number of other degrees.

So I suppose Epidemiologists are kind of like the actuaries of the medical world. They assess risk. They are essentially number crunchers, not diagnosticians. They are much needed to track progression and potential  distribution patterns of transmissible diseases such as flu and SARS. Their science works very well for this kind of information, because most of these diseases tracked are easily identifiable, and there are definite tests for them.

However applying the principles of epidemiology to something like the Swedish data is fraught with error potential. Especially when you consider the timeframe and the fact that several of the diagnoses in question did not exist for a lot of the first generation in the study. I think this means that the data sample is more than likely tainted, and Dr Daniels, -not being a psychologist, a psychiatrist or a neurologist, is not qualified to determine which of the cases (sorry . I cannot bring myself to say “cohorts”) in each dataset are real, and which may have been misdiagnosed.

Therefore I think Dr Daniels –in attempting to look purely at numbers- overlooked some circumstance of history and climate in Sweden at the time, and failed to establish if the diagnoses which may have been made years ago would hold up today, given the advances made in psychiatry and the changes in thinking which have transpired in the intervening years.

So in my opinion, the whole study was built on a house of cards. I would love to see someone like Dr Fitzgerald (keep going, he appears a bit later) get a hold of it.

...and speaking of him: I promised you some backup for me theory, didn’t I?

Well, I wondered if my hypothesis could be correct: i.e. that some people with Autism could have been  misdiagnosed as schizophrenic, especially some years ago, before Autism made it onto the map –so to speak. Even today, the diagnosis of psychological and neurological conditions is a tricky business. The DSM, The manual most commonly used in the USA, comes with it’s own set of disclaimers, of which I am sure the following is only one:

This is also an important limitation of the DSM system.   Patients sharing the same diagnostic label do not necessarily have disturbances that share the same etiology nor would they necessarily respond to the same treatment.   It is therefore critical to understand that the diagnostic terms and categories in the DSM represent only our current knowledge about how symptoms cluster together.   We fully expect that, over the coming decades, the DSM system will be radically reorganized as the etiologies of mental disorders become better understood.

Recently, I found an interesting paper published by a couple of my countrymen a few years ago. It is a great read about how Asperger’s syndrome can be mistaken or misdiagnosed, and outlines the potential misdiagnoses and the differentials.  Here is a excerpt from that paper.

Schizophrenia is a disorder in which psychotic symptoms (delusions or hallucinations), thought disorder and so called 'negative symptoms' cause social and/or occupational dysfunction over time. Because individuals with Asperger syndrome have  normal cognitive ability, restrictive behaviours and impairments  in social interaction and communication can be misinterpreted as evidence of schizophrenia. People with Asperger syndrome have difficulty understanding the subtleties of social behaviour, but this should not be confused with evidence of psychotic disorder. In a clinical setting, asking individuals with Asperger syndrome whether they hear voices may induce a positive response, and they might concur that they hear voices "when people aren't there", but they may be refering to the voices of people in an adjacent room. Deficiencies in concrete thinking and in understanding how other minds think may cause patients with Asperger syndrome to misinterpret what is said to them, and they might as a result be labelled paranoid. Misinterpreting social contacts can also lead to inappropriate emotional responses, contributing to this impression. Persons with Asperger syndrome sometimes speak their thoughts out loud, which again can be misinterpreted by a psychiatrist. 

That is interesting, isn’t it?    There’s more..

Schizoid personality in childhood (DSM-IV)
Schizoid personality in childhood is defined by solitariness, lack of empathy, emotional detachment, increased sensitivity, at times paranoid ideation, and single-minded pursuit of special interests. All these features are seen in Asperger syndrome, and comorbid issues (depression or behaviour problems in particular) are likewise similar for both conditions. On the basis of evidence presented in Wolff's (1998) discussion of schizoid personality in childhood, we have concluded that there is significant overlap between schizoid personality in childhood and Asperger syndrome. 

Schizotypal personality disorder (DSM–IV)
The DSM–IV diagnosis of schizotypal personality isorder depends on odd beliefs or magical thinking, bizarre fantasies or preoccupations, odd thinking and speech, odd, eccentric or peculiar behaviour and appearance, lack of close friends and social anxiety. All of these criteria can also occur in Asperger syndrome, and Wolff (1998) regards "Asperger syndrome and schizoid/schizotypal disorders as interchangeable terms that identify roughly the same group of children". The conditions do differ in at least three important respects. First, there appears to be an increased rate of develop-ment of schizophrenia in schizotypal personality disorder. Second, schizotypal personality disorder and schizophrenia co-occur in families and appear genetically related. Third, prospective research of children at high risk of schizophrenia (Erlenmeyer-Kimling et al, 2000) suggests that some individuals later diagnosed with schizotypal personality disorder developed without impairments in reciprocal social interaction and communication.

And here is some interesting information that it can and has happened, even here in the States:

"David Mandell, an epidemiologist at the University of Pennsylvania medical school, recently surveyed the adult patients in Norristown State Hospital in Eastern Pennsylvania, nearly all of whom are labeled schizophrenic, and found that about 20 percent of them meet the behavioral criteria for being autistic."

...and a link to the Full Article http://www.post-gazette.com/pg/08037/854963-114.stm

You know, The more I dig into this issue and the more I question it, the more it seems very likely that Julie Daniels study had grossly exaggerated many of the numbers and ratios regarding parental mental illness and autistic children I believe history will show a more logical conclusion; that parents with an Autistic Spectrum  Disorder (ASD) are more likely to have children with an Autistic Spectrum Disorder. I hope it will have a positive effect (negative for Dr. Daniels) of highlighting how misunderstood was Autism in the past, and how many ASD people –now adults- were misdiagnosed as mentally ill in the not-very-distant past.

Now, I gave Julie Daniels a chance. I read her full article on the Pediatrics Website (linked below), I figured somewhere in there she would give some kind of a nod to the fact that she was comparing contemporary apples to historical oranges. The only thing I found is this:

"Diagnostic practices in psychiatry continue to change, and case definitions become more narrow for both adult and childhood psychiatric disorders. Thus, it will be important to  assess the relationships between parental psychiatric disorders and an offspring's risk of autism in other data with more detailed and complete ascertainment of psychiatric disorders for parents and offspring."

No shit, Sherlock.

Well Julie,. Perhaps you should have thought of that before you set a whole generation of parents –who have quite enough on their plates already, -thank you very much –back about 60 years.

Why not just be done with it bring back the term “Refrigerator Mother”?

I just thought of a new name for Dr. Daniel’s study. “Researcher vacuum-sealed researcher reinvents the refrigerator parent”.

Thanks, Julie Daniels. Thanks from the bottom of my arse.

 

References:

Text of the study in Pediatrics magazine  http://pediatrics.aappublications.org/cgi/content/full/121/5/e1357

Diagnosis and differential diagnosis of Asperger’s syndrome by Michael Fitzgerald and Aiden Corvin http://apt.rcpsych.org/cgi/content/full/7/4/310

The ICD-10 http://www.who.int/classifications/apps/icd/icd10online/

The DSM-IV-TR  http://www.dsmivtr.org/index.cfm